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Pernell Needs Your Help

Family and friends of Pernell Rion are raising money to pay for uninsured medical expenses associated with transplantation.

Updates (7)

May 8, 2018

PR has been listed! Thank you so much for all the prayers and positive thoughts. Please continue the prayers for a perfect set of lungs. ❤

April 11, 2018

Last week on Tuesday and Wednesday Pernell had an Esophageal Manometry & 24 Hr pH monitoring test. The results for this test were not available on Monday when we met with one of the Thoracic Surgeons. We were told that results usually take a week or so. He also had blood drawn for an antibodies test.

Our meeting with one of the surgeons went well. He went over the procedure of getting listed, the process the surgeon goes through to check/secure the lungs, the lungs arriving at Northwestern and the actual surgery. He also reviewed all the risks and complications involved with this type of transplant. He also stated that 1 out of every 3 that are called to go to the hospital for transplant end up being a “dry run”. A “dry run” occurs because at the time when a patient is called to go to the hospital, the lung offer is preliminary to the Transplant Team. The team accepts the offer of the lungs with the understanding that final acceptance will depend on when the procurement surgeon arrives at the donor hospital and is able to view the lungs in person. If the lungs are turned down, we will return home. This will not impact Pernell’s place on the transplant list. There is no limit on how many dry runs a person can have.

Right now, according to his coordinator he is on hold until these last tests are reviewed, the recommendations are received from the GI specialist, and confirmation of insurance approval is received. They secure insurance approval prior to the meeting where they determine if he can be listed.

Pernell began with a cough Monday morning but is taking some medication that the transplant team recommended. Please keep the prayers coming so that the cough moves out of his body and that he can be listed soon.

Guestbook

April 12, 2018

We continue to pray for PR.

Michael & Bambi Lawson

April 12, 2018

We are praying for PR, Julia and family. Also for his surgeon and transplant team.

Pat & Ed Baehr

April 8, 2018

My prayers for a successful transplant and speedy recovery.

Janet Brandt

April 4, 2018

So many tests! You are indeed a strong person! We will continue praying for you and hope that you will get some new lungs soon.

Tim and Diane Gioe