Help David Get a Handicap Accessible Van!
David Talkington of Newark, Ohio was diagnosed with Hypophosphatasia (HPP) as an infant. This rare metabolic bone disease causes patients to break bones easily and can impact their quality of life. David could work a regular job until 2008 until he broke two femurs within 6 months of each other due to HPP. The Doctors informed him he should be on disability due to slow healing fractures caused by HPP. David was approved for Social Security-Disability, is now in a power wheelchair outside the home but has had wonderful progress with treatment and physical therapy and can now walk around inside the house with assistive devices as well as using his power chair depending upon what he needs that day. He is currently getting evaluated to see if more physical therapy can be ordered since he has made more progress than we ever dreamed! While this is encouraging for longer distances he will still need the wheelchair and therefore the handicapped van is still desperately needed for him to get around. He is looking forward to more independence to drive to doctor’s appointments, therapy sessions and community events by purchasing a modified van. This brings a great hope for the future and confidence that he will gain a better quality of life.
December 4, 2018
So we were recently honored to be speaking at Stand with HPP Pittsburgh and Dave’s sister and brother in law joined us for the meeting. They arrived early for lunch and Dave decided to show them a few new things he could do since starting treatment and a lot of physical therapy over 2 and 1/2 years. So he got up and began to walk around with his cane and they were so surprised his sister asked if she could take a video. Well she did and during the video Dave began to exceed her expectations and you can hear the tears of pure joy in the background. Lots of hard work in pt, treatment that took tons of things coming together to create, manufacture, bring to market and eventually Dave to take, lots of faith and courage on his and our part to walk out this journey, as well as friends family and an hpp community cheering us on and praying for us one step at a time. So this is a bit of the story behind the video. Dave has worked so hard and has new walking stills but for longer distances he will still need his power chair as this is a treatment and not a cure. We need the van by winter. So if you would like to help us please give to Davids Help Hope Live. It’s tax deductible and they also participate in employee matched gifts. Please share with your friends who may be looking for end of the year tax deductions. Thank you all for your love and support! We feel it! <3
October 12, 2018
URGENT! Dave and the Handicap Van
Have you ever run a marathon? If you haven’t have you ever had to persevere through challenging circumstances for an extended period of time? Well that has been Daves’s life with hypophosphatasia (hpp). Hpp is not a 50 yard dash, it’s a marathon. You have to train with physical therapy, do exercises, take breaks, rest, get good nutrition, medical care, tests, medicine, procedures, even surgeries sometimes, and start it all over again. At times it can be very exhausting and discouraging. Rare diseases are like that in that they are challenging, stretching, and life long.
We have been very encouraged with the treatment and physical therapy Dave has been receiving. It has helped him to be able to travel and share his HPP story with others who also have HPP, their loved ones, and care givers. Sharing your story can be encouraging to others that they are not alone, someone else understands my struggles, if Dave can live a fulfilling life I can too! Everyone has challenges in life, one of Daves happens to be HPP.
Another marathon we have been running has been raising money for a new handicapped van purchase.The grant we applied for had too many applicants and they could not help us. We would like to thank Chive Charities for even accepting our application for consideration and we are thankful for all they can help other with rare diseases, veterans, first responders, and special education this year!
Here’s the run down of where we are at now: Through Daves Help Hope Live account we have raised $ 6,926. Through Daves Stable account we have raised $ 9,250. Our goal is to raise $75000 by winter to purchase a new handicapped van with all the features Dave requires. Thanks to all who have helped us so far! Please consider, like, share, and give. Gifts to Help Hope Live are tax deductible and they also participate in companies matching gifts. Time is running out so whatever funds we raise will be used to purchase a new or used van by winter.
Last, but certainly not least, HPP awareness day is Oct 30. If you know of someone who is fracturing bones and they don’t know why ask their doctor to check their alp(alkaline phosphatase). It’s a routine blood test most people have had. If it’s low alp it might be HPP.
Do you break bones often? What’s your alp? Is it hpp?
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December 4, 2018
Hoping that van will soon be there!