Debra Needs Our Help!
In 2010, our mom, Debbie Miles, was diagnosed with sarcoidosis at age 53. Sarcoidosis is a destructive lung disease, which strikes healthy people for unknown reasons. It results in scarring of the lung tissue and eventually loss of lung function.
December 31, 2018
Debbie continues to improve every day as she is now past the 9 month mark! She had a setback in September when she was diagnosed with a perforated bowel (most likely caused by one or more of the anti-rejection medications) and needed emergency surgery at Maine Medical Center to have a section of her large intestine removed.
She continues with monthly appointments at Mass General with the associated travel expenses for her and Ed. She also continues with her many daily medications – 17 prescription meds and 8 supplements at last count! If all goes well the next 3 months she will shift to quarterly appointments in April!
July 8, 2018
Debbie continues to progress during her rehab period. She has now “graduated” from weekly visits to the lung transplant clinic to monthly visits. The clinic staff continue to make periodic adjustments to her medications based on her lab tests and other procedures at Mass General. She has stopped using her transport chair and is now walking with the aid of her rollator. Her breathing continues to improve dramatically. Her last Pulmonary Function Test on 7/5 showed her lung capacity has increased by 40% since her last test on 6/18!
Next visit to Mass General is 7/30-7/31.
Photo Galleries (3)
December 31, 2018
Get Well Soon! Love and Prayers The Vicenzi Family
The Vicenzi Family
June 5, 2018
Our thoughts & prayers are with all of you. Stay strong Debra.
June 1, 2018
Keeping you and your family in my thoughts. Debbie was always kind to me growing up as was the whole Miles family. My Mom made many trips to Boston for her medical appointments as do I. It is tiring! Hope you feel better with your new lungs!
May 31, 2018
Speedy Recovery Debbie! I want to see you back on a cruise ship! Jerry and Lisa Dittrich