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Your Support is Needed

In 2008, at the age of 47, I was diagnosed with a rare genetic liver and lung disease called Alpha-1 Antitrypsin Deficiency (Alpha-1 for short).

Updates (1)

June 28, 2018

We had a very successful fundraiser. I can’t thank everyone enough who attended and/or contributed. It was an amazing evening and I was able to share the need for for organ, blood, and plasma donations!! All of the donations will help with the outrageous expenses for pre-transplant testing and the medications. Now it’s about trying to stay healthy and prepare for the transplant – Ed

Photo Galleries (2)

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July 17, 2018

You got this Ed and we are all behind you!

Brenda jarmoluk

March 14, 2018

Hope your night was amazing! Such an honor to call you my brother! You are an inspiration to me and my family. Love you, your sissy.


March 14, 2018

Can wait to participate in the fundraiser at Bleachers Sports Grill 15410 S.Mountain Pkwy Phoenix, Az 85044 on March 3rd, 2018 5:00-8:00 pm


March 2, 2018

Sending WARM vibes from Minnesota. Ed, your strength is amazing and inspirational. Love, hugs, and prayers to our Comish!

Helen Kriesel