When our son Ty was 8 years old his life and our lives were changed in an instant. He suddenly became sick with what was thought to be the flu but within a few days, he was paralyzed. After spending 90 days at Children’s Hospital, enduring numerous spinal taps, MRI’s, and other tests he was diagnosed with a rare autoimmune disease called NMO (NeuroMyelitisOptica) https://rarediseases.info.nih.gov/diseases/6267/neuromyelitis-optica This is an inflammatory, demyelinating disease of the central nervous system which consists of both TM (Transverse Myelitis): https://www.ninds.nih.gov/Disorders/Patient-Caregiver-Education/Fact-Sheets/Transverse-Myelitis-Fact-Sheet
and ON (Optic Neuritis):
This illness left him paralyzed from the chest down.
Ty is now 13 and currently in 8th grade at Angevine Middle School in Lafayette, CO. He has the wonderful support of his parents, 4 siblings who all attend Centaurus High School, extended family, and the community. Since his diagnosis, Ty has done some incredible things, including becoming scuba certified at age 10, skiing, and adaptive water skiing. We have tried many kinds of therapies- PT, OT, Watsu therapy, and acupuncture. However, we realized these therapies weren’t helping him in the way we had hoped. Ty is extremely determined and believes with all his heart that with the right therapy and perseverance he will someday walk again.
Recently we heard about an activity-based program called Project Walk from Victoria Arlen, a performer on Dancing With the Stars, who has a very similar story: http://people.com/peopletv/video/bs/0000015f-7545-d1df-a15f-7d6ffb6b0000/victoria-arlen/
Project Walk- http://www.projectwalk.com/ is a paralysis recovery center that focuses on “load-bearing activities that may help increase function, bone density, muscle mass, sensation, and circulation”. Since Ty started this program it has already given him endless possibilities for his future. Our goal is for Ty to achieve increased mobility, strength, independence, and hopefully for Ty to walk again one day. As you might imagine, this therapy is expensive-$95 an hour and is not covered by Ty’s insurance, which is why we need your help
To help offset such expenses, a fundraising campaign in Ty’s honor has been established with Help Hope Live, a trusted nonprofit organization that has been providing community-based fundraising guidance to patients and their families for more than 30 years. All donations are tax-deductible to the full extent allowed by law, are held by Help Hope Live in the Midwest/West Spinal Cord Injury Fund, and are administered by Help Hope Live for transplant-related expenses only. If you would like to make a contribution, please click the DONATE NOW bar.
Photo Galleries (3)
January 16, 2018
You are so strong and driven and we have faith you will walk again. Keep on driving towards your goals. You are an inspiration to all! Love, Kayla, Rick, Bryan, and Jack
December 19, 2017
Ty You are an amazing boy! Hugs and Kisses to you and your family! Love you, Jeff, Dina, Natalie and Davis
The Long Family
December 12, 2017
We love you, Ty! Keep moving forward, no limits, Bud!!
December 5, 2017
My dear remarkable Ty - Your are an inspiration to all who know and love you I love hearing about your accomplishments I admire you so much for never giving up You and your Mom make a remarkable team love auntiese