Pernell Needs Your Help
Family and friends of Pernell Rion are raising money to pay for uninsured medical expenses associated with transplantation.
July 27, 2018
Yesterday marked 14 weeks that Pernell has been on the transplant list. We have had 1 dry run in that time. His transplant team has had offers, but they have not felt that they were a good match for him. When he was originally listed the average wait time was 4 weeks, since then the allocation process has been revised (larger region). This new process will need to be in place for a year or more for them to be able to calculate what the average new list time will be.
Pernell has lost weight and now has a 30″ waist. He said that he hasn’t been that small since he was in the 4th grade. He tires easily, his appetite isn’t as large as it was, but he is continuing to remain positive.
We appreciate all of the positive messages, notes and cards, calls and donations that keep coming in. Please keep the prayers coming for him and our family. Need the prayer warriors to say extra prayers!
May 30, 2018
It has been weeks since the last update on Pernell. This past Sunday, May 27th we received a call from his Transplant Coordinator to “be ready” there are lungs for him. On Memorial Day he received a call to arrive at the hospital before noon. Those of you that know Pernell, know that we were at the hospital 2 hours before noon! He was admitted in to an ICU Room and testing began. At the same time testing was being done on his donor who was on life support at a local hospital. We were told that his surgery was scheduled for that evening at 7:15PM. Jim, Courtney, Joanne (my mom), and Kathie (my sister) were at the hospital with us. Pernell’s mom (Lolly) was trying to get to Chicago from TX and Stephanie was driving to Chicago from TN to meet us at the hospital. We were told that everything looked good and that at 5:00PM two of the surgeons would go to view/test the actual donor’s lungs. At 6:00PM we were told that the surgery had been cancelled due to antibodies found in the donor that would have a reaction to Pernell’s body from his Stem Cell Transplant years ago. It has been an emotional few days, getting the initial call, spending the day at the hospital and then being told that we were going home. We are confident that he WILL receive another call soon. Please continue to keep him in your prayers. Feel free to write him a note of support in his Guest Book.
July 27, 2018
We are fiercely praying for P.R. and your whole family, Julie! Sending positive vibes your way and hoping that there is a match very, very soon. Sending lots of love. xo
June 2, 2018
You are all in our prayer family. We pray for your unending courage and strength. We pay for healing physically and emotionally. Your strength and the support of your family is enlivening aand inspires us all. God's speed for your successful transplant.
May 31, 2018
Praying for the entire Rion family and sending positive vibes your way PR. Love you guys.
May 30, 2018
Praying for complete healing PR!! God bless. “He said to me, “Prophesy to the breath, prophesy, son of man. Say to it: This is what the Lord God says: Breath, come from the four winds and breathe into these slain so that they may live! ” So I prophesied as He commanded me; the breath entered them, and they came to life and stood on their feet, a vast army.” Ezekiel 37:9-10