Your Support is Needed
In 2008, at the age of 47, I was diagnosed with a rare genetic liver and lung disease called Alpha-1 Antitrypsin Deficiency (Alpha-1 for short).
April 10, 2018
We had a very successful fundraiser. I can't thank everyone enough who attended and/or contributed. It was an amazing evening and I was able to share the need for for organ, blood, and plasma donations!! All of the donations will help with the outrageous expenses for pre-transplant testing and the medications. Now it's about trying to stay healthy and prepare for the transplant - Ed
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July 27, 2019
My wife, Gisa read your story in the Ahwatukee News.She had a double lung transplant at St Joe\'s two years ago. She is very knowledgeable about negotiating drug cost and has reduced our out-of-pocket expenses to a manageable level. If you think she would be of any help, please email her at [email protected] Moreover, she is goofy about helping people!
April 22, 2018
You got this Ed and we are all behind you!
March 4, 2018
Hope your night was amazing! Such an honor to call you my brother! You are an inspiration to me and my family. Love you, your sissy.