Family and friends of Jayla Jefferson are raising money for the nonprofit Help Hope Live to fund uninsured medical expenses associated with Catastrophic Illness. Jayla is a 14-year-old teenager, who has Spastic Quadriplegic Cerebral Palsy, Lennox Gestaut Syndrome, Neuromuscular Scoliosis, and several other medical complications. She was born with Septo Optic Dysplasia, which is a rare brain malformation.
Due to her brain being underdeveloped, she was born blind, nonverbal, and severely profound. Although she was diagnosed with failure to thrive, she wakes up everyday and pushes through her daily adversities. Her Doctors said, that she wouldn’t live beyond two years of age; yet she exceeded that expectancy and then some. She loves to smile, spend time with her loved ones, listen to music and nature sounds. Jayla has touched so many hearts by her sweet gentle personality and, an unbelievable perseverance to keep pushing forward.
Jayla has to travel weekly for doctor visits, therapy services, and medical procedures. There are times when she has to travel through ambulatory services, which are not for non emergency purposes. She weighs over 90 lbs. and is unable to maintain body positioning in space without full support. She is completely dependent on her family and caregivers for all transfers and mobility support. She is wheelchair dependent.
With that being said, travelling with Jayla weekly without a handicap accessible vehicle can be extremely tedious and exhausting. She recently had hip surgery in February, due to her left leg being fractured due to Osteoporosis. Every transfer without a ramp, increases her chances of future injuries and chronic joint pain.
Our goal is to purchase an accessible wheelchair van that will ensure her safety and offer her a better quality of life. Which will decrease the chances of future fractures and joint pain. We greatly appreciate your support, and any monetary donation will be appreciated! If you would like to see more videos and pictures of Jayla, follow her on Instagram @jaylasjewels_
Jayla’s family has chosen to fundraise for Help Hope Live in part because Help Hope Live assures fiscal accountability of funds raised and tax deductibility for contributors. Contributors can be sure donations will be used to pay or reimburse medical and related expenses. To make a tax-deductible donation to this fundraising campaign, click on the Give button.
For more information, please contact Help Hope Live at 800.642.8399.
Thank you for your support!
