Welcome to my double lung transplant fundraiser page. Please click ‘see all’ to read about my journey to transplant.
September 20, 2019
Hi friends and family,
We now begin Chapter 2 of Kay’s Double Lung Transplant Journey.
After the serious bout of bleeding when on trip to midwest end of June, my transplant team at Stanford has now decided to active list me for transplant as of today 9/19/19. There is no way to know how quickly I will get the call. My LAS score (Lung Allocation Score) is quite low thus I am not at the top of the list. Others who need lungs more urgently come first, as they should.
I ask again for your financial support. A review of budgets suggests another $30,000 is needed. I appreciate any donations you can make.
February 5, 2019
UPDATE on Transplant Listing from Kay
Hi friends and family,
Last Tuesday, January 29 2019, I underwent a fifth bronchial artery embolization, the first at Stanford. Ashley flew in to support. The Stanford transplant team had made a decision to try one more bronchial artery embolization to bring stability and cessation of the ongoing hemoptysis I have been experiencing. The Doctor performing the embolization did imaging of the arteries in my lungs and blocked off one “tortuous” artery he found. He feels the issue is now controlled and that I am safe from a catastrophic bleed. For this reason my listing has been postponed (deferred) as they consider me too healthy to need a lung transplant at this time.
The Stanford Lung Transplant Team will continue to monitor my health to assess movement into the “transplant window” (being sick enough but not too sick) and the need to more promptly move towards an active transplant listing.
As you can imagine it has been an emotional rollercoaster, first being told I would be listed for transplant and now having the listing delayed.
I appreciate all who donated to my fund w Help Hope Live. The fund will remain in my name indefinitely and I can use it for expenses incurred while continuing to be evaluated for transplant and other uncovered costs for CF Care.
Again, thank you for your love and support. It means the world to me.
Photo Galleries (3)
October 10, 2019
Hope this works out well for you, Kay. Love, Your cousin Tom
December 31, 2018
We are praying for you Kay!! We want to be part of your team!
December 13, 2018
Dear Kay Stay strong. You will be in my thoughts and prayers. Have a blessed Christmas. -Tanya
December 12, 2018
Kay - you are a strong and determined woman and I know you will beat this!