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Alison Needs Your Help

I am Alison Largent; I have Stiff Person Syndrome or SPS and chronic Lyme.

Updates (13)

June 5, 2020

Walking…..yes actually hobbling but I am on my feet for a short period of time. It takes a big toll on me, but I can move! THANK YOU Dr. Cripps and Dr. Young!!!! Without them and their combined effort, none of this would be possible.

Remember, there are choices you make in treatment as they all have unpleasant side effects: that said, without the treatment life is excruciating and frustrating.

Walking is a big pick me up mentally. I have my days when you can do more and stay lucid a little while and may be awake more of the day, resting during that time, but awake nonetheless. That is a good day, and the bad you count on your friends and family for support.

Speaking of that, McKennon “Mac” Laas, my friend, has completed walking across New Mexico in his effort to fund raise for me! HE IS IN COLORADO!!!!!! Make sure to see his videos here:

www.youtube.com

and remember there is tracking and blogs and pictures of his journey located at:

www.thecowboyphilanthropist.com

I was reminded (well, ordered lol), by him to get out of the negativity going on that is so easy to be sucked into with all the media, and that I need to focus on the positive and me and he is right!

Look at him out there busting his tushy to raise money for me! That is the story persons should get out, someone willing to make a HUGE sacrifice for another to help. That is love, friendship, and just plain selflessness it is a glimpse of what mankind should be like! I look up to this man more than anyone could ever imagine, and it inspires me to hang on and push no matter what I go through! Keep going Mac, we are all behind you!

Today I want you to know that whatever hardships you are going through you can and will get through it. I am limiting my stressors so that I may take a little time for myself to try to draw and paint. My passions I do not get to enjoy enough, (and not binge-watching Netflix)!

One day at a time! No Pain No Gain!

May 10, 2020

The song for my day: Matchbox20 – Long Day

I may not be going through a breakup but chronic illness takes its toll on a marriage. The stress for your partner to keep their jobs through this period is so hard. Then you add in caring for you and the doctor visits that must be coordinated between schedules of several persons.

You become isolated as more people view you as begging for money when that is not your intention. You get sharp in your tone and spitful to others, just as if you have dementia; you say things you wish you could take back, but its already out there. You have lost your filter.

My full intention is to educate what Lyme and Stiff Person Syndrome does to a body and how these two diseases interact with each other and one may have caused the other. However treatment for the two appear to counteract. When I am treated for SPS the SPS will flare then settle down some, while the Lyme will kick up. Then we treat the Lyme a little more vigorousely and the SPS begins to kick in a bit more.

Its a game of finding the right dosage and meds to reach a somewhat more stable and tolerable level of functioning.

It is a mental game and this morning I am losing that battle, but this is just one of many battles in the war…….

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Guestbook

July 1, 2020

Keep up that great spirit and positive energy.

Anonymous

June 20, 2020

Very proud of Mac's efforts. Hello to Ali.

Steven Keenan

May 8, 2020

You CAN do it! Love, Joe and Robin Martin

Joe and Robin Martin

May 6, 2020

Ms. Allie, we are cheering for you and Mr. Mac! Love, Dylan, Presley and Layne

Dylan Presley Layne Fernandez