December 8, 2019
Hello everyone. I just wanted to do an update on my health. It has been some time since I have written anything. I have had 8 months of pretty good health. March 2019 I started to feel really well. With just a few mishaps along the way. November 2019, started with quite a few more health problems. I have been filling up with water again. My belly has extended quite a bit now. It has stretched to the point where it has caused my Hernias to started hurting. The fluid build-up has now entered my lung area too. I was just drained the Monday & Wednesday before Thanksgiving, and have swelled up to the point I need to be drained again from both areas. My kidneys are now starting to not function the way they are supposed to. Judy & I have seen another Doctor for a consultation for doing a TIPPS surgery. This surgery is where the Doctor will insert a tube down through my neck and into the Liver. Then he will essentially dig a trench through the Liver and come out the side. He will connect one of the input veins to the trench, then go to the outport side of the Liver and connect to veins there. This will redirect the flow of blood through the Liver to help with future water building up in my belly and lungs. This surgery has its own risk factors too. I will be at a greater risk to have more Hepatic Enclyopathy episodes, this will cause Judy to work harder to care for me. During these episodes, I will have more confusion due to increased Ammonia building up in my head, The last time I had these episodes I would loose 3-4 days not knowing what happened during this lost time. I can be at a greater risk of heart conditions. I can have a greater risk of complete Liver failure which would require an immediate transplant. I can have bleeding and infections due to surgery. The surgery may not work at all, but can be reversed or shut backdown. These are just the 5 main risks, but the Tipps surgery can and will help temporarily for my Liver and Kidney functions. I have a CT Scan scheduled with contrast next week and then an Echo of the heart the following week.
With all of these conditions going onI am really sicker than my MELD NUMBERS show. The MELD NUMBERS are the way the Doctors and hospitals score people for transplants. So i am still on the transplant list, but very low there. I need a new Liver and I will be OK. This is truly the best option for me. I just have to wait. I have had some great family members and friends who have checked into donating a part of their Liver as a LIVE Donor which would be the quickest way to get a Liver Transplant. I am also on the list to accept an HEP-C Liver too.
So I will wait to see what Happens, Hopefully soon. I have been fighting this disease since July 2015 when I was first diagnosed. I feel my body may have only a year or two left. If you think you can help in any way, you can call the Cleveland Clinic Liver Transplant team and ask any question in regards to how donating works. The team has some medical questions they will ask of you. If you are a willing Donor and a candidate. They can proceed to the next step in the evaluation process. If you wish to contact the Clinic here is the number. Or if you wish to help you may donate to my fundraising campaign through this site only. Help Hope Live Administration under my name James Scott. Please help if you can.
March 12, 2019
Latest update: 03/12/2019 -
Well, again it has been a while since the last update. Since the last one, I have gone 3 months without a Parensynthesis, to drain the water from my belly. The Doctors have checked but whatever water pockets are there are too close to other organs to safely do the procedure. I have had no falls which is good. Staying out of the hospital. Great news about that. I have my eyes checked recently no drastic changes in my vision. Sugar numbers still up & down, but my A1C is 5.0. Judy really doing a great job keeping me inline. The tremors have gotten a little worse and more often. All in all I am doing pretty well thank you all for your prayers and thoughts but most of all the donations to Help Hope Live. We are setting up a fundraiser for this April - time - date - destination will be posted as soon as the final arrangements have been nailed down. then possibly another fundraiser in June or July. Love Hugs Kisses to all.
February 8, 2019
Update : Jim / 02/08/2019
Well, again it has been a while since my last post. Hand Tremors have seemed to have worsened and are more frequent this past month. Nothing I can do about that.
2/07/2019 E.G.D done again to recheck the Veracies in my Esophagus. Last Veracies they banded 5 and removed 1 all looks good on these. 5 small Veracies were again banded this time. They were grade 3 and small. I do not have to go back for another look until for 3 months....
See More
January 14, 2019
11/02/2018 Update: 2nd update: now that dad is listed we got a very nice binder from the transplant team. ANYONE who plans to visit dad or help us care for dad the first 3-6 months after transplant are required to have the flu vaccine as well as the varicella vaccine. Dad will not be allowed vaccines after transplant and they need as much prevention as possible. So please understand if you choose not to get these we may ask you to cut your visit very short, and we will follow you around the house with Lysol unless you have a hazmat suit.
January 14, 2019
11/02/2018 Update: Few updates: dad's in hospital, needs to be drained a 2nd time this week. Should be home tomorrow or Sunday.
January 14, 2019
10/18/2018 Update: Jake was asking about the best day of my life, and when I told him one of my best days is when I married his Nanna Judy, he thought that was pretty cool. we must have talked about this for at least 1/2 hour or more.
January 14, 2019
10/23/2018 Update: Right now we are trying to get dad some new dentures. He had a partial but the transplant team wanted all his teeth pulled and the insurance will not pay for a full set of dentures. Any little bit helps.
January 14, 2019
09/22/2018 Update: Dad is home. Came home last night. Looking and feeling good. Just need to follow up with some doctors.
January 14, 2019
09/20/2018 Dad is still in the hospital. The phone can only text. If you'd like to speak with him call the hospital at 216-581-0500 and ask the operator for his room 426 bed 2. He will either be discharged tomorrow or be transferred to the main campus for further care. Foley was not kept in. They did the procedure to drain the urine and relieve the pressure.018 Update:
January 14, 2019
09/18/2018 Update: Update still not coming home today. Just got a text from dad they are planning a small procedure. Called nurses station to verify and yes the urologist has decided to do a Foley insertion.
January 14, 2019
09/16/2018 Update: Update on dad: keeping him at least 1 more night. His kidney function is still not where they want it. They test his kidney function every morning and they will not release him until they see it getting better. As of now his MELD score is now a 17.
January 14, 2019
09/15/2018 update: Hey everyone, dad's getting a little depressed as he is in the hospital and has been there for a few days. He's been trying to call people but everyone seems to be busy. If anyone is up for it I'm not asking you to go see him but give him a call, even if it's just a few minutes. He has his cell phone on him. It's fully charged. 216-269-4437
January 14, 2019
09/13/2018 Update: They're keeping dad for a few days. Marymount hospital room 426 bed 2. The room is small so if you visit just be prepared lol. He has his cell phone if anyone wants to call and speak with him.
Allison Beveridge
Allison Beveridge just monitoring sugar?
Rose Persephone Scott
Rose Persephone Scott No, they think there might be something wrong with his kidneys so they are running some kidney tests and monitoring that.
January 14, 2019
09/12/2018 So here is what we are talking about now. From Carol Zegarac as we are in the ER
Me too Judy: wow can you believe u had 7 hunky men in your bedroom today. 6 firemen and hubby Jimmy.
Judy said she didn't notice......
Jim said only 6 hunky and 1 chunky as he grabs his belly
Rose Persephone Scott
Rose Persephone Scott Jordynn Scott Dickey just hung her head in embarrassment and said I can't believe him
George Scott
George Scott, He tells the truth
January 14, 2019
09/12/2018 Ok, so the update is they are transporting him over to Marymount hospital tonight. Some of his blood work didn't look right and they want to monitor him. But the consensus is that basically, his blood sugar dropped too low too quickly.
January 14, 2019
09/12/2018 update: Dad was taken by EMS to the hospital. As of right now, it looks like it's just his sugar numbers bottomed out. EMTs had him feeling better after an IV of dextrose, but he went to the hospital as a precaution. Carol Zegarac and mom are with him, I'm home with kids. Will update more when we know more.
January 14, 2019
Rose Persephone Scott shared a link.
Admin · October 23, 2018
Right now we are trying to get dad some new dentures. He had a partial but the transplant team wanted all his teeth pulled and the insurance will not pay for a full set of dentures. Any little bit helps.
January 14, 2019
10/18/2018 Cuddled up with Jake, talking about what their favorite Happy Days are.
January 14, 2019
Few updates: 11/02/2018 dad's in hospital, needs to be drained a 2nd time this week. Should be home tomorrow or Sunday.
January 14, 2019
11/02/2018 2nd update: now that dad is listed we got a very nice binder from the transplant team. ANYONE who plans to visit dad or help us care for dad the first 3-6 months after transplant are required to have the flu vaccine as well as the varicella vaccine. Dad will not be allowed vaccines after transplant and they need as much prevention as possible. So please understand if you choose not to get these we may ask you to cut your visit very short, and we will follow you around the house with Lysol unless you have a hazmat suit.
January 14, 2019
11/02/nd update: now that dad is listed we got a very nice binder from the transplant team. ANYONE who plans to visit dad or help us care for dad the first 3-6 months after transplant are required to have the flu vaccine as well as the varicella vaccine. Dad will not be allowed vaccines after transplant and they need as much prevention as possible. So please understand if you choose not to get these we may ask you to cut your visit very short, and we will follow you around the house with Lysol, unless you have a hazmat suit.2018
January 14, 2019
11/03/2018 Today's update: meld number has jumped from 16 to 20, which means he places higher on the list. They did some testing and there is mild kidney damage. He also has an infection which means he gets a 5-night stay at "hotel" Cleveland Clinic to be hooked up to antibiotics. G100 room 20 if anyone cares to visit.
January 14, 2019
11/03/2018 Today's update: meld number has jumped from 16 to 20, which means he places higher on the list. They did some testing and there is mild kidney damage. He also has an infection which means he gets a 5-night stay at "hotel" Cleveland clinic to be hooked up to antibiotics. G100 room 20 if anyone cares to visit.
January 14, 2019
12/02/2018 I know we haven't updated in a while but that's because nothing significant has been happening. Which is awesome! Dad's just been doing his weekly paracentesis and watching as many western movies that he can. He loves visitors and had a cutie show up the other day to see him.
January 14, 2019
12/06/2018 Dad had a day full of appointments today, one of which was an endoscopy. They banded 5 varices.
January 14, 2019
12/26/2018 Dad went for his weekly paracentesis and guess what?! they couldn't drain him because THERE WASNT ENOUGH FLUID TO DRAIN!!!!!! for once he didn't fill up during the week!
January 14, 2019
01/07/2019 Well, it has been a few weeks since I posted anything, so here is what is happening. Almost 3 weeks (19 days) ago Rose posted that I did not get my Parasynthesis due to the lack of fluid, in my belly. I postponed my last Parasynthesis due to the same reason. Not having enough fluid to drain from my belly. I went again this morning 01/07/2019 (19th day) for another attempt to drain my belly. And once again there wasn't enough fluid there to safely drain my belly. so I scheduled another Para for next Monday 01/14/2019 which will be 26 days hopefully. Maybe we have the right medicines working now.
January 14, 2019
01/14/2019 Update: Now on 26 days without a Parasynthesis to drain fluid. Canceled my appointment for today, and rescheduled for Thursday. Let's see if I can go 30 days.
October 24, 2018
10/31/2018: Dad is OFFICIALLY on the Liver Transplant list!!!!! We got the call today, dad is OFFICIALLY placed on the transplant list. The doctors, the insurance and the state of Ohio have all approved him.
