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They were healthy, active children into their early teens. Tom was 17 when he told me his chest “felt funny” after playing basketball. I took Tom to the doctor never dreaming that he would be diagnosed with cardio myopathy and Becker’s Muscular Dystrophy. Tom’s 13-year-old brother, Tyrus, was then tested. He too was diagnosed with Becker’s Muscular Dystrophy.
In 2011, Tom’s heart deteriorated to the point that he needed a heart transplant. Due to Tom’s rare blood type, he was in the hospital for 10 months waiting for a match. He and his doctors eventually decided that the best option would be open heart surgery to implant a ventricular assistance device (VAD). Being in the hospital for such an extended period, weakened Tom to the point that he frequently fell. He went into a rehabilitation hospital, but, despite his best efforts, he never regained his ability to walk and is now permanently confined to a wheelchair.
In August 2017, Tyrus had a heart test which showed his heart was working at only 15% capacity. He immediately went into the hospital. Because he has the same blood type as his brother, he too had surgery for a VAD implant. He could barely walk before the surgery. He too is now confined to a wheelchair.
I am asking everyone to please donate to help Hope Live in honor of Tom and Tyrus. It is our dream to purchase a handicap van. This essential vehicle will make such a difference in their lives. They will be able to drive themselves to physical therapy, doctor’s appointments, or just take a ride to get out of the house.
Thank you in advance for any amount you are able to donate.
Debby Mandirola, Tom’s & Ty’s Mom
[email protected]
For more information, please contact Help Hope Live at 800.642.8399.
Thank you for your support!
Hope this donation brings you a little closer to getting your wheels !!!
Cindy
Best of luck Tyrus and Tom!
Brian, Andrea, & Jase Sheldon
Dear Debbie, Tom, and Tyrus: Good luck to you all in getting the van you need, and toward the best medical outcomes possible. Best wishes, Matt
Matt McKay
Hope you are able to get the vehicle you need! Love you all!
Kristy, Robert, Benjamin, Joey Preli
I remember Tom visiting with my sons in Suffield - Mark and Bob Young. Wishing you much success on raising the funds you need for your van.
Janet Greer (Young)
Make checks payable to:
Help Hope Live
Note in memo:
In honor of Tom & Ty Mandirola
Mail to:
Help Hope Live
2 Radnor Corporate Center
Suite 100
100 Matsonford Road
Radnor, PA 19087
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