Diane Ellis is a 66-year-old award-winning music teacher, jazz educator, saxophonist and internationally known performer who suffered a hemorrhagic stroke on Friday, April 15, 2016 during a live performance for the Jazz Institute of Chicago. She is bedridden and paralyzed on her left side.
Diane taught music to all grade levels at Dixon Elementary School in Chatham (where she also lives) for 23 years. She mentored many young people who have gone on to professional careers in many areas including music production, music performance and teaching. She comes from a musical family dynasty; her uncles Jimmy and Morris Ellis represent an important branch of Chicago jazz history. But Diane’s own contribution to Chicago Jazz history is singularly important, because there is no one else who has devoted a career to building a school-wide program that introduces and trains very young children in the joy of jazz. Diane is also known for her career as Lil Sax, the indomitable alto saxophone player whose bright tone livened up any band she performed in.
Five years ago, Diane was leading a tribute to one of her musical heroes, Jimmy McGriff when she collapsed onstage having suffered a hemorrhagic stroke that affected the left side of her body. She was rushed to the hospital and treated for several weeks, after which she was sent to a rehab facility. Diane was making progress through therapy that was helping her relearn how to walk and slowly regain some limited use of her left arm and leg. There was great hope that she would continue to improve with regular therapy sessions when her insurance coverage ended and she was sent home. She has been at home since, with no therapy for nearly 2 years.
Anyone who knows Diane knows she is eternally optimistic, hopeful and cheerful. But nobody is ever prepared to lose the ability to do the very thing that keeps their fire lit; her music and her teaching. Diane is paying out-of-pocket for such items as her insurance, full-time nursing and home health caregivers 7 days a week to do everything from meal preparation and cleaning the house to providing emotional support and bathing and turning Diane. Combine this expense with the cost of physical and occupational therapy and Diane is looking at roughly $75,000 per year. Her home requires extensive modifications for her to continue to live there. Without her teaching income, her financial hardships will continue to increase. Diane needs our help!
To help with the financial burden of the uninsured expenses, a fundraising campaign has been established in honor of Diane Ellis with Help Hope Live, a trusted nonprofit organization that has been providing community-based fundraising guidance to help patients and families in need for more than 30 years. All donations are tax-deductible to the full extent allowed by law and are held by Help Hope Live in the North-Central Catastrophic Illness Fund in honor of Diane Ellis. Donations are allocated by Help Hope Live based on financial need for medical expenses. Please consider making a donation today.
For credit card contributions, please click the Give button.
Our community is so grateful for the profound impact Diane has had on so many lives. We have faith that all those who hear Diane’s story and appreciate what she has done for multitudes of children and their families will come to her aid in her time of need. Your financial donation here, big or small, will be incredibly appreciated and go a long, long way to helping Diane on the road to recovery. Thank you!
Al and Charlene Swanson
Updates (24)
April 5, 2021
Diane celebrates a milestone, what would have been Tax Day, becoming a 5-year survivor of a catastrophic stroke. She still needs your help. Visit Diane's TeamDiane page at:
https://www.facebook.com/LilSaxEllis/?ref=page_internal
September 21, 2018
Diane Breaks Bubbles for Help Hope Live.org's 35th Birthday Celebration. (Please see the 1st photo in the photo gallery below.)
May 19, 2018
Look at Diane GO! Diane has continued to thrive at the Shirley Ryan AbilityLab. Thank you to the staff at the Ability Lab and all of TeamDiane for your continued support! Please, don't forget to donate to Diane's HelpHopeLive page. Donations help offset the cost of Diane's medical expenses. Donate: https://helphopelive.org/campaign/13083/. Please watch the above video of Diane to SEE HOW YOUR CONTRIBUTION IS HELPING DIANE WALK ON HER ROAD TO RECOVERY!
April 20, 2018
Two great new videos posted on this page!
Thanks to the hard work and dedication of Diane and her Physical Therapist, Laura, Diane was able to stand this week between the parallel bars at the Shirley Ryan AbilityLab! She was also able to start swaying (while seated without back support or assistance as shown in the video) something she loves to do while listening and playing music. This is wonderful news for Diane as she continues her journey to recovery.
Thank you to all of the doctors, nurses, therapists, and supports of Diane Ellis for your continued support. Without you, none of this would have been possible. One step forward, and a million more to go! Let's keep moving forward!
April 18, 2018
A LIFE LONG FRIENDSHIP: Diane surprised her best buddy, Chris Foreman, at Room 43 this past Sunday evening on April 15. 2018. Chris, who plays the mighty Hammond B3 organ, was there to perform on stage with the band, Soul Message, featuring Greg Rockingham (drums), Chris Madsen (sax) and Hinda Hoffman (vocals). In addition to attending South Shore High School ( Chicago Public Schools) with Diane, Chris performed on stage with Diane 2 years ago on April 15, 2016 at La Follette Park when she had the stroke. Everyone was thrilled to see Diane on Sunday, especially Chris. Thank you for your life long friendship Chris!
To see the photo of Diane and Chris, please see her shared Photo Albums below. Thank you for your continued support!
April 14, 2018
5. Finally, Diane really likes the smooth style of Frank Sinatra singing, "Younger Than Springtime"
April 14, 2018
4. Diane said you can't forget the incomparable Sarah Vaughan singing "Spring Can Really Hang You Up the Most"
April 14, 2018
3. Another spring jazz waltz favorite: "Up Jumped Spring", by Freddie Hubbard
April 14, 2018
2. Here's Diane's favorite classic rendition of: "April in Paris" by Charlie "Bird" Parker
April 14, 2018
For all of you ardent jazz fans, Diane wants to share with you her following favorite Classic "Spring" Jazz songs":
"It Might As Well Be Spring", Ella Fitzgerald
March 27, 2018
Happy Almost Spring TeamDiane! We have some very exciting news to share with you.
As some of you may know via our Social Media, Diane has been evaluated by the Shirley Ryan Ability Lab and was measured for a new wheelchair.
At this point, her out of pocket expenses for her therapy include $600 for her fitted wheelchair and transport service fees for an aide and pace bus. Donations can be made here.
Once the insurance approves Diane's treatment, she will begin speech therapy, physical therapy and occupational therapy. We are hopeful that starting a regular routine will put Diane in the right direction in terms of recovery.
Diane is working towards her goals, including holding her saxophone and being able to care for her cats, but it is a long and painful process. She is focusing on making "little by little" improvements with her slogan "less pain, more gain".
We’ve come so far TeamDiane but we still have a long way to go, see our checklist down below. Here are some ways you can help Diane during this time:
1) Donate
Our main goal is to collect enough money to help offset Diane’s ongoing medical expenses. A donation, no matter how small or how big it is, helps Diane in the long run. HelpHopeLive
https://helphopelive.org/campaign/13083/
2) Volunteer
Money isn’t the only way you can help support Diane. Here are some ideas for helping Diane beyond just donating to her HelpHopeLive page:
- Spend some quality time with Diane. She would love to have some company and catch up with you! It will be a great way for her to spend her and interact with those she loves and cares about.
- Bring over a meal. Diane is on a healthy food diet now and needs all the nutrients she can get to continue her recovery. Cook her a home cooked meal or surprise her with a healthy dish from one of your favorite restaurants! Please note that Diane can not have any fried or spicy foods.
https://takethemameal.com/meals.php?t=ESMU0231&welcome=1
- Lend a hand at home. Diane is unable to do some of the everyday chores we tend to do during our free time. Stop by one day, roll up your sleeves, and help make Diane’s living environment more comfortable for her.
If you are interested in volunteering, please reach out to TeamDiane at [email protected] or by phone at (312) 266-1701.
3) Spread the Word
As the saying goes: It takes a village. And Diane has been a part of many “villages” over her lifetime. Take the time to share Diane’s story with your network. Did you go to school with her? Teach with her? Play at a wonderful venue with her? The more people know about what is going on, the better our chances are to continue to provide the resources needed to continue Diane’s recovery.
As Diane keeps moving forward, TeamDiane is here to support her in any way that we can. As her “village”, coming together to provide the love and support she needs will help make this transition and recovery a better journey for her. To all those who have been a part of TeamDiane, thank you for your continued support.
Continue to follow us on our Facebook, Twitter, and Instagram accounts as well as looking out for more future emails for updates on Diane’s recovery. Happy Spring!
March 23, 2018
HAPPY EASTER! TeamDiane is happy to announce that Diane starts her therapy sessions at the Shirley Ryan AbilityLab on Monday, March 26. (See Diane's Therapy Photo Album of her first therapy session.) She is also being fitted for a new customized wheelchair which will help correct her posture and aid in her ability to stand and ultimately walk. This is a HUGE step in Diane's recovery, and she is in high spirits and is excited to update us on her sessions. Though we have made this big step, we still have a long way to go. Please continue to spread the word about Diane's recovery and send a special Easter Treat to her! Your support and donation today on our HelpHopeLive page: https://helphopelive.org/campaign/13083 will make a huge difference!
February 26, 2018
Are you a Cat Lover? Diane has five, 14-year old cats. They are Snow (female with white & tan, long hair), Rockit (female, black & tan with bushy tail), Skittles (female, orange tabby), Simba (male, orange tabby) and Twix (male, black & tan). The cats have recently moved to a no-kill shelter (Touched By An Animal) while Diane can concentrate on her upcoming therapy.
You can see Diane with two of her cats in 2 recent photos in her Albums. Your continued support for Diane is so appreciated! Thank you so much!!! TeamDiane!
January 8, 2018
Diane "L'il Sax" wishes everyone a HAPPY NEW YEAR! Please make it your New Year Resolution to help Diane this year! We are still raising money to offset Diane's medical costs as she continues to work on her health in 2018. Share her story and help out today!
There are many different ways to help Diane this new year. Have you considered making or sending her a meal? You can now sign up to make and/or send a meal to Diane throughout the week! Spread the word today!
https://takethemameal.com/meals.php?t=ESMU0231&welcome=1
Many Thanks From TeamDiane for a wonderful and blessed 2018!
December 19, 2017
Help Diane Ellis and the Jazz Cats!
Diane “L’il Sax” Ellis is passing her second Christmas since her severe stroke in April, 2016, leaving her paralyzed on her left side. To help her therapy progress, she needs your help. Do you know someone who may help? Please spread the word.
TeamDiane is now searching for foster or adoption homes for Diane's cats, Simba, Rockit, Snow, Twix and Skittles. Unfortunately, Diane is unable to take care of her five 14 year old "jazz" cats and would love for someone to take in a cat or two. Due to her current health condition, the cats have been closed up in one part of the house unable to watch over their dear mom the way they want to. It's hard to let go of your furry friends but Diane understands that it's best they part ways. With the help of the Anti-Cruelty Society, TeamDiane is looking to bypass an animal shelter in favor of home-to-home adoption.
If you are able to adopt a cat or two, please contact Charlene Swanson ([email protected]), Diane's cousin. Diane would like for the people who take in her jazz cats to keep her up to date on how they are doing. Please spread the word!
Diane taught at Dixon Elementary for 20 years and has been leader and mentor in the jazz
and south side communities. If you are able, please help us give back to Diane this holiday season.
For more information about home-to-home adoption visit:
http://anticruelty.org/adop...
Can't adopt a cat but looking for another way to help? Consider making a tax-deductible donation to Diane's Help Hope Live fundraiser.
December 15, 2017
December 15, 2017
DIANE'S CHRISTMAS PLAYLIST: Want to know what Diane is listening to this holiday season? We will be posting her favorite songs for the next few days. The first song on her list is "Songbird" by Kenny G. She explains that she loves the smooth playing of the song.
December 15, 2017
December 15, 2017
DIANE'S CHRISTMAS PLAYLIST: This next one is a classic Christmas tune with an all so famous group. Diane says that the Jackson 5's version of this classic song is a favorite because she's always been a fan of Motown group. Who isn't after listening to this catchy version of this song?
December 15, 2017
December 15, 2017
Help Diane Ellis and the Jazz Cats
Diane “L’il Sax” Ellis is passing her second Christmas since her severe stroke in April, 2016, leaving her paralyzed on her left side. To help her therapy progress, she needs your help. Do you know someone who may help? Please spread the word.
TeamDiane is now searching for foster or adoption homes for Diane's cats, Simba, Rockit, Snow, Twix and Skittles. Unfortunately, Diane is unable to take care of her five 14 year old "jazz" cats and would love for someone to take in a cat or two. Due to her current health condition, the cats have been closed up in one part of the house unable to watch over their dear mom the way they want to. It's hard to let go of your furry friends but Diane understands that it's best they part ways. With the help of the Anti-Cruelty Society, TeamDiane is looking to bypass an animal shelter in favor of home-to-home adoption.
If you are able to adopt a cat or two, please contact Charlene Swanson ([email protected]), Diane's cousin. Diane would like for the people who take in her jazz cats to keep her up to date on how they are doing. Please spread the word!
Diane taught at Dixon Elementary for 20 years and has been leader and mentor in the jazz
and south side communities. If you are able, please help us give back to Diane this holiday season.
For more information about home-to-home adoption visit:
http://anticruelty.org/adopt-a-new-companion/pet-re-homing/
Can't adopt a cat but looking for another way to help? Consider making a tax-deductible donation to Diane's Help Hope Live fundraiser.
October 30, 2017
DIANE'S SONG PICK OF THE DAY: To get into the Halloween spirit, we asked Diane what was one of her favorite Halloween themed songs. One of her choices? Witchcraft! Linked below is the Ella Fitzgerald version of the classic song.
https://www.youtube.com/watch?v=ulr_tf7xyHI
October 30, 2017
Let's give Diane a special early Halloween treat this weekend!
October 30, 2017
While the Ghouls and Ghost are busy bumping in the night with all their tricks, TeamDiane is inviting you to give something sweet this Halloween season to Diane Ellis. Diane suffered a major stroke last year which has left her paralyzed on her left side and still needs nursing and physical theapy care. Put something "sweet" in Diane's Trick or Treat bag this season. Donations given will go towards helping Diane receive the treatment she deserves!
October 3, 2017
For more information, please visit www.TeamDianeEllis.com
September 29, 2017
Summer Camp 2009- Chicago Jazz Philharmonic Summer Camp 2009: Experience the exuberance of Diane Ellis’ inspirational teaching.
September 29, 2017
A young Diane Ellis, at 21, playing saxophone with her mentor and Uncle Jimmy Ellis at Jazz in the Alley, a south side Chicago Jazz tradition.
Photo Galleries (5)
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Guestbook
July 24, 2024
Hi Diane. Thinking of you today. Hops things are getting better. You are so talented. We were in the South Shore High School band and All City High School Band together. Praying for you
Darlene Cooley
May 31, 2022
My Maternal Grandmother always said:
"If you have, you have enough to share."
When we network we create an unbreakable support system and circle.
Diane Ellis gave so much to the many communities and so did many members of her Family.
Reciprocity is a key to human relations, community building and stability.
Peace and Respect.
Douglas
Douglas R Ewart
December 14, 2021
Dear Diane:
I\'m checking you out at Help Hope Live. Nice memories hearing Charlene and seeing the photos.
We hope that you are doing well.
With love
Susan & Ted
Susan Oppenheimer
June 1, 2021
You are one of Chicago\'s treasures and I have thought of you often. Wishing you small steps in your journey to continued wellness.
Rosemarie Rogers
May 31, 2021
Diane's legacy lives on in the talented students she mentored and in all of the many many lives she has touched.
Lauren Deutsch
September 4, 2020
Hi Diane. Thinking of you today. We were in the South Shore High School band together and All City High School band. I played Oboe and Clarinet. You were such an inspiration to me. I\'m praying for you.
Darlene Cooley
May 24, 2019
I don't know Diane personally but, as a native of Chicago, I owe my career to the city's incredible music history. Diane is an integral part of that history, and I hope my small donation can help in some way.
Jon Irabagon
July 10, 2018
She was my misic teacher at Dixon and I am oraying for her! She is such a beautiful person.
Dayday Dukes
March 26, 2018
Diane, best wishes for success with all your therapy. You are in my thoughts and prayers. Mary Jo Harper
Mary Jo Harper
March 22, 2018
Dear Diane:
It was a treat to be with you during your evaluation at the Ability Lab last Monday. I look forward to you sitting in your new proper wheelchair, wearing your new fitting brace and beginning to integrate the lessons from the Ability Lab.
With love, Susan Opp
January 12, 2018
Ms. Ellis!
Hope all is well. Praying for continued strength and jazzy vibes! Appreciate everything you did for me, to help me become a great musician and a great person!
Love always!
Anthony D. Greer - Dixon - '10
December 27, 2017
Hey Lil Sax! Sending much love to you from your westside piano playing songwriting friend. Wishing you continued strength, peace and love in 2018!
Howard SAndifer
December 26, 2017
Diane:
I love you dearly; you are a real model and inspiration for women and children in a great profession. Your performances will never be forgotten at my wedding held at the Smart Art Museum, University of Chicago; and the retirement celebration at the Drake Hotel for Dr. JoAnn Roberts.
I am just learning of your illness that occurred in 2016. I have been assisting with an older family member since February, 2016; who also had a stroke, but on the right side. So, I understand what you are going through. My family member has had an exceptional rehabilitation experience at Shirley Ryan Ability Lab (formerly the Rehabilitation Institute of Chicago). Your phone number and information was lost in my mobile phone contacts. Please let me know if I can be of assistance in any way.
Teresa Massie-Peterson
December 4, 2017
Ms.Ellis,
Alexandria and I wish you peace as you recover. You are always in our prayers.
Joy Parham
November 3, 2017
Diane, I pray for Godspeed in your full recovery. You have been on my mind for some time.
Woody Witt
October 26, 2017
Diane, we continue to think of you and wish you well and send LOVE your way. After all you have done for others, freely giving of your expertise and enthusiasm for decades, it must be a challenge to seek and receive help from others. Please know you deserve it! Your quest for good health, continued musicianship, and restoration of quality of life is worthwhile! We'll always think of you, surrounded by students, and also by your colleagues, laughing and playing and listening and sharing! You are a force of nature and strong inside -- we are hoping that, in the not too distant future, the rest of your body will catch up in stamina and fortitude to that extraordinary heart and soul of yours!
With love, Laurelyn, Jon, TJ & Satchmo the Cat
October 9, 2017
Hi, Diane! Keith and I are pulling for you!! We both know how strong you are!! You don’t become an Alpha Angel without strength
Barbara & Keith Chapman
October 6, 2017
Diane and I met our freshmen year at Bradley University and have been friends ever since. I love Diane like a sister and I want her to know I am here for her. Diane let's make your dream to walk, teach and play music again come true.
Judy Bell
September 30, 2017
Dear Diane,
Thanks for all that you have done for jazz in Chicago!
I am glad to be part of the team of people who are cheer leading for your recovery.
Lauren Deutsch
September 29, 2017
Diane, now many more will learn of your struggle to return to living jazz 24/7. Best wishes. We love you.
Susan & Ted Oppenheimer
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Help Hope Live
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In honor of Diane Ellis
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Help Hope Live
2 Radnor Corporate Center
Suite 100
100 Matsonford Road
Radnor, PA 19087
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