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Multiviasceral Transplant?? We had never heard of such a thing!

At age 21, David was diagnosed with Familial Adenomatous Polyposis (FAP) a condition where pre-cancerous polyps grow rampantly in the digestive system. His colon was removed and he lived a full life, having a career, marriage and even running marathons. Then in 2010, the polyps began to take over other parts of his digestive system, requiring many surgeries, including a Whipple procedure and complete gastrectomy, all performed in the Boston area. In 2017, his medical condition was beyond what could be handled by the Boston hospitals. He was referred to Cleveland Clinic. where doctors operated to remove desmoid tumors that were threatening to shut down his digestive system. Since that surgery, David gets all his nutrition via TPN intravenous feeding. He must be connected to an IV for twelve hours every day.

Updates (4)

December 4, 2018

Thanksgiving in Cleveland. It’s actually “warmer” than back east in Massachusetts – mainly in the 30’s. Lee and I are very thankful to all of the well wishes and donations from our many friends and family! Also thankful for the care of the Transplant Team at Cleveland Clinic and my visiting nurse, Sandy. Together, they are monitoring my health with regular blood tests and consultations.

September 25, 2018

Lee and I recently relocated to an apartment in Westlake which is @ 30 minutes from the Clinic. While our previous accommodations at the Transplant House in Cleveland offered support, we really appreciate more peace and quiet outside of the bustling city. Our friends Maggie and Al visited this weekend and we were able to visit the Rock and Roll Hall of Fame and see the Red Sox play (and beat) the Indians. The heat has finally broken here and we’re enjoying the fall weather and bracing ourselves for the likelihood of lake-effect snows on the horizon.
As we wait for a possible transplant, I’ll be visiting the Clinic monthly for check-ups and blood tests.
Again, thanks to all our friends and family for your support and love. We REALLY appreciate it!

Guestbook

December 4, 2018

Hope the holidays find you both well and a transplant in future. Sending lots of positive thoughts your way. Take care and best wishes

Pam Garavano

December 5, 2018

Hang in there! Love you both.

Karen McCulloch Nunley Karen McCulloch Nunley

December 5, 2018

Thinking of you both and sending love! Lori and Andy McClure

Lori Robinson McClure

November 6, 2018

It's been along time since we've seen each other David. I'm sorry to hear about your illness, and hope you're feeling as well as possible. Mike

Mike Downey