Dear Friends and Family, Brothers and Sisters in Christ,
Meet Kelli Green, she is a 33-year-old RN, from Port Elizabeth, NJ ( Cumberland County). Kelli was born with a congenital heart defect, tricuspid atresia, tricuspid stenosis an ASD and VSD (a hole in her top chamber and bottom chamber). At age three she underwent her first open heart surgery and did quite well, until the age of 12. She suddenly developed life threatening atrial arrhythmia’s, due to the scar tissue of her first surgery. Kelli was then hospitalized almost monthly, from the time she was age 12 until age 21. Each hospitalization brought a new procedure or medication to keep the arrhythmias at bay.
When Kelli was 15 they decided to try a dual chamber pacemaker, which took some, but, not all of the arrhythmias away. Finally at age 21, doctors decided it was time to try a new revision surgery. Kelli went to Chicago IL, to have a fairly new life-saving operation. Unfortunately, the surgery was only able to keep Kelli healthy for a few years and her health started to deteriorate again. In 2008 Kelli had to give up her job as an RN at the Veterans Home in Vineland, NJ and go on permanent disability. Since then her cardiac output has decreased significantly. She is now in heart failure, and due to the nature of her heart disease, she has developed fibrosis of the liver. Kelli is unable to hold solid food down and is on 24 hour oxygen therapy. Her doctors have told her that her only chance at survival is to have a heart and liver transplant — she is currently under the care of the transplant team at the Hospital of University of Pennsylvania.
Although Kelli has been ill her whole life, this has not affected her strong will, or loving heart. If you have the pleasure of meeting Kelli you will meet a kind, compassionate woman, who always looks out for her friends, family and even strangers, no matter how bad she is feeling. If you need her for anything, she drops what she’s doing and is right there by your side supporting and uplifting you. Now has come the time for us to be by her side to support her and pour out our hearts and prayers upon her.
Even with insurance, Kelli will have many uninsured, transplant-related expenses such as: co-pays and deductibles, doctor visits, travel to and from the transplant center in Philadelphia and the costly immunosuppressant medications that she will need to take for the rest of her life. This presents a financial challenge that she cannot meet alone.
To help offset her uninsured costs, a fundraising campaign in Kelli’s honor has been established with HelpHOPELive (formerly NTAF), a nonprofit organization that has been assisting the transplant community for nearly 30 years. All contributions are tax-deductible, are held by HelpHOPELive in the Mid-Atlantic Heart/Lung Transplant Fund, and are administered by HelpHOPELive for transplant-related expenses only. You can help make a difference in Kelli’s life. Please consider making a contribution.Thank you.
May 2, 2013
Kelli, my name is Cathryn and I too am an adult congenital patient! I have had multiple surges throughout my life and am currently being evaluated for a heart and liver transplant. I will keep you and your family in my thoughts and prayers. I have always been in this long fight seemingly alone and recently found there are some of us "pioneers" in this unknown out there. Please feel free to contact me through the Facebook page set up for me at Facebook.com
April 5, 2013
Hi Kelli, My name is Talia Giordano and I am the social worker with Gift of Life Family House in Philadelphia. I am very sorry to hear of all the difficulties you have had to endure throughout your life. We hope that you are able to receive your life-saving transplants and you can have a second chance at life. I read about your situation in a newspaper article and wanted to make sure I reached out to you to offer support to you and your family. There are two different lodging options for you or your family in Philadelphia when you are traveling for transplant appointments or surgery; The Gift of Life Family House in which I work and Penn's Transplant House. Both of our facilities offer lodging, food, and support to transplant patient's traveling from far distance's into Philadelphia for transplant. For more information you can reach the Gift of Life Family House at 267-546-9800 and Penn's Transplant House at 215-662-4540. Additionally on our website, www.GiftofLifeFamilyHouse.org we have a webpage called Caregiver Lifeline Program that offers many different educational articles and resources for caregivers of transplant patients. If you have any questions or just need to talk please feel free to give me a call at the Family House. Take care.
Talia Giordano, MSW, Gift of Life Family House
February 25, 2013
Hello, my name is Judy Parvin...we have never met, but I feel the pain for your family & yourself. We lost my father to AML a type of leukemia and I know the devastation it can cause on a family. May god bless you!
Judy Parvin/ Millville NJ
February 10, 2013
Hope you are felling better. This is Nina Cox's son and Stef Jeffries Dad. Hope to see you March 16. Missed u christmas eve.