
MobilityWorks
Accessibility for all: Helping people connect with who and what matters most
Searching...
No results found. Please try modifying your search.
Moe was diagnosed with FoxG1 almost two years ago. FoxG1 is a very rare condition that only about 350 people in the world have. It is a condition that causes impaired development. Moe can’t talk, walk, or sit up. She has some breathing issues and seizure like activity, such as abnormal or involuntary movements. Moseley also can’t eat by mouth. She has a G-Tube that puts nutrition and water straight into her body through a port in her abdomen. Moe doesn’t sleep most nights and, since she is in constant motion, she is often sore and in pain. The most frustrating thing is that she can’t tell us what is wrong and we often don’t know how to help her. Our sweet girl has all of those hardships but she is so much more than her diagnosis. She is loving and bright with a bit of an attitude. The money we raise will be used to improve her quality of life.
The most immediate things we need are our carpets replaced and a new place for Moe to sleep. You can imagine, with three kids and a cat, the carpet in our house is pretty gross. The bacteria and allergens in the carpet worsen Moe’s already weak immune system. The carpet also makes it more difficult for us to move the equipment she needs like her wheelchair. The carpets have caused Moe’s breathing issues to increase and, in some places, her mobility equipment have pulled it up. Hard floors are easier to keep clean and cut down on bacteria. She also needs a sleeping chair. She can’t sleep in a bed anymore because laying flat causes her to have a hard time breathing. We can’t use bed with lifts because she can’t hold herself up. A safe place for her to sleep would not only help her, but give her Daddy and I some peace of mind.
We not only want to raise money to benefit Moseley, but also raise awareness for FoxG1 Syndrome. It is important to us to give a voice to the people who live with FoxG1 and their families. Moseley has a long and hard road ahead of her and we want to do all we can to make it easier. Thank you so much for taking the time to read this and give to our sweet girl.
Hugs for Moseley <3
Mark Joshi
Love you guys so much.
Stephanie Martin
Moseley is a very vary special girls. She has captured my heart. Even though communication seems improbably, she has taught me to push beyond the "easy" way to love and love her the way she asks and needs. Her parents are warriors for her. Please help them care for her.
Ann Kinnebrew
Love you guys so much.
Stephanie Martin
Make checks payable to:
Help Hope Live
Note in memo:
In honor of Moseley A Collins
Mail to:
Help Hope Live
2 Radnor Corporate Center
Suite 100
100 Matsonford Road
Radnor, PA 19087
Donor preference is important to us. Please specify in writing if you wish for your name or donation amount to be kept private.
Subscribe to this campaign to receive updates.
Accessibility for all: Helping people connect with who and what matters most
Building leading-edge mobility products
One of the largest mobility dealers in the U.S.
Consult with specially-trained pharmacists, get your medications for pickup or delivery and more
All news, and all that matters to you
Your first step to optimized communications
The event for the disability community
Born to connect, empower and inspire the rare disease community.
A mobility dealer for wheelchair accessible vehicles and adaptive equipment