Troy Frymyer received a liver transplant in May 2012 because of Cryptogenic Cirrhosis and after almost 5 years of being in and out of the hospitals with complications related to his failing donor liver, Troy’s only chance of recovering is another lifesaving transplant. He is currently being evaluated by the Mayo Clinic in Jacksonville, Florida to be placed back on the Liver Transplant List.
Troy is a giving soul and has been in the Central Florida area since a child. He has grown many friendships in the construction business over the years and after many years of helping others; Troy is now the one who needs our help. Transplantation and follow-up medications and treatments are very expensive. Even with insurance coverage, there are copays, deductibles, and out of pocket expenses that have to be met. His wife Sonya, who works full time, will have to take time from work to provide pre-transplant care for Troy due to his failing health, take him to and from MD appointments and testing, and relocating to Jacksonville for approximately 2 months to provide continuous care for Troy post-transplant.
To help with the financial burden of Troy’s uninsured expenses, a fundraising campaign in his honor has been established with HelpHOPELive, a trusted nonprofit organization that has been providing community-based fundraising guidance to patients and their families for more than 30 years. All donations are tax deductible, are held by HelpHOPELive in the Southeast Liver Transplant Fund, and are administered by HelpHOPElive for transplant-related expenses only. Please consider a contribution.
For credit card contributions, please visit www.helphopelive.org and search for Troy Frymyer or call 800.642.8399. Or:
Make checks payable to:
HelpHOPELive
Note in memo section:
In honor of Troy Frymyer
Please send to:
HelpHOPELive
2 Radnor Corporate Center
100 Matsonford Road, Suite 100
Radnor, Pa 19087
Updates (9)
December 23, 2012
Merry Christmas!
Troy has been hospitalized for all of the holidays since the transplant in May 2012. The week of Thanksgiving, we were told that Troy wll need another transplant in the near future due to deterioating bile ducts from his current donor liver (Cholangitis is the medical term). High fevers complicated with blood clots and neuro-toxic effects from the anti-rejection meds have been major problems. We're praying that the Christmas holiday will be complication free! We wish to thank everyone for their continued prayers, thoughts, and support. Oh..and ...MERRY CHRISTMAS!!! Don't forget about Caringbridge.org/troyfrymyer. The site is updated at least once a week and more often as complications occur.
Love to all!
Troy and Sonya
October 30, 2012
Recovering...
As most of you know, Troy had his Liver Transplant x2 on 5/20/12 and again on 5/24/12 due to complications. Troy was inpatient until 7/10/12 and was able to return to his home in Orlando on 7/21/12. He's been in the hospital a 3 times since his transplants. Blood clots have been major contributors to his complications. He is now on life time Coumadin therapy. Troy was on dialysis for 3 months after his initial hospitalization with his kidneys finally waking up on 8/21/12 and no further dialysis required. The road to recovery continues to be rocky but steady. Troy and I both appreciate the prayers, thoughts, and support from everyone. I continue to update caringbridge.org/troyfrymyer very often.
Thank you all so much..
Troy and Sonya Frymyer
June 10, 2012
5/23/12 through 6/10/12
These are the ongoings from 5/23/12 through 6/10/12... Troy continues in Critical Condition in the Mayo Clinic ICU. We are praying for continued healing and no further complications.
Sunday, June 10, 2012 5:18 PM, EDT
Darn jungle berries....
Well, you know earlier that I spoke about Mr. Adventurer's must have ate some bad jungle berries or something in his dreams? Well, the ole gray haired chief took care of that situation today!! LOL! I don't think he'll have to worry about that dream again anyway soon! Needless to say though...the adventurer feels much better...even though he does grimace every time the chief or his tribes women walks by him in his dreams!
Step by step...little by little...
Praying for continued healing and no further complications.
Love to all:
Sonya and her Mr. Clean Adventurer...he he heeee... It's all good!!!
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Sunday, June 10, 2012 8:39 AM, EDT
In the jungle.....
Mr. Adventurer had some wild dreams of being in the jungle last night. At one point he thought that he must have ate some bad berries or something because his poor stomach was giving him pure you know what. But, he just so happened across some really nice natives who put something down his nose and WOW!!...miracle workers those folks are! His stomach was drained of all the bad stuff and then he felt much better. The good ole restful dreams of playing with the grandkids and the pups started around 4 this morning. Then around 8 this morning, he must have thought he was back in the jungle dream because he could hear the gray haired chief of the tribe tell the tribes people that this adventurer will need to be awaken in about an hour and kept awake all day....Mr Adventurer heard the chief say...."I don't care if we have to poke and prod him with a stick all day to keep him awake!" Mr. Adventurer is hoping that this was another bad dream.. I guess we'll see in about an hour to see if it was or if it wasn't!! You better get your zzzzzs while you can mister! :)
Praise God, all of his liver enzymes results were decreased from yesterday. He still has a LONG way to go on getting them all the way back to normal, but the downward trend on them all is very welcomed. Since it looks like Troy may be on dialysis for a while longer, another procedure wil be performed tomorrow to put in a more stable dialysis access called a Tunneled Catheter. That'll be a good thing for sure because then he can get that great big ole one out of his neck that drives him crazy!
He did have a heck of a time last night with his stomach distending..he was very uncomfortable. So, the NG tube was placed back into his stomach with almost instant relief. He continues to sleep at this time but within the hour, he'll be awaken and I'll have fun all day making him stay awake. I guess no sleeping during Nascar!!! LOL!!! Where's my cattle prod!
The plan for now: Slow....continue to wean down the vent...put him on some medicines that they can put down his feeding tube for his heart and blood pressure...new dialysis access tomorrow...keep him awake all day to get his sleep cycles corrected...
Troy continues to walk that fine line that the docs here at Mayo are finding out that it's a VERY FINE line...lol. We'll continue to pray for continued healing and no further complications..and...an increase in his physical/mental strength!
Love to all:
Sonya and her Jungle Adventurer!
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Saturday, June 9, 2012 9:18 PM, EDT
More visitors..
We were also blessed to have Jeremiah and Maria to visit us today. My baby boy will be 27 tomorrow...how time flies. Happy Birthday Jeremiah! We both love you and Maria very much!
Troy had one of his NG tubes removed today..one less thing...since he has his days and nights mixed up, they are trying him on a new medication tonight to help him rest and to get that sleep cycle back to normal. That being knocked out for so long these last 3 weeks really has packed a punch to him. Also, the liver levels were all better except for one in which was raised just a little bit more...we're praying that all of the liver functions will be better in the morning labs.
Mr. Adventurer had a somewhat busy day today with family coming to visit and to show their love for him. Still in the fogbank, he is still contemplating if each passing day is real or still just a dream. Did he really have visitors or not? Every once in a while the pain that he endured in the forest is still there. Hurting here and there. Not knowing if he is really breathing or is it the wind in the trees that he heard that one really stormy night that he spent in the woods. Even though my adventurer is home, he really isn't. It's like a dream in a dream. One day the dreams will combine to reality and that's when Mr. Adventurer will really be home. I look forward to that day.
Love to all:
Sonya and the Dreaming Adventurer
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Saturday, June 9, 2012 12:45 PM, EDT
Nice Surprise for Pa...
The adventurer received a nice surprise this morning. Visitors came .. ... Our grandchildren, Ava and Quinn came to visit their Pa. Thank you John and Gabby for bringing those little rascals up. Troy certainly smiled when he saw them and I know that seeing them was a great motivator. We sure do love all of y'all! Looking forward to being home to see y'all all the time. Be safe going home.
Troy continues to be very weak and he's frustrated as all get out...lol. But the way I see it...that's good. More motivation! One worry this morning.... his liver enzymes increased twice the amount this morning. We are all hoping that the increase is maybe related to yesterday's procedure. They'll be checking his levels again this afternoon and routinely every morning just to make sure.
Troy and I would like to take this time to thank everyone for their comments, encouragement, prayers, and support during this time in our lives. We have heard from family, friends and folks we have never met. After hearing so much bad stuff about this world, Troy and I are here to prove that this world is awesome with some of the most excellent human beings ever. We are so thankful to the good Lord for everyone of you and we pray that He just wraps His big ole arms around each one of you. Thank you especially for what's going on today in regards to the Car wash, bake sale, and 50/50 raffle. Troy and I wish that we were there with all of you... Hopefully the weather held out. Thank you Reggie and Lisa...y'all are awesome. Help/Hope/Live contributors...Thank you is all we can say....so touched for sure. You others out there...you know who you all are... MMMMMMMM---wah!! Big hugs to you all and thank you also! God is so good.We are so blessed.
Prayers: Continued healing for my mighty adventurer and no further complications.
Love to all:
Sonya and my awesome adventurer!
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Friday, June 8, 2012 3:53 PM, CDT
Did just fine...
My adventurer did just fine in the procedure and now he's back in his room sleeping it all off. The doc stated that they saw no further leaks at this time with lab work and further testing to be performed over the next few days just to make sure. Troy is still critically ill and continues on the ventilator and dialysis and this and that... Not a dull moment with him for sure..
Just praying for continued healing and no further complications.
Love to all:
Sonya and Troy
Sent from CaringBridge iPhone app
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Friday, June 8, 2012 11:29 AM, CDT
Going to procedure
They just took Troy to the operating room for his procedure. I'll update afterwards. Prayers are very much appreciated.
Sonya
Sent from CaringBridge iPhone app
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Thursday, June 7, 2012 2:05 PM, EDT
Rescheduled
The procedure has been rescheduled to tomorrow morning.
At this time, the adventurer is in his chair watching Gunsmoke. Every once in a while looking over here at Pop and me. I make faces at him and he does the same back. He seems a little more stronger today..lifting an arm here and the other there at times. Moving his legs back and forth. Giving thumbs up at times . He's still trying! That's all that I ask.
I'll be updating after the procedure in the morning.
Prayers for a successful outcome, continued healing, and no further complications!
Love to all:
Sonya and the adventurous adventurer
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Thursday, June 7, 2012 1:00 PM, EDT
Leaky bile duct...
Troy had a procedure called a Choleangiogram performed this morning because a couple of his labs were increasing...(Bilirubin total and Bilirubin direct) The procedure revealed that the biliary duct is blocked ..Bile duct obstruction is a blockage in the tubes that carry bile from the liver to the gallbladder and small intestine. It is very important to get this unblocked quickly due to possible infection, liver damage, and so on. So what the doc stated is that they will be placing a stint into this duct to keep it open. The procedure will take place at 3pm today. Praying for a successful outcome, continued healing, and no further complications.
I'll be updating after the procedure.
Love to all:
Sonya and her Leaky Adventurer...
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Thursday, June 7, 2012 10:33 AM, EDT
Baby Steps...
The doc just said..."baby steps.." in which is ok. Vent settings continued to be lowered...and Troy is still very weak. A lot of encouragement going on. He's scheduled for a couple of test this morning. Couple of his lab work went up so they just want to make sure everything is ok. His liver enzymes continue to decrease in which is good. Dialysis continues.
Baby steps...nah.... A big ole bear like the adventurer takes cub steps that turn into big ole grizzly steps. It won't be long he'll be pawing his way back to the place of ultimate bearness!!!! GRRRROWL!!!!!!
Praying for continued healing and no further complications.
Love to all:
Sonya and her Growling Adventurer!!!
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Wednesday, June 6, 2012 6:44 PM, EDT
So tired...
I am so thankful that I'm able to stay in the unit with Troy. He continues to be extremely weak but we're working on that. Exercising those joints every chance we get. His brain fog is lifting a little with my showing him pictures of the grand babies, pups, friends and so on..(thanks Kathy for the pics from the camp). Of course he's not talking yet because of the ventilator but the docs are also weaning his ventilator settings down ever so slightly each day to keep that "fine balance" going. I was just watching him..he's in his bed watching "Larry Crowne" the movie and he was smiling to a really funny scene. My cutie pie. His heart rate and blood pressure continues to be controlled with meds with his blood pressure giving the nurses troubles at time because Troy likes his blood pressure on the low side sometimes. ..in which raises the nurses blood pressures! LOL! He is lifted from his bed from a hammock like lift to his chair once a day..and he tolerates that pretty well...until his blood pressure drops and the nurse throws the back of the chair back to get his blood pressure back up! LOL! and Troy is looking like..."what did I do?" Poor soul... I'm sure he'll find all of this humorous when he's 100% better... right now...he's not a great fan of everything going on but he's doing everything and tolerating everything that they have to do to him.
My adventurer continues to try to get out of that great fog bank that is clouding his mind. Memories here and there starting to appear and then disappear. He's unsure of what is real and unreal but knows that there is one constant that is always close by that will help him find his way.
Praying for continued healing and no further complications.
Love to all:
Sonya and her Foggy Adventurer
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Wednesday, June 6, 2012 8:35 AM, EDT
Day by Day....
Troy is still awake. Not a very restful night ..having to be turned every 2 hours..this test..that test. Stuff that he normally slept through before. He's pretty tired this morning. Extremely weak for sure. I told him just to take his time and eventually he'll be as strong as ever. He smiled and shook his head yes. His heartrate and blood pressure are still maintaining with medications. Ventilator is gradually being weaned down. He still has tubes all over the place bags and bags of IVs/dialysis stuff/wound vac stuff....all kinds of stuff...lol. As the doc stated previously...a Fine Balance is taking place.
Mr Adventurer is still confused of what's actually going on with him. He doesn't remember anything about even gettting into the woods much less getting lost in there for so long. Little reminders every once in a while are given to him due to not wanting to overwhelm at first. Day by Day is what is needed now.
Praying for continued healing and no further complications...
Love to all:
Sonya and her daydream believer!
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Tuesday, June 5, 2012 8:26 PM, EDT
Smiled...
My adventurer smiled at me today and what a beautiful smile it was. The docs are bringing him out of his slumber very slowly. He was able to maintain his heart rate at a good rhythm and his blood pressure did pretty good also. Troy tolerated even being on the ventilator breathing for him. He was placed from his bed unto a chair in which he tolerated well. He's back in bed now...being very quiet and just looking around. Every once in a while he'll turn and look at me ..I guess just to make sure that I'm still here...lol. I'm surprised he hasn't seen the lightning show going on behind me...pretty nice little thunder boomer going on outside.
We're not borrowing any trouble as mom says it...lol...so we're praying that Mr. Adventurer continues with overall healing and no further complications. He's still just so tired and somewhat confused of what he's gone through and still is going through. At times he doesn't know if he is still in the woods or at home. His memory is so foggy.
Love to all:
Sonya and her confused adventurer
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Tuesday, June 5, 2012 10:59 AM, EDT
Yawning...
Even though Troy is still pretty much under sedation, he still occasionally yawns. I know that there is a medical reason for it such as taking in a little more o2 and so on, but I'm taking it as my adventurer is getting tired of being so doggone tired and sleeping. I'm sure his dreams are filled with playing with the grandbabies and walking with the pups. He's in a good place a this time.
His heartrate/BP are pretty well being kept under control at this time. His blood level was down so they had to give him a couple of units of the old red stuff to bring him up to a good level. Troy continues on dialysis in which the kidney doctor stated that as the liver feels better the kidneys will too so we'll keep him on the dialysis for quite a while longer.
Other than that...my work family knows me well and probably are knowing that I'm not just sitting here doing nothin'. YEP...got my scissors out cutting out coupons and categorizing them...lol. All of my spreadsheet budgets are up to date...and everything sent off to the insurance company this morning through the mail. I have my laptop/printer up here so I'm sure Troy is over there hearing me do all this and he's thinking that he is at home. :)
Prayers continuing for healing and no further complications!
May you all have a great Tuesday...
Love to all:
Sonya and her Yawning Adventurer.. :0
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Monday, June 4, 2012 6:28 PM, EDT
A little at a time...
Troy is making sure that he's having a full detailed done on all of his systems. First his liver, then his kidneys, then his lungs, and now his heart. But hey...he's asleep through it all. I just spoke with the doc...he stated that it's going to be a bumpy road for a while but has has hopes and everything will be done to the best of their ability to pull Troy through this. We are all finding that Troy's body heals better when he sleeps ..so...at least once a day they'll bring him out of his slumber to see how he reacts good...thats a good thing...not good... let's try the next day. He's on meds to keep his heart rate down and meds to keep his blood pressure up...and at the same time controlling his pain without causing too much sedation and so on and so on. As the doc said...it's going to be a very fine balance for Troy with tweaks here and there to keep him progressing. Heartbreaking...at times..very...but then I see him fighting like he is and and I'll be right here with him fighting just as hard.
My adventurer is complicated man. Praying for simpler times.
Love to all:
Sonya and her complicated adventurer
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Monday, June 4, 2012 10:35 AM, EDT
Updating in a few
Hi everyone..
I'll be updating in a few. Still waiting for a couple of docs to make their rounds to see what the plans are for the day.
Hoping everyone is having a great Monday so far!
Sonya
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Sunday, June 3, 2012 9:09 PM, EDT
It won't be long...
My honey bunny has been kept sleeping all day. Nurses providing great care. Physician's coming in and out checking on him...changing out this ..changing out that. Trying to figure out what Troy might have up his sleeve next..lol. Hopefully the only trick left that Troy has is finally deciding that it's time to get 100% well. He certainly has kept the best doctors in the States scratching their heads! Plan tomorrow: Gradually bringing him off of the sedatives and see how he does. Prayers are for continued healing and to remember, all this is in God's hands.
My adventurer is having a hard time recovering from his days lost in the forest. He's just so tired and sore all over. How much longer will he feel this way? Hopefully not too much longer.
Everyone have a great night..don't forget to say your prayers!
Love to all:
Sonya and slumbering bear
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Sunday, June 3, 2012 10:14 AM, EDT
It's the first Sunday of June 2012!
It is just so unreal to know that today marks the 2 week mark of Troy's first transplant and the continuing adventure we are all experiencing now with this courageous fella. Troy is still somewhat sedated because the docs are wanting him to heal silently and the best "silently" is sleeping. The plan for the day though is to reduce the sedative gradually. Progression is coming right along... yesterday they removed one of his drains from his wound. His big surgical wound is healing very nicely with the help of the wound vacuum. His ventilator settings are being reduced so that Troy can start taking over with his breathing and he is handling that very well also. Of course I am anxious to see him looking at me again and smiling...but being a nurse too, the slow and easy route is the best for Troy. My prayers continue to be healing in all aspects with Troy with no further complications.
In the quiet morning hours not too much is stirring around the household. Just a steady rhythm of breathing from my adventurer still resting in bed. Rest a little longer and you'll see that everything will be ok.
Love to all:
Sonya and my little honey bunny
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Saturday, June 2, 2012 9:22 PM, EDT
Still Sleeping...
The docs were wanting Troy to rest one more day to help his lungs heal and those clots to disintegrate in his lungs. Blood thinners are still ongoing, along with the dialysis, ventilator, and so on and so on. His blood levels continue to improve. I'm so proud of him. I just continue to pray for continued healing and no further complications....
ok...Mr. Adventurer....one more night and that's going to be it! There's just so much to do and so much to see in this beautiful world.
Again..thank you all for your comments/thoughts/encouragement/and continued prayers.
Love to all:
Sonya and my lovey dovey...
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Saturday, June 2, 2012 12:28 PM, EDT
It's time to wake up Mister...
I spoke with the doc this morning...instead of one clot in his lung, they found several very itty bitty ones in both of his lungs. One of the docs said it was as if a larger clot was going through his body and all of a sudden it just looks like it just broke up into several very small clots when it hit his lungs. Miracle...I'm calling it that...if the clot did not break up prior to hitting his lung, Troy not might have made it through it or had far worse complications than he is having now. With the small clots, they will be treating with IV heparin or blood thinners. Believe me, the docs here are watching Troy like a bunch of eagles..I'm not going to say buzzards..LOL!! for obvious reasons... geez. So...the plan now...blood thinners... Troy is now off of the paralyzing medication so he's starting to move around now...that's good...next is the michael jackson drug...they'll start weaning him off of that today and hopefully he'll be somewhat awake tomorrow..GOOD LORD'S WILLING!!! Troy is tolerating being weaned down on the ventilator very well with his oxygen maintaining...he liver enzymes continue to decline... he continues on Dialysis for his kidneys but that's ok...we'll work on that later. Prayers for continued healing, dissolving of the blood clots with no further reoccurrence, no complications with bleeding...oh...let's just pray for everything on this boy ..just like we've all been doing.
Mr. Adventurer...Mr. Adventurer...MR. ADVENTURER...IT'S TIME TO WAKE UP!!!! Your pups needs to go for a walk and you've been sleeping way too long. Folks aren't going to recognize you if you stay away too much longer. Ahh..he's starting to stir... now if he could just open up those sleepy eyes.
Everyone have a great and safe day...
Love to all:
Sonya and the pup whisperer...
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Friday, June 1, 2012 9:53 PM, EDT
Found it!
Just a quick update. The cat scan of the chest did reveal a small pulmonary embolism. Also know as a small blood clot in Troy's lungs. Troy will be started on small amount of blood thinners to hopefully prevent a larger clot that may happen and could cause all kinds of more serious havoc than what Troy could stand...we certainly don't want that for sure! So prayers now: That the blood clot in Troy's lungs will dissolve quickly and no further clots will form anywhere in Troy's body...the blood thinner will not cause any bleeding complications...also that the liver enzymes will continue to decrease...he will wake up stronger than the last...and NO further complications!
I think I'm about to be like the adventurer.... sleep is calling!
Good night everyone...
Mr. and Mrs. Adventurer
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Friday, June 1, 2012 9:08 PM, EDT
Very busy while sleeping...
For someone that's been sleeping all day, Troy has certainly had a busy day for sure beginning early this morning. And all kinds of testing with Initials... U/S, EKG, TEE, CTA... then bronchoscope....blood draws galore. The docs are scratching their heads over this young man. TEE was making sure that the device in his heart didn't come out...in which it didn't and his heart looks fine... it did show Troy's intrapulmonary shunts that we were already aware of but didn't show any worsening... EKG...heart is fine with occas irregularities but that's common with that device in his heart... U/S of legs showed that there were no blood clots in either of Troy's legs... Bronchoscope...few secretions in the lungs but not too much going on... Cat scan of his lungs was just performed...yep...just performed!...lol...I told you he had a busy day despite sleeping through it...and we are waiting on the results of that. The docs are starting to wean down his ventilator some and Troy is tolerating that ok... if all goes well with the Cat scan..I'm thinking they'll be pulling Troy back off of the coma meds tomorrow and we'll give it a go again. We are praying for healing with this guy...he's gone through a lot but he continues to fight...fight, fight, fight...
Sleeping in his recliner most of the day...the adventurer had some wild dreams going on...he dreamt that one time a herd of people was around his chair looking down at him putting something in his mouth that probably would have gagged a bear but Mr Sleepy head didn't feel a thing...Then he felt some one massaging his legs and at another time pounding on his belly.One time he even saw a big ole alien going around his chair making all kinds of noises with lights going off. Then the final dream consisted of people rolling him down this bright hallway and into a little room..pulling him out of his chair unto this really HARD table...cold at that. Had to be that big ole alien again. Whew...back in his chair the people rolled his chair back to where he belonged. The adventurer was thinking while he was sleeping..."what in the world did I eat to cause dreams like this??" I'm thinking Mr. Adventurer is thinking that's it's about time to wake up!
Love to all:
Sonya and Timex (takes a lick in' and keeps on tick in'!)
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Friday, June 1, 2012 12:33 PM, EDT
Two steps forward...one step back
Troy had such a good day yesterday that he decided to take a step back last night to take today off. Troy was very responsive yesterday...with some joking around..sitting up in the chair and doing exercises to gain his strength back. He was even off of the ventilator for a long while with just oxygen going into his trach. Then last night, Troy started having problems with his breathing that he just couldn't get control over..so to help him to get over this little bump in the road, he is now back on sedation vacation ventilator dependent until we know what's going on with him. Testing is ongoing at this time with hopefully good results....His liver seems to be functioning adequately with the liver enzymes continuing to decline... so that's another positive going on.
Adventurer is just another name for this awesome guy...the best name for him is (How difficult can we make this Mr. Adventurer!) ok...I'm just kidding.....lol.. I love ya Troy...you know this. After a day of vigorous activity trying to get caught up on everything that needed to be addressed at his home. The adventurer was just too tired to even think about doing anything today at home. Instead, he's slumbering in his recliner with his faithful pups at his side. Even they are wore out from all of activities from the day before. So, a weekend of just taking it easy or a little more activity tomorrow. We'll see (how difficult can we make this Mr. Adventurer!) does today to know that result tomorrow!
Love to all:
Sonya and (How Difficult can we make this Mr. Adventurer!)
Adventure continues...
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Thursday, May 31, 2012 7:17 AM, EDT
Restful night...
Troy had a restful night. Still in critical condition, on dialysis, on ventilator but over all doing a little better each day. He's very responsive to questions asked in which is a good thing. 4 out of 5 of his liver functions did decrease some since yesterday. One went up but hopefully it'll be in agreement with the others tomorrow. Today, I don't know of any aggressive testing today...just letting him get his strength back up. They are also talking about getting the tubes out of his nose. We just finished our joint exercises for the day and he's over there now lifting his arms up and down. We'll just pray for continued healing and strength.
Traveling through the woods just wore my adventurer out. He's ready to get back to his every day life. His current body weakness and slow going are his major frustrations for today.... but, our adventurer won't let that get him down for long. All restraints are off and strength building has already begun!
Love to all:
Sonya and It's time to get up and move!!!
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Wednesday, May 30, 2012 7:47 PM, EDT
After the storm...
Troy had his liver biopsy today but we will not be getting the results back for a couple of days. The docs stated that they are going to go ahead and treat him like Troy is rejecting the liver. Other than the meds that he is already on, they started him today on massive doses of steroids and other anti rejection meds to see if they can get it under control. They've also took him off a couple of meds that could be also causing the increased liver enzymes. When these enzymes are elevated, it usually means that there is some damage or some inflammation on in the liver. Troy is a whole lot more awake today and responds appropriate to questions asked. He really doesn't like all of the tubes coming out of him...lol..esp the ones in his nose, but it won't be long---they'll all be coming out. Right now he's watching True Grit. Every once in a while he'll look over here at me---he just don't like laying around ....he's fidgety...but we'll take that too!
ok...back to the story. After laying low in the house for the day, Troy and I did venture outside for a while and set in the swing.. He was still a little tired to tell me of his adventures of being lost in the woods but I'm sure in a few days, he'll be able to, and the same on my side....I'll let him know of what went on while he was lost in the woods and pray that it will never happen again.
The story of continues...
Love to all:
Sonya and her ray of sunshine...
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Wednesday, May 30, 2012 8:57 AM, EDT
Snuggle Bunny...
Troy is still in critical condition and remains on the ventilator and dialysis. Troy is scheduled for liver biopsy at 10:30 this morning. His liver enzymes are still increasing steadily in which means he may be rejecting or it just may be something else that can be treated without further invasive stuff. I'm praying for the latter for sure. Troy continues to respond appropriately to questions asked and he does open his eyes, wiggles his toes when asked to. The docs are thrilled with this for sure. We just have to get his over this little quirk. I'll update as soon as I hear the results.
As far as the adventure goes: Troy finally made it home last night. He's still very tired and he's sleeping at this time. The pups at his side. Now we just heard that a storm was brewing in the horizon so we may have to lay low in the house for a while until it passes. Good thing though...he knows that I'm here with him..."Strength in numbers" goes a long way.
Love to all...Sonya and her snuggle bunny
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Tuesday, May 29, 2012 8:15 PM, EDT
Sunshine...finally!
The sun finally came out and the clouds completely cleared away...it's dark now in the forest but my tent and cave dweller can finally see the lights of his home through the forest. And who's running out to meet him....his faithful canine companions.. Bonnie and Brandy...so glad that their human daddy is finally home.
Of course Troy's still really groggy, but he is responding appropriately and he finally opened his eyes and looked at me. What an awesome feeling that was and still is for me. Troy's liver enzymes are somewhat elevated though...so now, the docs are talking about a liver biopsy. We're hoping it may be some of his meds or just the trauma from the surgery yesterday. OH..the ultrasound today did show that the liver was functioning though! YEA!! Good news on that part. My prayers are for continued progression in his awareness and health, liver continues to function awesomely, and NORMAL Liver enzymes!
I have some Gumbo Ya Ya's Jambalaya waiting for you honey bunny!
Love to all...
Sonya and her Courageous Adventurer
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Tuesday, May 29, 2012 10:38 AM, EDT
Clouds and GPS
Troy has just realized that the GPS doesn't like really cloudy skies. Plus the rain isn't helping anything either. He's decided to take a break for a few hours in a cave he came across. And yes Kathy!! He did check the cave out for bears and other varmints before he went in! Fire started and just feasted on some more grub. Time for a nap.
Troy is having a hard time waking up. He is responding at times to directions but the boy needs to be a little more responsive. We're thinking he'll be somewhat more this afternoon. He is also running some fever but good thing...Troy is already being covered by some heavy duty antibiotics. His new Trach is doing great with still ventilator support. The continuous dialysis is ongoing. The wound vacuum is being applied to his surgical wound as I type. Another ultrasound of his abdomen has been ordered this morning to make sure everything is doing ok. Troy continues to be in extremely critical condition. All of your thoughts and prayers are GREATLY appreciated. My man is trying.
Love to all..
Sonya and my little honey bee...
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Monday, May 28, 2012 6:43 PM, EDT
New Necklace...
Well...can you believe while Troy was resting in his tent he decided to craft himself a new necklace. Also, the rain and wind have ceased and Troy has decided to break camp and turn on his GPS. I'm thinking he'll be home tomorrow sometime depending how dense the forest is.
Troy's trach was placed at 2:30 this afternoon. No more tubes in his mouth and he seems more comfortable already. His sedation vacation is now over with only receiving pain meds as needed. Of course, it'll take a little while to get all of the drugs out of his system but he is already shaking his head at times correctly to yes or no questions. We'll take that.
Prayers for a safe trip home and continued healing...
Love to all:
Sonya and Homeward Bound...
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Monday, May 28, 2012 11:49 AM, EDT
Out of Surgery...
Troy came out of surgery at 11:10 AM. The surgeon stated that the surgery went well with a device placed in the wound for 2 to 3 weeks to help it to heal from the inside out. Being a nurse myself, I'm aware of the wound vacuums and they are absolute miracle machines in regards to complicated wounds. Of course, Troy is knocked out cold from the one two sucker punch of the anesthesia. Next on the agenda, tracheostomy that will be placed this afternoon. The doc stated that they will probably wait another day or so to start bringing Troy out of the sedation vacation.
As far as the story of Troy in his tent.... it's too wet now to travel..but the sun is peaking out hither and thither. Maybe another night in the tent won't hurt anything..he has all of the basics for survival for the time being and as the old saying goes..."better safe than sorry!" So...after just eating some grub and cookies....it's time for another snooze.
An update will be later on today...
Love to all,
Sonya and Cookie Bear....
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Monday, May 28, 2012 7:42 AM, EDT
Storm is settling down...
Troy's decided to sleep in a little longer this morning because the wind and rain are still whipping around like crazy. He's dry, warm, and cozy so why rush. The skies are starting to brighten up some though...he'll get up around 11 and check out the weather again to see if he needs to stay in the tent another day or go on home.
Troy's wound closure has been scheduled for 9 this morning..the surgery itself should last around 3 hours max. The surgeon stated that even if he isn't able to close him this morning, he still needs to check everything out to make sure everything looks good. The tracheostomy is still scheduled for this afternoon. I'm very satisfied that the docs are taking their time with Troy...he's been through so much We'll pray for a healing graces, steady skillful surgeon's hands, and Troy's continued (fight, fight, fight) endurance.
I'll update after his surgery.
Everyone have a great and safe Memorial Day and remember to pray for our everyday freedom fighters (past and present).
Love to all,
Sonya and her magnificent prize fighter (You go Troy!!) DING DING!!
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Sunday, May 27, 2012 8:28 PM, EDT
Tent Anchored...
Thank goodness Troy remembered to anchor his tent down really good because the wind is just a howling and the rain is coming down like nobody's business. The rain hitting the tent has made him so relaxed that he's sleeping like a baby.
Troy did have an issue this morning where the top part of his right lung collapsed but they were able to get in with a scope to get the airways opened back up with good improvement to that area afterwards. His ventilator settings did have to be increased due to all of this but he is being weaned back down very slowly. His sedation vacation continues with the wound closure scheduled for tomorrow morning and the temporary tracheostomy to be placed tomorrow afternoon. The physical therapist came in yesterday and taught me some really cruel ..I mean cool...exercises that I can help troy with in keeping his joints loose...lol! Nah...they're not bad and he doesn't seem to mind them too much ---in fact, the exercises are performed 3x a day and we're about to do our last Jane Fonda workout for the day! Up and down...up and down...
Good night everyone...be safe out there... Tropical Storm Beryl is really showing out outside! Rain is greatly needed though...
Love to all....
Sonya and the Sleeping Tent Dweller
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Sunday, May 27, 2012 11:20 AM, EDT
Still hunkered down...
Well, Troy must have known that Tropical Storm Beryl was on his way because he has decided to stay put in his tent until tomorrow. He ain't going nowhere! There are already rain and wind bands coming through this morning with most of the weather to be continuing throughout the night and into the morning.
With that in mind, Troy's wound closure will not take place until 7AM on Memorial Day (Monday). Troy is still having some swelling in his abdominal area so the docs stated to be better safe than sorry, closure is tomorrow. The trach will be placed tomorrow afternoon. Then all of the tubes will be coming out of his mouth and guess what... tomorrow afternoon he's going to have to pack that tent up and get his self back home! The GPS is still charged up and the storm should have passed over by then. I'll make sure to keep the light on so he can see where he is going.
Love to all,
Sonya and the Happy Camper
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Sunday, May 27, 2012 11:03 AM, EDT
Note of Gratitude...
Of note: I just want to thank everybody for all of the prayers, thoughts,texts, messages, emails, facebook post, caringbridge post, & helphopelive.org post. Troy and I are so blessed to have the best family, friends, acquaintances, and folks we have never ever met that care so much for us. The generosity of all of you....well...just put it like this...I know a sleeping Honey Bunny that will be weeping with tears of joy and gratitude when he finally comes back home. My heart is so lifted.... to my work family at the Orange County Medical Clinic---#1...it was so good to see Miriam and George....my little chica... and then the generosity that she gave me from you folks there. I am speechless and so touched. So totally unexpected and so totally appreciated. I will definitely be fixin' some Jambalaya and Gumbo for all of y'all when I get back to work! Thank you is all that I can say and I know Troy feels the same way.
Our friends, Kathy and Charlie...awesome friends...thank you.
And Help/Hope/Live gifts..OH MY GOODNESS....again..thank you..everybody's generosity esp in these tough times ...thank you.
Troy's and my families....we both love you all so much. You all are our strength. Our extended families....awesome...what would we do without all of you.
Quinn and Ava.....Pa and Maw Maw miss you very much...we'll see you soon! Take care of Mommy, Daddy, Uncle Jeremiah, and Aunt Maria for Pa and me.
Again...Thank you all. May the good Lord bless and keep you safe.
Troy and Sonya
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Saturday, May 26, 2012 5:50 PM, EDT
In his tent...
Troy pitched his tent in the forest....and is resting comfortably in his warm sleeping bag. Listening to the storm raging outside but he is safe.
All of the physician's made their rounds throughout the day. The plan as of now is as previously noted. Hopefully surgical site closure tomorrow sometime.
Thank you all for the comments, encouragement, prayers, and thoughts. Scott...please tell Uncle Cal that we love him! I'll most certainly let Troy know of all the love that he is receiving.
Love to all,
Troy and Sonya
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Saturday, May 26, 2012 6:32 AM, CDT
Stormy night in the forest
Troy was placed back in a "sedation vacation" or drug induced coma last night. Or the way I want to think of it... A big storm was about to happen in the forest so he pitched a tent and has decided to ride the storm out for a couple of days. In which is fine by me! We'll all be right here waiting for him.
We are hoping that his surgery wound site will be closed tomorrow and possibly on Monday, a temporary tracheostomy will be placed due to his current breathing problems. Troy is also still on continuous dialysis in regards to helping his kidneys from working too hard during all of this. Troy is still very critical. We are praying for a quiet next couple of days so that Troy can continue is journey safely.
Love to all....
Troy and Sonya
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Friday, May 25, 2012 11:10 PM, EDT
Good night ...
Laying here on my fold out bed watching the nurse take care of my slumbering bear. Spoiled mister got a new bed today! It's a really fancy air mattress that just gently turns him from side to side. No wonder he's not waking up...he thinks he's in a hammock somewheres! :)
Ok doggone his hide... I'm thinking it's time for Troy to remember that he has a fully charged GPS in his pocket! The sky is clear with no obstacles in the way. Turn that thing on Troy and come on home!
Goodnight all and don't forget to say your prayers....
Sonya and Troy
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Friday, May 25, 2012 8:42 PM, CDT
Troy.... Can you hear me?
Troy continues to be in critical condition. His new liver seems to be working ok. Doc states that he'll probably be closing the wound on Sunday. Troy is still unresponsive to commands, but we're still trying to help him find his way out of the forest. Your continued prayers would be greatly appreciated. Love to all, Troy and Sonya
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Friday, May 25, 2012 5:41 AM, CDT
Shhhh
Troy is being very quiet... The room is being kept cold to keep infection down. Troy has a warm flow cover on him ... So he's as snug as a bug in a rug. His nurse is awesome... In fact,They've all been awesome. The doc recently said..."At this point, Troy is CNN 'critically stable'. There's really no such thing as 'critically stable " so....to be politically correct...Troy continues in critical condition ...
As i watch him sleep..I'm reminded of my previous post concerning being lost in the forest and searching for the bread crumbs to show him how to get home... Troy is continuing to search for that path out of the woods...although I think he has finally figured out by now that the darn squirrels have eaten the bread crumbs.... And he is not a happy camper about that! Wait... What do you have in your pocket Troy?? And the story continues...
More later...
Love to all,
Troy and Sonya
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Thursday, May 24, 2012 6:58 PM, CDT
We have flow!
Troy came out of surgery at 6:30pm. Doc said that after some super gluing , duct taping, and tying off with rope, good flow has been established with his 2nd new liver... they did have to leave the site open again for 2 or 3 days. To keep Troy as comfortable as possible, he will be kept in a drug induced coma until the site is closed. Troy is still extremely critical but we'll take that. I'll update as things PROGRESS!!!!
Sonya and my Sleeping honey bunny
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Thursday, May 24, 2012 4:53 PM, CDT
Still in
Troy continues in surgery.
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Thursday, May 24, 2012 1:05 PM, CDT
Going back to surgery...
Troy is going back for emergent surgery.
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Thursday, May 24, 2012 12:45 PM, CDT
Out of surgery
The doc stated that Troy was very good in surgery. They did have to leave the surgical site open due to swelling. Troy will remain in a drug induced coma until the surgical site is closed... Hopefully in 2 days. They will be performing another ultrasound in about 4 hours to make sure the liver is working correctly. He's not out of the woods yet... But we're praying he'll follow those little pieces of bread that leads to home. We're here waiting for u Troy.. With a whole lot of love!
Sonya
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Thursday, May 24, 2012 8:58 AM, CDT
Surgery status
Nurse just called ... He's tolerating the surgery well.. A few more hours to go. You can do it Troy!!!
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Thursday, May 24, 2012 7:16 AM, CDT
Surgery start time
I just received a call from the surgery nurse stating that the surgery started at 8am. I'll update as soon as possible!
Sonya
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Thursday, May 24, 2012 5:25 AM, CDT
Transplant #2
Troy was just transported back to have his 2nd liver transplant within 5 days. Prayers!!!!
Love y'all!!
Sonya and Troy
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Thursday, May 24, 2012 3:27 AM, CDT
Hard Time!
Hard time... For sure time for Troy's new transplant is at 5:30 am this morning! I'll update as soon as I'm updated.
Sonya
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Wednesday, May 23, 2012 9:44 PM, CDT
New soft time
Soft time for surgery is now at 5:30 in the morning...
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Wednesday, May 23, 2012 9:13 PM, EDT
We may have a Liver Fairy Sighting!
I received a call today from the Liver Transplant doc stating that we may have another liver for Troy! Soft-time (potential time) is midnight tonight for the transplant. Remember, this is just a potential with not being a sure thing until a Hard-time is set. I will update again when we have more news and hopefully it will be good news. Troy was allowed to come off of the sedative/pain meds for a long time today due to the doctor being concerned of possible damage to Troy's brain from the complications of what he has been experiencing. It took a long while, but Troy did respond some and the doc was very happy with that. We'll take whatever Troy can give us at this time. He's fighting as hard as he can. He's my Honey Bunny.... He also knew that I would kick ...LOL...let's just stop there. :)
Troy continues very critical and dialysis is ongoing. I appreciate all the PRAYERS/thoughts/encouragement/shoulders. My children....you all know who I'm talking about....I love you all. Thank you for holding your momma when she needs it.
Ok...let's go from here....
May the good Lord's arms be wrapped around us all and His angels be standing guard. Please remember the donor's family once again. They really need all of our prayers for sure...
Love to all,
Troy and Sonya
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Wednesday, May 23, 2012 5:59 AM, CDT
Same
Troy remains in critical condition. We're hoping that the liver fairy will make another delivery soon. I'll update as I hear from the docs this morning. Meanwhile ... Just know that I do read all of your comments and I sure do appreciate them all. Kathy, tell Chuck that Troy will have to take a rain check on Hamburger Wednesday today ... But he'll make it up very soon I'm sure so that he can discuss our current political situations! Lol!!! Lisa... Give Noah a great big ole hug from uncle Troy this morning.
Love to all!
Sonya and "while u were sleeping"
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Tuesday, May 22, 2012 3:13 PM, CDT
48hours
The doc just told me that we are probably looking at a new liver within 48 hours due to Troy's current condition. We're a praying! Troy is holding his own... Still in a drug induced coma and still on the ventilator. His condition remains extremely critical. I'll update as things happen.
Sonya
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Tuesday, May 22, 2012 9:04 AM, EDT
Back on the transplant list
Just received news that Troy was placed back on the transplant list last night. His current liver just can't get jumpstarted for some reason. We don't know if it's because of the blood clot from yesterday or what. At this time, Troy continues to be very critical and he is on the ventilator, in a drug induced coma until the new transplant takes place. He was put at the top of the Tranplant List for the entire Southeast Region of the US in which includes, AR, LA, MS, AL, GA, FL and Puerto Rico. With this in mind, we're praying that the perfect liver will be available for Troy very soon. I'll keep updating as the wild ride continues.
Love to all...
Troy and Sonya
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May 23, 2012
Catching up again...
Troy is still in critical condition. Awaiting news of the next transplant. Troy is still comatose and on the ventilator but hopefully that will turn around with the next transplant. Troy is still #1 on the transplant list with praying that the next transplant will be within 48 hrs.
I will keep updating www.caringbridge.org/troyfrymyer as often as I get updating and I will be updating helphopelive.org as ofen as possible.
Thank you all for your support/thoughts/and prayers.
Sonya
Same
Written 6 hours ago
Troy remains in critical condition. We're hoping that the liver fairy will make another delivery soon. I'll update as I hear from the docs this morning. Meanwhile ... Just know that I do read all of your comments and I sure do appreciate them all. Kathy, tell Chuck that Troy will have to take a rain check on Hamburger Wednesday today ... But he'll make it up very soon I'm sure so that he can discuss our current political situations! Lol!!! Lisa... Give Noah a great big ole hug from uncle Troy this morning.
Love to all!
Sonya and "while u were sleeping"
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48hours
Written 21 hours ago
The doc just told me that we are probably looking at a new liver within 48 hours due to Troy's current condition. We're a praying! Troy is holding his own... Still in a drug induced coma and still on the ventilator. His condition remains extremely critical. I'll update as things happen.
Sonya
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Back on the transplant list
Written May 22, 2012 9:04am
Just received news that Troy was placed back on the transplant list last night. His current liver just can't get jumpstarted for some reason. We don't know if it's because of the blood clot from yesterday or what. At this time, Troy continues to be very critical and he is on the ventilator, in a drug induced coma until the new transplant takes place. He was put at the top of the Tranplant List for the entire Southeast Region of the US in which includes, AR, LA, MS, AL, GA, FL and Puerto Rico. With this in mind, we're praying that the perfect liver will be available for Troy very soon. I'll keep updating as the wild ride continues.
Love to all...
Troy and Sonya
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Same
Written May 21, 2012 9:56pm
Troy's blood levels are still critical. An ultrasound was just performed and I'm waiting to hear the results from the doc... Praying for good flows. Troy is also on continuous dialysis due to the kidneys being jealous of all of the attention that the new liver guy is getting. I'll probably update in the morning.
Love to all
Troy and Sonya
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Redo is over
Written May 21, 2012 2:51pm
Doctor just came in and said they were able to get blood flowing to the liver, but it will take 6-8 hours to see if the liver is working correctly. If not, Troy will need another transplant, but will be put at the top of the list. I'll update again after the waiting period or if Troy decides to go on Mr. Toad's Wild Ride again.
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Going back to surgery
Written May 21, 2012 12:24pm
He's going back to surgery for a "redo". This time with the same liver. In fact, he's in there now. Surgery should take about as long as yesterday's. He's still extremely critical. We're taking one step at a time. Continued prayers are appreciated. I'll update as I'm updated.
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Troy
Written May 21, 2012 9:01am
Troy has taken a turn to the worst. Prayers are requested.
May 16, 2012
25!!!
Troy's MELD score is now 25 effective Saturday. Troy called Mayo yesterday and spoke with our RN Case Manager who informed Troy that he is now VERY VERY VERY VERY VERY close to getting his transplant now! WOOOHOOOO!!!!!!!!!!!! Everytime that darn phone rings, I almost jump out of my skin! :) Geez....I tell ya, I mentioned this before...this is worse than being pregnant and waiting for the delivery time!!! Sitting on pins and needles here.
I know that some of you folks are still checking out CaringBridge and I really care for this site also.... so... I'm going to still update as much as possible plus going to put this site on HelpHopeLive.org .
Troy and I are so thankful for everyone of you folks. His fundraising campaign is being sent to all parts of the country and maybe even international! Continue to share the site would be GREATLY appreciated... To Troy's sister, Lisa, she is really working her bohunkas (booty...or whatever else..lol) off by getting the letters out to any and everyone she can.. Thank you Lisa... you are awesome. Mom and Dad too....I tell ya... Troy and I are so thankful for our support system...be at family or friends. And Pop... thank you! We love ya! Andon...I thank God everyday for you keeping Troy occupied by just driving him around or whatever... Our kids and grandkids...y'all are the rays of sunshine to us.
Ok... Troy's MELD score is now 25 effective Saturday. Troy called Mayo yesterday and spoke with our RN Case Manager who informed Troy that he is now VERY VERY VERY VERY VERY close to getting his transplant now! WOOOHOOOO!!!!!!!!!!!! Everytime that darn phone rings, I almost jump out of my skin! :) Geez....I tell ya, I mentioned this before...this is worse than being pregnant and waiting for the delivery time!!! Sitting on pins and needles here.
I'm hoping with the next update we may be on our way to Jacksonville! Troy does have a followup appt at Mayo on May 31st. I'll be updating again prior to this though.
Again...thank you all for your prayers, support, thoughts...
Love to all!
Troy and Sonya
May 16, 2012
Caring Bridge
I know that some of you folks are still checking out CaringBridge and I really care for this site also.... so... I'm going to still update as much as possible plus going to put this site on HelpHopeLive.org .
Troy and I are so thankful for everyone of you folks. His fundraising campaign is being sent to all parts of the country and maybe even international! Continue to share the site would be GREATLY appreciated... To Troy's sister, Lisa, she is really working her bohunkas (booty...or whatever else..lol) off by getting the letters out to any and everyone she can.. Thank you Lisa... you are awesome. Mom and Dad too....I tell ya... Troy and I are so thankful for our support system...be at family or friends. And Pop... thank you! We love ya! Andon...I thank God everyday for you keeping Troy occupied by just driving him around or whatever... Our kids and grandkids...y'all are the rays of sunshine to us.
Ok... Troy's MELD score is now 25 effective Saturday. Troy called Mayo yesterday and spoke with our RN Case Manager who informed Troy that he is now VERY VERY VERY VERY VERY close to getting his transplant now! WOOOHOOOO!!!!!!!!!!!! Everytime that darn phone rings, I almost jump out of my skin! :) Geez....I tell ya, I mentioned this before...this is worse than being pregnant and waiting for the delivery time!!! Sitting on pins and needles here.
I'm hoping with the next update we may be on our way to Jacksonville! Troy does have a followup appt at Mayo on May 31st. I'll be updating again prior to this though.
Again...thank you all for your prayers, support, thoughts...
Love to all!
Troy and Sonya
http://caringbridge.org/visit/troyfrymyer/
May 21, 2012
CaringBridge.org
Hi everyone...I was having problems posting to this site over the weekend. I was able to update www.caringbridge.org/troyfrymyer though so at least you can catch up what has transpired since 5:55 PM Saturday (5/19/12)up to now. I'll start updating this site again beginning this morning along with Caringbridge.
May 11, 2012
Our new journal
Hello again everyone....
I will certainly be updating as often as possible. We're hoping that the transplant will happen soon.
Thank you all for thoughts and prayers.
Troy and Sonya
May 21, 2012
To get everyone caught up...
This is what has transpired beginning 5/19/12 5:55 pm to this morning... the more present is first so for once...start reading at the end of the story to the beginning.. :)
Mr. Toad's Wild Ride!
Written 31 minutes ago
Whew we....can we all say together... "MR. TOAD'S WILD RIDE"! Wow... Troy was certainly on that Disney ride for sure last night...lol. He didn't have to go back to surgery and he is off the vent..that's a good thing, but of course, he's in a LOT of pain in which is pretty much being controlled with meds but they are having to be careful with his blood pressure going too low also. They had to push a couple of units of blood in him around 2 this morning because his blood was low. He is also not waking up like he should be either....but we're thinking that's the result of the LONG time under anesthesia. He is also having quite a bit of drainage from his surgery site with bruising...they are monitoring this very closely for sure. The surgeons and rest of the docs should be coming through soon.
Funny part though...reminded me of our 2 year old grandson Quinn. The nurse told Troy "Don't move Mr. Troy, their trying to get your x-ray" Troy said.."OK!!!"...lol.... When Quinn gets fed up with something...he just says..."OK, OK, OOOOOK!!!" Now I know where he gets that from!! LOL! Don't tell Troy that I said that though! :)
So, the 1st 24 hours are very crucial with Troy still remaining very critical...we're praying for a gradual improvement as the minutes tic by.
Again...Th ank you for all of the comments, instant messages, phone calls, prayers, thoughts, and continued encouragement. You all are so special to Troy and me.
I'll keep updating as things happen....
As of now... Troy's night nurse is telling folks that come in..."don't touch the sleeping baby!"....LOL!!!!!!!!!!!!!!!!! FUNNY!
Love to all
Sonya and the sleeping baby
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Icu
Written 11 hours ago
Hello all
Troys surgery ended at 7pm and he is extremely critical with a possibility that he may have to be taken back to surgery depending on ultrasound findings. I'll update as I can. He's still on the vent and I'm not allowed to see him yet ...
Prayers are still appreciated
Sonya
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Now in surgery
Written 19 hours ago
Troy was taken back to surgery at 11:00 AM. Prayers are definitely requested.... I will update as I am updated.
Love to all..
Sonya
#
Wooohooooo!!!!
Written 23 hours ago
11:00am is HARD time!! Troy will be getting his new liver at 11 this morning.! He's just taking it easy until its time. I'll update again when he goes in surgery. Prayers prayers prayers
Love to all
Troy and Sonya
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Soft time... Hard time
Written May 20, 2012 4:58am
Soft time... Hard time.
Sometimes there are dryruns in transplants. Something like false labor in pregnancy. We are praying that this is the real thing. His tentative surgery time is at 9:30am "soft time" . For sure surgery time is the "hard time". Right now, 4:45 am, Troy is getting scrubbed down for surgery... Basically getting him squeaky clean with sterile cleansers. I hear him asking all kinds of questions of why this and why that... Troy is so comfortable with the Mayo folks. They are awesome! We will know around 7 or 8 this morning if the liver is a go. Reason being that it might not be, not a good liver from the donor... Or some other abnormality that they may find when they harvest the organs. We'll pray that everything will be just fine and dandy. I will be updating when we find out the status.
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Waiting
Written May 19, 2012 11:38pm
We just heard that they will be going after the liver at 5am with Troy being "soft time" for surgery at 9:30 in the morning. That means that there's a good potential for surgery but "hard time" is the sure thing. Troy has had all of the pre transplant testing performed tonight so now it's a waiting game. I'll update again of any new news! Again, thank u all for the kind thoughts and prayers!
Love to all!
Troy and Sonya
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Got the call
Written May 19, 2012 6:05pm
We just got the call!!!! Prayers prayers
Guestbook
July 5, 2012
Our Prayers or always with You!! Get Well Soon!!
Clif Moore and Family Robert,Louisiana
June 26, 2012
Our Love and prayers are always with you.
The Alfonso & Salley Family Orlando, Fl
June 20, 2012
Get well Troy
Darlene Mcclellan Newport Michigan
June 4, 2012
Prayers are with you and your family...found your story through At the Picket Fence Blog. Happy to contribute!
Julie Fiato Lake Orion, Michigan
May 23, 2012
My prayers are with you my friend
Daniel Suggs/ Florala Alabama
May 20, 2012
we are thinking about you and will be praying for you today and in the future. Hang in there !
Jay Frymyer
May 20, 2012
My prayers are with on the good news!!!!!!!!
Tess (Frymyer)Frankford
May 17, 2012
Hi Troy, had no idea that you were going through this. I send my prayers to you and your family and a donation that I hope will help? God bless you and the family and keep up the postive thoughts!
Vonda palm beach fl
May 16, 2012
God Bless <3
Montverde, FL
May 14, 2012
sending my prayer to you, god bless you and your family. im a freind of lisas, she talks to me about her brother with such love in her voice. troy she loves you so much and were are praying for you.
sharon barker sanford fla..
May 13, 2012
OMG, Troy your in our prayers..
Sara
May 13, 2012
Troy and Sonya, you are in our thoughts and prayers. We think of you daily. We Love You both very much!!
Lisa Frymyer, Pennsylvania
Mail a Check
Make checks payable to:
Help Hope Live
Note in memo:
In honor of Troy Frymyer
Mail to:
Help Hope Live
2 Radnor Corporate Center
Suite 100
100 Matsonford Road
Radnor, PA 19087
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