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I want to give a quick background to what I have been through in the last two years, but first I should explain that I was honorably discharged from the Army and given a medical retirement due to injuries sustained from toxic chemical exposure. These injuries have caused my body to develop an autoimmune disease called sarcoidosis. I have been in end stage heart failure for the past 2 years and I have been admitted to the hospital 20 times for emergency care or surgeries during that span of time. I have endured a 10 minute cardiac arrest and several near fatal heart failures. Thankfully I have not yet been completely overcome.
This has been an incredibly difficult time on my family. We have been very resilient considering all that we have been through as my children have been witness to these serious heart events and have seen me taken away by ambulance so many times that we are now on first name basis with the first responders. It has been difficult to see the fear In there eyes as they wonder if I will make it though each event.
Now I am preparing for a heart transplant because all previous courses of treatment have been unsuccessful and transplant is the only option left. I have put up as good a fight as I am able, but I have come to accept that transplant gives me and my family the most hope.
I have been unable to work for the past 2 years and I have watched rather helplessly as my career and financial situation have deteriorated. I know when I get the new heart I will be able to return to work and rebuild my career, but my immediate financial situation is of more concern. I must pay for the recovery housing because my insurance does not cover transportation or lodging. So I am having to pay for 2 living spaces one for me in Phoenix and my family’s home in MN. While my insurance is very good and I am so grateful to have it I am at the same time realizing how many expenditures come with as serious a surgery as a heart transplant is.
At this point I am really unsure of what else to do and so many family and friends have asked what they can do to help that I now feel I should accept the offers. Please don’t feel obligated to help, but if you can and if you want to my family and I would be so grateful, as this has been a major stress for us. If you can or can not donate please remember my family and I in your prayers, because those truly are the most valuable resources I have and they have seen me through this far. Thank you!
3/8/2019
I just got a surprise FaceTime call from Brian. They were going to keep him sedated for the night but decided to pull the intubation tube. He’s on a lot of medications and he fell asleep a few times during the short call but being able to hear him and see that he’s okay made my day. He said he can breathe and he can feel his hands and feet again. His heart had so much scar tissue that it couldn’t pump enough blood to his limbs and he lost the feeling in them. It’s such a huge change and it hasn’t even been 24 hours yet. Excitement is starting to take the place of the anxiety and I’m really looking forward to what the next weeks will bring. He was very insistent that I let everyone know how thankful he is for all the thoughts and prayers. He hasn’t seen any of the posts yet and I’m sure he’s going to be shocked when he sees just how many people have reached out. ❤️
3/7/2019
Brian got done with surgery at about 2 am and the surgeon said he did well! They’ll be bringing him to his room soon where they’ll continue to let him sleep. We’re all excited to hear how he feels when he wakes up and can breathe again, but right now we’re just incredibly grateful that he was gifted this new lease on life.
He has a lot of healing in front of him but it’s an amazing feeling to know that finally, he will be healing. Thank you all for all the posts and messages filled with so much love and support. They made me tear up and I know Brian will feel the same when he’s able to see them. Now I get the privilege of waking the kids to give them the news they’ve been waiting to hear for so long. I’m sure they’ll be walking on air today.
A little over two and a half years ago, Brian went into heart failure. He was alone with the kids and they had to call 911, the doctor called me and told me I should to the hospital quickly, they didn’t think he would make it much longer and I was three hours away. They called his parents and had them fly in from Georgia to say their goodbyes. When I left they told me to go home and tell the kids that their dad was going to die. I didn’t, I couldn’t, I told them to pray and pray hard. Little did the doctors know the fight he had in him and the next day all tubes were removed and he was out of the hospital in a week.
Since then he has had a defibrillator put in and taken out, he was shocked over 15 times, some of them at random, the defibrillator was replaced with a pacemaker which cut down on the shocks and kept him alive. He had two heart ablations and many, many hospital stays. He was diagnosed with cardiac sarcoidosis and none of the drugs or infusions or surgeries helped. I can’t count how many times we’ve had to call 911, but after a while, I felt like we should’ve started inviting everyone who has shown up over for the holidays.
He was finally put on the heart transplant list at Mayo Clinic in Rochester than dual listed at Mayo in Phoenix because the wait is much shorter there. He has been living in the transplant house in Arizona for the past two months.
Yesterday he got the call that they had a suitable heart for him. He is prepped for surgery as I’m writing and they’ll be bringing him back any time now. They won’t be done with the surgery until 11 or 12 and they won’t wake him up until tomorrow so I won’t have many updates until then.
I’ve had a really tough time thinking of the donor and his family and what they’re going through, but I’m so thankful for the gift they’ve given Brian. The kids have been through so much and there was nothing I could do to protect them from it. I’m so grateful that someone made such a selfless decision and gave my kids more time with their dad. All the messages, calls, and prayers are very much appreciated. Keep the prayers coming, the next few days are going to be long ones.
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Be well.
John Bitters
I'm thinking of you and sending love.
Sadie Watts
You are one of the strongest people I have had the pleasure of knowing. I have watched as you have fought this battle with poise and a calm confidence. It is truly admirable and I can't wait to see you when you get back home. I'll see ya soon bud. Love you!
Christopher Sandberg
Just heard about this journey you have all been and it makes me tear up to hear how difficult and scary it’s been. Brian, Krista, the kids and whole family—you are all in my prayers as your body heals from surgery and may this be a new lease on life for you all! While we haven’t stayed in touch much since high school, Brian you’re such a strong person you’ll pull through. You deserve it! Prayers also go out to the donor’s family for the priceless gift and grief they aware going thru.
God Bless.
Carrie Latzke (Koshiol)
❤️
Emily Holth
God speed to a full Recovery!!
Daniel McCrillis
Looking forward to all the tomorrow’s that await you Brian! Many blessings to you and your family!
Tori Clunis
Brian, I’m praying for you.. keep strong.. Deb Malm (Carpenter)
Deb Carpenter
Keep dighting the good fight. We havent had a close personal relationship but I'm gald we can still have that chance. Best wishes brother.
Jason Phillips
Prayer for healing and comfort!
April Jasinski
Make checks payable to:
Help Hope Live
Note in memo:
In honor of Brian Hoyland
Mail to:
Help Hope Live
2 Radnor Corporate Center
Suite 100
100 Matsonford Road
Radnor, PA 19087
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