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Baby Xander received his donor heart September 26th, 2018!
During a 34 week ultrasound, Alyssa and Ray experienced a horrible surprise as they were told baby Xander had critical aortic stenosis, a congenital heart defect that was inherited through Alyssa’s family. They were then immediately sent to Joe DiMaggio Children’s Hospital and within an hour they were seen by the top pediatric cardiologists. They were told once the baby was born, the doctors would perform a balloon valvuloplasty which is a tiny catheter inserted in Xander’s heart that helps expand his narrow aortic valve to allow more blood flow to the body. Due to the narrow aortic valve in the womb, the only set backs were that his left ventricle and mitral valve were overworked and severely damaged as well.
Alyssa spent 2 weeks on a high risk obstetric floor to monitor Xander closely. He proved to be a stubborn boy and began having decelerations, so it was decided May 3rd that Alyssa would undergo a C-section the following morning. On May 4, 2018 at 11:36AM their beautiful baby boy had finally arrived at 8 lbs and 11 ounces, 22 inches long. The couple only had merely 30 seconds to see and not even touch their bundle of joy as he was immediately rushed to NICU.
Xander underwent his procedure with much hope from the cardiologists that it would be successful. Sadly, there was no improvement with his aortic stenosis and after a few weeks Xander began to have a larger left ventricle and mitral valve regurgitation. After seven weeks, Xander was decompensating having respiratory issues and bradycardia. The poor baby had gotten so bad that they had to do compressions and intubate him in order to stay alive.
Luckily, he was placed on the transplant list on June 21, 2018 and the doctors said he is a lot more stable since being intubated.
Xander has made strides to recover from his severe heart failure with help from medications, respiratory therapists, a nasal feeding tube, the wonderful doctors and nurses, and huge prayers from all their family and friends. He will continued to stay in the Pediatric CVICU at Joe DiMaggio Children’s Hospital until he received his beautiful new heart on September 26th. The family was discharge on October 18th and have been home working on Xander’s development therapy and following up at his heart appointments.
Please help mom and dad raise money to fund Xander’s heart treatments. Even with insurance coverage and a lot of courage to ask for help from his parents, Xander’s path to recovery and care will be long and expensive which are not all covered by insurance. In additon, they will have to meet with several doctors for the rest of Xander’s life. Please help raise money for these parents to take away the financial stress and burden while dealing with this.
To make a tax-deductible donation to this fundraising campaign, click on the GIVE button.
Thank you for your support! We LOVE you all and appreciate the support and care you have provided to our family. God bless!!
Photo Galleries (9)
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Guestbook
December 24, 2019
God bless and watch over you all.
John Shanagher
November 4, 2019
Please accept this gift from Mary Kay McMillin ECC.
Megan Mansfield
October 9, 2019
Sending live and a million kisses!
Renee Bakal
September 14, 2019
With Faith, Hope, & Love - Wendy Pitstick
Wendy Pitstick
September 11, 2019
Isaiah 43:2
Evan Flores
September 9, 2019
♥️♥️
Angela Tempio
September 8, 2019
Continued prayers for Xander and his family. ❤
Jean Brady Ciullo
September 8, 2019
Chrissy Moore
September 8, 2019
All my love to sweet baby, Xander. Strongest guy I know.
Emily Shaw
September 8, 2019
Keep on fighting Xander! You are a very special, loved little boy. You will always be in my prayers <3
Nikki Moone
May 6, 2019
Thinking of Xander and the family everyday!
Jessica Barr
May 2, 2019
WE SEND THIS IN HONOR OF XANDER WHO IS WITH US BECAUSE OF THE WONDERFUL WORK OF THIS ORGANIZATION. L'CHAIM!
Arlene and Dell Larit and Shavelson
October 22, 2018
I am always praying for him ♥️ Love seeing your blog. You are a wonderful mom. And baby Xander is the best of the warriors!
Jenny Rodriguez
October 19, 2018
“This is how we have discovered love’s reality: Jesus sacrificed his life for us. Because of this great love, we should be willing to lay down our lives for one another. If anyone sees a fellow believer in need and has the means to help him, yet shows no pity and closes his heart against him, how is it even possible that God’s love lives in him?” 1 John 3:16-17 TPT
Alysia & David Rabourn
September 30, 2018
Always loving and praying for Xander!
Stacey Seymour
September 28, 2018
Sending so many prayers to this sweet baby and family
Kate Auxier
September 28, 2018
Sending so many prayers to this sweet baby and family
Katlyn Aucier
September 27, 2018
“I couldn’t begin to count the times you’ve been there for me. With the skill of a poet I’ll never run out of things to say of how you faithfully kept me from danger. I will come forth in your mighty strength, O my Lord God. I’ll tell everyone that you alone are the perfect one.” Psalms 71:15-16 TPT YOU ARE A WARRIOR X-MAN
David & Alysia Rabourn
September 27, 2018
CONGRATULATIONS ON YOU’RE NEW HEART AND NEW LIFE!!!
Alysia & David Rabourn
September 13, 2018
“because we don’t focus our attention on what is seen but on what is unseen. For what is seen is temporary, but the unseen realm is eternal.” 2 Corinthians 4:18 TPT
Alysia & David Rabourn
September 8, 2018
Praying and hoping for Xander everyday... Love the Delehanty-Sarfaty Family.
Mary Delehanty
September 6, 2018
“Now may the Lord move your hearts into a greater understanding of God’s pure love for you and into Christ’s steadfast endurance.” 2 Thessalonians 3:5 (The Passion Translation)
Alysia & David Rabourn
August 28, 2018
“To live like this is all the more urgent, for time is running out and you know it is a strategic hour in human history. It is time for us to wake up! For our full salvation is nearer now than when we first believed. Night’s darkness is dissolving away as a new day of destiny dawns. So we must once and for all strip away what is done in the shadows of darkness, removing it like filthy clothes. And once and for all we clothe ourselves with the radiance of light as our weapon. We must live honorably, surrounded by the light of this new day, not in the darkness of drunkenness and debauchery, not in promiscuity and sensuality, not being argumentative or jealous of others. Instead fully immerse yourselves into the Lord Jesus, the Anointed One, and don’t waste even a moment’s thought on your former identity to awaken its selfish desires.” ❤️ Romans 13: 11-14 (The Passion Translation)
Alysia & David Rabourn
August 16, 2018
“"Behold, God is my salvation; I will trust, and will not be afraid; for the Lord God is my strength and my song, and he has become my salvation."” Isaiah 12:2
Alysia & David Rabourn
August 9, 2018
“Be thankful in all circumstances, for this is God’s will for you who belong to Christ Jesus.” 1 Thessalonians 5:18
Alysia & David Rabourn
August 8, 2018
“We can rejoice, too, when we run into problems and trials, for we know that they help us develop endurance. And endurance develops strength of character, and character strengthens our confident hope of salvation. And this hope will not lead to disappointment. For we know how dearly God loves us, because he has given us the Holy Spirit to fill our hearts with his love.” Romans 5:3-5 We love you guys
Alysia & David Rabourn
August 6, 2018
Sending love and prayers to your little warrior♥️
Cayce Marshall
August 3, 2018
Ruthie and I will keep you and your family in our prayers.
Jack Hayback
August 3, 2018
Supermen Xander our prayers are with you and family.
Moises Bustos
July 29, 2018
Love you Xander Hopkins Nuñez
Alysia & David Rabourn
July 26, 2018
God Bless the family we are sending our prayers. Xander stay strong.
Josh & Kimberly D’Arcy
July 25, 2018
Prayers and love
Alysia & David Rabourn
July 21, 2018
God Bless little Xander Richie & Darlene LyBurtus
Richie LyBurtus
July 20, 2018
Prayers coming your way!! ❤️❤️ Love you
Alysia & David Rabourn
July 19, 2018
Nothing but love.
Evan Ernst
July 18, 2018
We're praying for you every day. May God Bless you.
Bob Noonan
July 18, 2018
God bless your family, and may He guide all of the caregivers and medical personnel caring for your precious baby.
Karen Myers
July 18, 2018
Our thought and prayers are with you and little Xander
Ken and Lynn Sorensen
July 15, 2018
My husband David and I have decided to start tithing our 10% of incomes to Xander’s heart fund! It may not be much, but we can’t sit by and watch this beautiful family hurt. Love you guys
Alysia Rabourn
July 11, 2018
Sending love and prayers every day for Xander and all of you! Xoxo
Christine Hopkins
July 2, 2018
You and your sweet baby are in our prayers. Always thinking of you ❤️ Love, Anthony and Kim
Kimberly Gillett
June 29, 2018
Prayers for Xander and for you all as well.
Emily Herbert
June 29, 2018
Such a sweet precious baby, sending love and prayers your way. ❤️
Susan Schaefer
June 29, 2018
Praying for Xander and his family ❤️
Haley Roll
June 29, 2018
God Bless Xander!!!
Linda Nilsen
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Help Hope Live
Note in memo:
In honor of Xander Nunez
Mail to:
Help Hope Live
2 Radnor Corporate Center
Suite 100
100 Matsonford Road
Radnor, PA 19087
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