My sister’s name is Samantha DeLano, formerly Samantha Penuelas.
In 1991 she was born with a disease called Cystic Fibrosis. Of no fault of her own, her life would never be like mine, or most Americans. This disease has no cure and will eventually take the life of everyone who has it – way before their life would naturally come to close. In ages past, and as recently as the 1980’s people afflicted with Cystic Fibrosis (CF henceforth) would lose their battle with the disease usually before they became an adult. With the advent of recent treatments and developments, CF patients have begun to live longer lives, but are still haunted with the specter that CF casts over them.
August 12, 2021
Hello everyone! It’s me, Sam. This has been a hard journey and I often forget just how complicated things are until I see it from someone else’s eyes. My brother, Carlos, updated my bio and honestly, it brought me to tears. I’m always so hard on myself and force myself to push through no matter what. It’s just who I am. I was raised to never accept any excuses and to keep looking ahead. It is that mindset that has given me a blind strength I often forget I possess. I find it so hard to trust anyone and I despise the thought that I need help and can’t do it on my own. It’s such a humiliation and failure – I know I shouldn’t be hard on myself, but I can’t escape it. It’s like the movie about Cystic Fibrosis, Five Feet Apart. One of the main character’s name is Will. He is rebellious and often morbid about this disease, but he speaks what we all feel at times, but as the movie progresses, we see that Will is just scared and sorry that his body betrayed him. At one point, after receiving a new therapy drug meant to help save him, he and the medical staff discover it is not working for him and he is going to die since they have exhausted all other options. All he can muster up is, “I’m sorry.” – as if somehow this disease is our fault. It truly broke my heart to the core because that is how I feel all the time – I’m sorry. I’m sorry my body continues to fight me and try and take me. By the grace of God, I haven’t given up or lost hope. Often times, I pray for myself to let go and just trust His process, and then I bury it again. Because the reality is, if I let if come to the surface everyday, it would swallow me whole. I don’t mean to worry anyone or try and gain “sympathy” and make you feel sorry for me. That isn’t and never will be what I want. I just want people to understand that I really do try and make the most of my life and be independent and productive, but sometimes, life has other plans and I hit setbacks. I’m putting it all out there to truly show people what it’s like for me. All I can hope is that you can understand and get a glimpse into my life. If you want to share my story, I am all right with that. And if you find it in your heart to donate, no amount of appreciation or thanks can ever be enough, but I will cherish it all for as long as I am here. Thank you.
March 18, 2019
We just had our second fundraiser this weekend and it was a great turn out!! I am completely blown away by everyone’s love and generosity! Thank you all so much!!
And for all those who have donated and continue to donate please know that I see you and I am beyond thankful for your support!! Thank you for all your prayers and well wishes too! I am truly touched ❤️
Photo Galleries (3)
September 15, 2021
We love you Sam Sam ❤️❤️
August 31, 2021
May God Bless and heal you in Jesus name. Amen
Debra A. Rodelo
August 31, 2021
Love you SaaaaamSam <3 to the moon and back.
August 26, 2021
Sending all my love