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Alison Needs Your Help

I am Alison Largent; I have Stiff Person Syndrome or SPS and chronic Lyme.

Updates (17)

May 22, 2021

Well, you know being sick is soooo frustrating! Imagine having the aches of the flu along with nausea and then muscles that like to just have a mind of their own. An arm just sticks out, my head tilts suddenly, or my feet twist inwards and legs going straight. I swear they have a mind of their own and I wish the would get in a conference room and hash it all out as to who is doing what at one time and get coordinated! I mean that is what we do in business right?

The main thing is to not give up, do not give in. Don’t give up on yourself and the kindness of others, and don’t give in to the horrible path of depression. When you have this you go through a little bit of both and it is scary as I have never been one to do either of those.

The main thing here is, things are progressing, the meds work for a short time and have given me limited use of my legs, but walking sure beats the chair 100% of the time!

Then comes the bills from treatment which uses up any returns we get pretty quickly….along with the house updates we are working on a little at a time. Till then, the holes in the walls are from my big powerchair as I was going into a seizure and couldn’t react fast enough……Yes its true the house has turned into a demolishion derby.

I am thankful for all the help I have received and for the unimaginable effort of Mckennon “Mac” Laas. However, it is that time again, as the funds have dwindled and I need help.

I am at the last vestiges of medical treatment known for these illnesses. What is left to consider is hugely expensive and/or unknown in their ability to help.

My nurse brought up needing outside assistance when I do not have a person at home, and mentioned the threat of being admitted into a home. I am too young and just cannot afford those options.

As much as I hate to ask for help – especially in these terms I must do so.

Thank you for showing your support and love, it keeps me hoping and fighting!

February 23, 2021

I AM WALKING!!!! Well lurching like Frankenstien is more like it! The treatments are helping, thank God as it is the last of my options. However it is a fine line that I am on with my lab reports and immune system as anything makes it flare and then I am back in bed for days or am frozen like a popsicle.

Lately I am getting a small window of a warning before these episodes happen, but they are so severe that my face is included along with my throat and breathing. Its pretty scary when your throat closes and you cannot get air in or out.

And that is not all; like a stroke victim I have begun a face droop on one side due to the way my muscles pull during a popsicle sesion….one side pulls up in an Elvis sneer while the other side pulls down….so as I age I have more lines one one side…Unfortunately I get A LOT of BOTOX for my other muscles and not for wrinkles so well that is they way I look and so be it….its the least of my problems.

I am attempting to try to paint while I am lucid for a bit, and live my life to the fullest and just keep going! For those like me with this dreadful disease keep up the fight!

Thank you for checking in!

Peace out!

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Guestbook

July 15, 2020

Best wishes, and thanks for setting such an inspiring example of living life to its best available during tough challenges.

Sara Laas

July 6, 2020

So awesome Mack! Keep walking buddy. God bless.

Ryan Evans

July 1, 2020

Keep up that great spirit and positive energy.

Anonymous

June 20, 2020

Very proud of Mac's efforts. Hello to Ali.

Steven Keenan