Help David Get a Handicap Accessible Van!
David Talkington of Newark, Ohio was diagnosed with Hypophosphatasia (HPP) as an infant. This rare metabolic bone disease causes patients to break bones easily and can impact their quality of life. David could work a regular job until 2008 until he broke two femurs within 6 months of each other due to HPP. The Doctors informed him he should be on disability due to slow healing fractures caused by HPP. David was approved for Social Security-Disability, is now in a power wheelchair outside the home but has had wonderful progress with treatment and physical therapy and can now walk around inside the house with assistive devices as well as using his power chair depending upon what he needs that day. He is currently getting evaluated to see if more physical therapy can be ordered since he has made more progress than we ever dreamed! While this is encouraging for longer distances he will still need the wheelchair and therefore the handicapped van is still desperately needed for him to get around. He is looking forward to more independence to drive to doctor’s appointments, therapy sessions and community events by purchasing a modified van. This brings a great hope for the future and confidence that he will gain a better quality of life.
October 12, 2018
URGENT! Dave and the Handicap Van
Have you ever run a marathon? If you haven’t have you ever had to persevere through challenging circumstances for an extended period of time? Well that has been Daves’s life with hypophosphatasia (hpp). Hpp is not a 50 yard dash, it’s a marathon. You have to train with physical therapy, do exercises, take breaks, rest, get good nutrition, medical care, tests, medicine, procedures, even surgeries sometimes, and start it all over again. At times it can be very exhausting and discouraging. Rare diseases are like that in that they are challenging, stretching, and life long.
We have been very encouraged with the treatment and physical therapy Dave has been receiving. It has helped him to be able to travel and share his HPP story with others who also have HPP, their loved ones, and care givers. Sharing your story can be encouraging to others that they are not alone, someone else understands my struggles, if Dave can live a fulfilling life I can too! Everyone has challenges in life, one of Daves happens to be HPP.
Another marathon we have been running has been raising money for a new handicapped van purchase.The grant we applied for had too many applicants and they could not help us. We would like to thank Chive Charities for even accepting our application for consideration and we are thankful for all they can help other with rare diseases, veterans, first responders, and special education this year!
Here’s the run down of where we are at now: Through Daves Help Hope Live account we have raised $ 6,926. Through Daves Stable account we have raised $ 9,250. Our goal is to raise $75000 by winter to purchase a new handicapped van with all the features Dave requires. Thanks to all who have helped us so far! Please consider, like, share, and give. Gifts to Help Hope Live are tax deductible and they also participate in companies matching gifts. Time is running out so whatever funds we raise will be used to purchase a new or used van by winter.
Last, but certainly not least, HPP awareness day is Oct 30. If you know of someone who is fracturing bones and they don’t know why ask their doctor to check their alp(alkaline phosphatase). It’s a routine blood test most people have had. If it’s low alp it might be HPP.
Do you break bones often? What’s your alp? Is it hpp?
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June 24, 2018
David Talkington update
Dave is working hard in physical therapy for neck range of motion. We are thankful he has this opportunity and that he is making such great progress.
Dave and Sharon are sharing their hpp (hypophosphatasia) story of hope with others in the hpp community with a goal to encourage others that life with hpp is worth living there are just some adjustments and bumps in the road to negotiate at times that are different from others challenges in life.
Since our last update The Worth While Life worthwhilelife.org had a bowling fundraiser and raised $7000 that they deposited in his Stable account for the van! This was such an encouragement to us and we can’t thank them enough! The Hope Help Live account has grown to over $6000 as of today!!! Words can not express how thankful we are to the many family, friends, and others we have not met yet that have given towards this project.
Our latest step is to apply for a grant to help with the van as you can see this is a large project. We finally found one that could fit but it takes months for them to process and if Dave qualifies answer. In the meantime we continue to share the Hope Help Live Link as well as the Stable account for any who would like to give. We appreciate all who are praying, sending positive thoughts, and cheering us on in this marathon project that we pray will soon be accomplished as our other van is getting pretty tired. We are thankful for it but our season with it is coming to an end we believe soon.
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February 13, 2018
Love you Dave!