Lori’s Story—There is hope—that hope is you
I am in a long battle with liver disease, it started as fatty liver and as the years went by I went into NASH Non-alcoholic Steatohepatits, now I have cirrhosis. During this time my liver function would decrease and then come back to normal and I would feel well again. As of late, I have been having bouts with my ammonia level and it has gone dangerously high. That causes me to lose memory, my mood changes and I would be unlike myself. I would have to be hospitalized for several days until the levels came back to normal stage.
February 2, 2019
Since last post I have had 2 hospital stays due to ammonia level. For a total of 20 days. I ha e had 4 belly taps to remove fluid from my stomach. I have had to quit my job since I have multiple appointments and doctor said no work. Fund raising has been put on hold til I feel better. But you can give direct.
December 14, 2018
On October 19 I was admitted to hospital with a very high ammonia level and extreme ascites which is fluid in my abdomin. I was in CAMC Memorial for 4 days, they relieved the fluid and started medicine to clear ammonia from my body. I was released on Thursday. On Friday, Matt went to work left me asleep he came home early to check on me and found me non responsive. I didn’t know where I was, what year it was or anything. I refused to go back to hospital, he called 911 had ambulance come for me and take me back to ER. I set in ER for 3-4 hours spaced out of my head. Matt called my transplant Coordinator in Virginia told her they were doing nothing to help me. She hung up with him called the ER they then got me a bed and admitted to hospital. UvA started making arrangements to get me to Virginia to get the help I needed. I was in the hospital there for 4 days. My team is awesome. They got my ammonia under control. Got insulin on board to get sugar under control. Oupon my release from UVA my MELD score was 20 which meant I could get an offer for a liver. My A1C was 9.2. That made me inactive due to my blood sugar being so high. On November 26 my A1C was 7.4 and MELD score 11. This is a great improvement. I am however, still on the transplant list but won’t get an offer due to my numbers being so good. I need a live donor. My plea is to go get tested. You may not be my match but you may be someone’s. Give the gift of life.