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Family and friends of Ryan Summers are raising money to pay for home and vehicle modifications to increase his independence and confidence.

Ryan suffers from a rare genetic condition called Junctional Epidermolysis Bullosa, or JEB. This condition causes blisters and painful wounds to develop with even the slightest touch, friction, and pressure. He lacks the skin protein that acts as “glue” in non-EB skin. This affects his entire system, including his airway. Because of this, he is completely dependent upon us for every detail of his care, is confined to a wheelchair, and has a tracheostomy.

Updates (1)

September 21, 2017


October 4, 2017

With lots of Love!!!

Soukhamthath Family

September 27, 2017

Mrs. Roberts is my daughter. She thinks you are great and so do I.

Nancy Paradee