MobilityWorks
Accessibility for all: Helping people connect with who and what matters most
Searching...
No results found. Please try modifying your search.
Philip McDevitt, the one-and-a-half-year-old son of James and Katya McDevitt, is currently waiting for a life-saving heart transplant.
In utero, Philip was diagnosed with hypoplastic left heart syndrome (HLHS), functionally negating the use of his left heart ventricle. Within hours of Philip’s birth, he underwent two open heart surgeries, and although initially planned, Philip’s heart was unfortunately not strong enough for what would have been the third and final surgery. After spending his first four months of life in the hospital, Philip was released to a wonderful year of growing and learning at home with his parents and two older sisters – Sasha and Mila.
Philip is a happy and smiley child with brilliantly rosy cheeks, crawling and playing, starting to talk and walk, and bringing joy to everyone around him. However, while family was gathered to celebrate Memorial Day, an ear infection took hold and taxed his infant immune system to the point of heart failure. He has lived at the hospital ever since that late Sunday holiday evening on the 1A (highest priority) list for a heart transplant. Even connected to five monitors, oxygen, and IV, he is a fun and playful child, reminding us all to appreciate every minute of this miraculous life.
With this life-saving heart transplant, Philip will be able to continue to grow and develop as other children; however, this next chapter will be extremely challenging financially for his family. Medical bills have already begun to mount yet James’ and Katya’s concern stretches well beyond the present to a time when Philip is older and no longer on his Dad’s insurance. Immediate family have vowed to help with as much as possible of the non-medical expenses such as child care costs incurred by the long-term hospital stay, but in the hope of a young life and a future saved, we reach out to the gracious hearts of the local and national communities. A net cast widely can hopefully fish enough burden-free gifts to save Philip’s and his family’s futures from financial ruin.
To help with the financial burden of uninsured expenses, a fundraising campaign has been established in honor of Philip McDevitt with Help Hope Live, a trusted nonprofit organization that has been providing community-based fundraising guidance to help patients and families in need for more than 30 years. All donations are tax deductible to the full extent allowed by law and are held by Help Hope Live in the
Southwest Heart Transplant Fund in honor of Philip McDevitt. Donations are allocated by Help Hope
Live based on financial need for medical expenses. Please consider making a contribution today.
For credit card donations, please click the yellow GIVE button.
On behalf of Philip and his family, we thank you in advance for your kind consideration.
Gratefully,
Shana L. McDevitt (James’ sister)
WE'VE GOT WONDERFUL NEWS TO SHARE: Philip received his heart transplant on Monday, July 31. He is recovering well and we are immensely grateful for your support. We will keep you informed with updates right here and new photos like this: helphopelive.org
Loading Images
Sending love and prayers to Philip and family! We are so happy to see his surgery went well and he is smiling! Sending our love and all the best.
Margarita and Eli.
Margarita Katz
I'm very glad to hear that your son is doing well.
Austin Mount
Sending you all love and strength and baby Philip lots of hugs and kisses.
V&E
Sending love and light to you!
Love The Camacho Family
Lots of love and prayers for your entire family.
Andrea A
Hope all goes well!
Larisa and Misha
Many Blessing and prayers your way. May God brings Phillip the gift of life soon... love you and miss you all!
Jessica S
Positive thoughts and love to you guys!!
Janetta Lee
prayers and love
Irina N
prayers from the Cassidy's. Donation on the way.
Debbie & Pat
Prayers sent!
Kitty Halton Berns
Make checks payable to:
Help Hope Live
Note in memo:
In honor of Philip Y McDevitt
Mail to:
Help Hope Live
2 Radnor Corporate Center
Suite 100
100 Matsonford Road
Radnor, PA 19087
Donor preference is important to us. Please specify in writing if you wish for your name or donation amount to be kept private.
Subscribe to this campaign to receive updates.
Accessibility for all: Helping people connect with who and what matters most
Building leading-edge mobility products
One of the largest mobility dealers in the U.S.
Consult with specially-trained pharmacists, get your medications for pickup or delivery and more
All news, and all that matters to you
Your first step to optimized communications
The event for the disability community
Born to connect, empower and inspire the rare disease community.
A mobility dealer for wheelchair accessible vehicles and adaptive equipment