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I was also referred to Spokane for heart transplant listing. After all testing and review I was denied. Due to my high antibodies and diabetes. The only option they gave me was a LVAD. I was told I basically had 2 years to live if I didn’t choose to have one placed. We went back to my cardiologist and asked for a second opinion and was referred to The University of Washington Medical Center. I did all the testing again and they accepted me an I was listed as status 2 onthe heart transplant lists with UNOS. Because of being listed we needed to be closer to the hospital if cold so we had to sell our home that we lived in for 17 years. Our family became separated because my daughter and I moved 280 miles away to be with my parents until we found a place of our own and my husband was able to sell our house. Our older son decided to stay over there and the 18 year-old wanted to finish out his senior year.
Before thanksgiving I had to stay in the hospital because I was retaining fluid and could not get rid of it with my medicine. I was beiginning to have kidney failure and also a partial collapsed lung. I could not sit and stand, get dressed or do anything without feeling like I could not get a full breath. I was told my heart functions at 1/3 of what it is supposed to. I stayed for 5 days and was put on Milrinone In an IV, it my heart pump stronger. Because of this I need to see the doctor weekly and driving up to Seattle is becoming very expensive for us. I will have to do this until transplanted and also after. I have been listed now for 2 years. The reason why it is taking so long is because of my body size and my high antibodies. We also have monthly visits for IvIg treatment to lower my antibodies. Each time we go up there for this treatment we have to get a hotel. Each treatment takes five hours so there is also travel and food expenses. It was brought up at my care conference last week that I may need to be separated from my family again post transplant and have to get an apartment in Seattle post transplant. And insurance deductibles are coming upalong with anti- rejection drugs and medicine. We just can’t do that financially as financially we are already hurting with our limited income. I also have home health coming in to do dressing changes each week and may need them more post transplant.
Family and friends of Stacey Owens are raising money for the nonprofit Help Hope Live to fund uninsured medical expenses associated with transplantation.
Stacey has chosen to fundraise for Help Hope Live in part because Help Hope Live assures fiscal accountability of funds raised and tax deductibility for contributors. Contributors can be sure donations will be used to pay or reimburse medical and related expenses. To make a tax-deductible donation to this fundraising campaign, click on the Give button.
For more information, please contact Help Hope Live at 800.642.8399.
Thank you for your support!
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I’m praying for you to receive the funds and the heart that you need
Debbie Cooney
Stacey finds the happy in the middle of it all.
Michele Flink
Hope this helps Stacey Owens
Stet palmer
We are praying for you, Stacey!!
Becky Monson
Make checks payable to:
Help Hope Live
Note in memo:
In honor of Stacey Owens
Mail to:
Help Hope Live
2 Radnor Corporate Center
Suite 100
100 Matsonford Road
Radnor, PA 19087
Donor preference is important to us. Please specify in writing if you wish for your name or donation amount to be kept private.
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