Tom’s life was turned upside down when he was diagnosed with end-stage liver disease in the beginning of 2017. His condition worsened quickly to the point where he had no choice but to retire from his job in an assisted living facility. He was told that his only hope for survival was to receive a liver transplant.
However, as he began to receive treatments to sustain his liver until transplant, his kidneys also began to rapidly deteriorate to the point where he will not only in need of a new liver, but a new kidney as well.
The cost of a liver transplant alone can be staggering. A dual organ transplant is that much more overwhelming, so he truly needs the help of his community in making it happen.
March 7, 2018
Good news, friends! Tom has officially been listed for liver transplant (with kidney listing pending, depending on how it functions during the wait for his liver). Fortunately, his kidneys have improved a bit, so unless their function drops again, we are currently looking at a single-organ transplant. We are so, so excited about this step of being listed, as we have been anxiously waiting for it since his diagnosis in March 2017. We still have no idea on the timing of the transplant — it could literally happen at any time, although due to his blood type and the fairly “stable” maintenance of his liver at this point, they have told us not to be surprised if it is still a year into the future.
So what does life look like right now for Tom? A LOT of waiting, constant blood tests and lab work, routine doctors visits (hepatologist, hematologist, endocrinologist, nephrologist….you name it, he’s probably seeing them), and weekly paracentesis procedures (draining fluid from the abdomen since the liver and kidneys are not able to drain it themselves). And as you can guess, all of this pre-transplant work is incredibly expensive. These procedures will continue on a weekly basis until transplant, which means that the cost will continue to be an ongoing burden. Without the weekly paracentesis, he would be in the hospital once or twice a month because of how uncomfortable it is to carry that much fluid.
We are so grateful to those of you who have already contributed to Tom’s fund. We have been so blessed to have friends and family like you to help him through his journey. These funds have already helped to cut down on some of the overwhelming costs. Thank you for your continued generosity!