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Debra Needs Our Help!

In 2010, our mom, Debbie Miles, was diagnosed with sarcoidosis at age 53. Sarcoidosis is a destructive lung disease, which strikes healthy people for unknown reasons. It results in scarring of the lung tissue and eventually loss of lung function.

Updates (2)

July 10, 2018

Debbie continues to progress during her rehab period. She has now “graduated” from weekly visits to the lung transplant clinic to monthly visits. The clinic staff continue to make periodic adjustments to her medications based on her lab tests and other procedures at Mass General. She has stopped using her transport chair and is now walking with the aid of her rollator. Her breathing continues to improve dramatically. Her last Pulmonary Function Test on 7/5 showed her lung capacity has increased by 40% since her last test on 6/18!

Next visit to Mass General is 7/30-7/31.

June 13, 2018

Debbie was discharged from Mass General on May 31 to home. She had progressed well enough with her Physical Therapy in the hospital that she did not need to be transferred to Spaulding Rehab Hospital for additional therapy. She had to stay in the Boston area for a few days but eventually came home on Monday, June 4 after 72 days in Boston!! She is now receiving home health nursing and PT visits to continue her strengthening. She also has continued weekly appointments at Mass General for Transplant clinic visits and various other post-transplant testing.

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Guestbook

July 11, 2018

Our thoughts & prayers are with all of you. Stay strong Debra.

Ginni Bradbury

July 11, 2018

Keeping you and your family in my thoughts. Debbie was always kind to me growing up as was the whole Miles family. My Mom made many trips to Boston for her medical appointments as do I. It is tiring! Hope you feel better with your new lungs!

Julie Ketchen

July 11, 2018

Speedy Recovery Debbie! I want to see you back on a cruise ship! Jerry and Lisa Dittrich

Jerry Dittrich

July 11, 2018

After some of us saw you last week we are VERY encouraged that you are "turning the corner" in your very long and difficult recovery. Way to go, Deb! We continue to hold you in our thoughts and prayers. Please know how much we love you. Mom, Carol, Keith, Linda, David, Janny and Larry X0

Linda Bunn