David Talkington of Newark, Ohio was diagnosed with Hypophosphatasia (HPP) as an infant. This rare metabolic bone disease causes patients to break bones easily and can impact their quality of life. David could work a regular job until 2008 until he broke two femurs within 6 months of each other due to HPP. The Doctors informed him he should be on disability due to slow healing fractures caused by HPP.
David was approved for Social Security-Disability, is now in a power wheelchair outside the home but has had wonderful progress with treatment and physical therapy and can now walk around inside the house with assistive devices as well as using his power chair depending upon what he needs that day. He is currently getting evaluated to see if more physical therapy can be ordered since he has made more progress than we ever dreamed! While this is encouraging for longer distances he will still need the wheelchair and therefore the handicapped van is still desperately needed for him to get around. He is looking forward to more independence to drive to doctor’s appointments, therapy sessions and community events by purchasing a modified van. This brings a great hope for the future and confidence that he will gain a better quality of life.
May 13, 2020
We updated Dave’s total raised for the two projects currently that we are working on. Goal is 15000 for both projects for the house generator and the smart drive for back up power on his wheelchair.We are thrilled that the Facebook fundraiser has brought in $1665 so far and is running through Saturday. Friends have sent us $550 towards this project so we are over halfway to one of our goals. Thank you all so much for your love, prayers, shares, and support! Please let us know how we can pray for you! Blessings!
May 3, 2020
Giving Tuesday Now May 5
Tuesday May 5 is a Global Day of Giving for showing unity and generosity in this season and that #hopeisnotcancelled! Participation can include donating to a cause you care about, helping a member of your community directly, letting your voice be heard by advocating for an issue that matters to you, or getting involved with a special nonprofit cause as a digital volunteer.
Hope Help Live has encouraged us to share Dave’s page and needs during this time. This is humbling at a time that so many have needs. If you have a need we would love to pray with you and point others in your direction so please comment or pm us if you feel comfortable. In the last few weeks we have shared from what we have with others such as hand sanitizer, food, and other items people have shared with us so generously. We are so grateful for our community! But we have also been told others are looking for places and people to give to, so here we go.
We have two projects as goals to better Dave’s quality of life. One is a generator for power back up at our house, because many things Dave needs require electricity. From refrigerating his medicine, to charging his power chair, to his lift chair, and adjustable bed these are all items that contribute to how Dave functions on a day to day basis. We were reminded of this need as Daves medication refrigerator died during this COVID19 season and currently can’t be replaced due to them not being able to deliver safely. It has been apparent for awhile but now more than ever we really need back up power now for our home and fridge in case the power goes out. Estimated cost of generator 2 years ago was $6900 . We have requested an updated estimate from company linked here and will keep you posted: www.generac.com
In the last few years we have been honored to travel and share our story to help others understand our rare hpp journey and help facilitate hope in others. We continue to dream of doing more of this in the future as well as though the internet currently. So the second project we have is adding power to Dave’s manual chair, specifically a Max Mobility Smart Drive MX2 plus push tracker.( www.max-mobility.com to Dave’s changing abilities when we travel, or go longer distances, he uses his manual wheelchair and if he could push himself and then kick in the power when he gets tired or can’t push himself that would be wonderful and better for his health. There are times when we travel that we can get someone to push him but other times they are short staffed or we have no time. It’s at this point I have to push him and juggle our many bags as well, which can cause us more stress and exhaustion. I want to support Dave’s best health and independence, and I know he would appreciate being able to get himself around more easily. Estimate is $7000 new, and we have been told that insurance will not pay for it.
We last posted these on our Hope Help Live awhile back and $1500 came in to help which is wonderful and we so appreciate it! Please note that your gifts are tax deductible through Help Hope Live. You can currently use an e-check (they are temporarily covering the third party fee) but are unable to mail checks currently due to COVID. (Please note in Honor of David D Talkington on your gift)
Thanks to all if you read this far we believe that our telling our story brings hope to others. Thank you for sharing, liking and inviting others to join us, giving, loving us, and cheering us on in this chapter of our lives. We truly believe the Best is Yet to Come!
Photo Galleries (1)
November 30, 2018
Hoping that van will soon be there!
November 27, 2018
We love you Dave! I can't wait to see you in your new van.
November 17, 2018
In honor of David D Talkington
Kevin & Tami Holman Kevin & Tami Holman
February 12, 2018
Love you Dave!