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Multiviasceral Transplant?? We had never heard of such a thing!

At age 21, David was diagnosed with Familial Adenomatous Polyposis (FAP) a condition where pre-cancerous polyps grow rampantly in the digestive system. His colon was removed and he lived a full life, having a career, marriage and even running marathons. Then in 2010, the polyps began to take over other parts of his digestive system, requiring many surgeries, including a Whipple procedure and complete gastrectomy, all performed in the Boston area. In 2017, his medical condition was beyond what could be handled by the Boston hospitals. He was referred to Cleveland Clinic. where doctors operated to remove desmoid tumors that were threatening to shut down his digestive system. Since that surgery, David gets all his nutrition via TPN intravenous feeding. He must be connected to an IV for twelve hours every day.

Updates (3)

September 25, 2018

Lee and I recently relocated to an apartment in Westlake which is @ 30 minutes from the Clinic. While our previous accommodations at the Transplant House in Cleveland offered support, we really appreciate more peace and quiet outside of the bustling city. Our friends Maggie and Al visited this weekend and we were able to visit the Rock and Roll Hall of Fame and see the Red Sox play (and beat) the Indians. The heat has finally broken here and we’re enjoying the fall weather and bracing ourselves for the likelihood of lake-effect snows on the horizon.
As we wait for a possible transplant, I’ll be visiting the Clinic monthly for check-ups and blood tests.
Again, thanks to all our friends and family for your support and love. We REALLY appreciate it!

September 10, 2018

Glad to report that, effective yesterday (9/7), I was approved by my medical insurance for transplantation and have been officially listed. It is great to get over this hurdle.


October 1, 2018

Its DM by a nose! My money is on the beat up horse LeakyPipesMcCullough ;) Keep fighting David. All my best to you and your family. Ed

Ed Garabedian

September 25, 2018

Dave and Lee - We and the kids are praying for an easy and short trip out to Cleveland! Best wishes for a quick and successful recovery - and we look forward to welcoming you back to New England! Jennifer & Don Voner

Jennifer and Don Voner

September 25, 2018

Hi Dave, Keep the Faith! Thinking of you and wishing you a successful procedure and quick recovery. Let's plan to go out for lunch like in good old days when you come back. Warm Regards,

Goran (Workscape)

September 18, 2018

Lee and David, That is such great news about the insurance! Thanks for the update. Hope all is well and that Cleveland is treating you right. Sending all my very best wishes and love. You guys are amazing! P.S. Lee, keep those texts coming!!!