David Talkington of Newark, Ohio was diagnosed with Hypophosphatasia (HPP) as an infant. This rare metabolic bone disease causes patients to break bones easily and can impact their quality of life. David could work a regular job until 2008 until he broke two femurs within 6 months of each other due to HPP. The Doctors informed him he should be on disability due to slow healing fractures caused by HPP.
David was approved for Social Security-Disability, is now in a power wheelchair outside the home but has had wonderful progress with treatment and physical therapy and can now walk around inside the house with assistive devices as well as using his power chair depending upon what he needs that day. He is currently getting evaluated to see if more physical therapy can be ordered since he has made more progress than we ever dreamed! While this is encouraging for longer distances he will still need the wheelchair and therefore the handicapped van is still desperately needed for him to get around. He is looking forward to more independence to drive to doctor’s appointments, therapy sessions and community events by purchasing a modified van. This brings a great hope for the future and confidence that he will gain a better quality of life.
December 1, 2020
For many of us, 2020 has been like steering through chaos in many ways. David and I have a lot of experience with living through chaotic situations, as thats what it is like having a Rare Disease like Hypophosphatasia. We learn to shift, change, and adapt with every curve ball thrown at us. This year has been different but we have applied some of the lessons from Rare Living to overcome and live fully this year.
We are thankful this Giving Tuesday, Dec 1, to present some needs that we have or anticipate coming up and appreciate your consideration to give, share, pray, and cheer us on in our journey with HPP and Help Hope Live. These small steps will help us get those needs met and for some of you get a tax deduction in the process.
August 31, 2020
Today is the big day!
Over two years ago we were told to think of three things that would improve Daves life. 1. The handicap van which we received a year ago. 2.A generator to provide uninterrupted electric for all things medical for Dave. Today that is being installed as we speak!!! Thanks to our family, friends, and anonymous who gave, shared, and prayed for this project! Thanks to Help Hope Live for existing, encouraging us to do a Facebook fundraiser, as well as a grant that helped us finish off the last of the project we needed! You have been amazing for this medical need that insurance does not pay for. It’s why Help Hope Live is a vital resource for so many that have needs like this and can’t find resources to help.
Thanks to Bill Hale and Curt Bragg with Weekley Electric who have patiently walked us through each step of the way. This company has been amazing and we highly recommend them to anyone looking for back up power for part or all of your house.
Thanks to this opportunity with Help Hope Live we can check another necessity off the list and not have to be concerned about power outage.
Any funds that come in the future will continue to help with things Dave needs that are medically necessary but not covered by insurance. We will be checking soon on his power for manual wheelchair and due to timing it might be covered by insurance. More on that later. Happy Monday!
Photo Galleries (2)
November 30, 2018
Hoping that van will soon be there!
November 27, 2018
We love you Dave! I can't wait to see you in your new van.
November 17, 2018
In honor of David D Talkington
Kevin & Tami Holman Kevin & Tami Holman
February 12, 2018
Love you Dave!