Marlowe Rose Johnson was born March 4th 2018 with a rare non-curable liver disease call Biliary Atresia. Biliary Atresia is a childhood disease of the liver in which bile ducts are abnormal or absent. In Marlowe’s case they were abscent and the gallbladder was atrophied. A few weeks after birth, Marlowe had a procedure called the Kasai procedure that has prolonged her time for needing the liver transplant.
Family and friends of Marlowe Johnson are raising money for the nonprofit Help Hope Live to fund uninsured medical expenses associated with transplantation.