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On February 5, 2017 Jamie had a double lung transplant at Northwestern Hospital in Chicago. This has been a long time coming as in early 2014 he was diagnosed with Chronic Hypersensitivity Pneumonitis, an aggressive interstitial lung disease. This disease causes inflammation in the lungs that in turn develops into pulmonary fibrosis (scaring of the lung tissue).

Though he tried every traditional and alternative medical treatment available, his lung function has continued to decline rapidly. Eventually, Jamie has needed to use supplemental oxygen 24/7 and has no longer been able to work. At the time of his transplant his lung function was under 16% capacity; which his doctors said was an indicator not only of the severity of his disease, but also a testament to his strength as they have never seen a patient with such poor lung function. That said, his only hope for survival was a double lung transplant. This procedure is one of the longest, most dangerous, and complicated surgeries that one can undergo, however, so far Jamie is thriving. He has a long road ahead of him with at least several weeks of inpatient care, several months of 24 hour care, and at least a year before he can start working again.

Updates (11)

October 16, 2017

So it’s been a long time, here’s a little update. Just did my 8 month check up, x ray, lung biopsy, pulmonary function test, ect. and everything is heading in the right direction still. No infection or rejection, just some pain issues. But the contrast of the new to the old chest x ray really stood out to me. On the right side is my old lungs xrayed and you can see all the white scarring. That is all fibrosis that had lowered my lung capacity down to 14%. I should of been in a coma my doctors said. On the left are my all clear / black outlined new lungs. Doctor says they look perfect, that’s what you want. All black, no white. What a difference, I was in really bad shape!
October 2017 x ray comparison
Left Side; Current new lung x ray = perfect, you want all black, white spot in the middle is the heart. Right side = old lungs, all the white is fibrosis, it’s so bad you can see my esophagus kinked sideways. How the hell did I breath or swallow at all!?!

July 18, 2017

Our pig roast/BBQ fundraising event was a huge success! “Thank you”, to all of our generous donors and helpers, the support we received from all of you was humbling. The weather on the day of the event was perfect and we managed to exceed our projected goal!

Jamie is doing well, he was able to attend the event and personally thank everyone for their support.

We couldn’t have come this far without the support of our family and friends! You guys ROCK!

Photo Galleries (3)

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Guestbook

June 10, 2017

I drove by your old house in Perry the other day so I figured i'd look you up.. I stumbled on this sight.. I just want you to know that you are the strongest person I've ever known.. Hands Down.. I'm hoping for a fast, healthy revovery.. You got this brother.. Love ya man

Steven Aruta

March 15, 2017

well Jamie, you got me beat by 10" - the family record for incision length now passes to you!! We're so glad to hear that you're doing really well & send our best wishes for your continuing recovery.

Aunt Sue & Uncle Jim

March 15, 2017

I'm so glad to hear of your great progress. Keep on truck'in Jamie! I just know this is going to work out well for you.Love,

Aunt Jan

June 24, 2017

Get well soon, Jamie. I look forward to seeing you up and around. You are always in my prayers.

Carol Cullinane