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It all started about 13 yrs ago. I would have trouble breathing with everything I did. I just chalked it up to my job or jobs. I would get sick and go to the dr and be diagnosed with bronchitis and was put on inhalers and a nebulizer. About 3 yrs ago I had been hospitalized for my breathing and had finally been referred to a pulmonary Dr. He did some testing and told me I only had 26% lung function. He put me on 2 liters of Oxygen. I then told him I wanted to see about a lung transplant as I had to much left to live for.
I have 14 grandkids, 3 beautiful daughters and an amazing boyfriend. He then referred me to University of Minnesota. I made my first trip to meet the Dr. with one of my daughters. We went over the paperwork my pulmonary Dr. sent them. They scheduled me to go back for a week of intense testing. After that they called my and told me I was a good candidate for a double Lung Transplant. They listed me in July of 2017.
I’m still waiting. I then asked them to refer me to University of Nebraska. I met with them in Sept. and had a few things to do to get listed. In Oct. they declined to list me as they needed a few more things done. I have now completed them so next meeting to see if they list me is the 21st of Feb. I’m praying all is good so I can be listed there as well. I have done a few fundraisers with the help of some amazing friends and family.
Karen has chosen to fundraise for Help Hope Live in part because Help Hope Live assures fiscal accountability of funds raised and tax deductibility to the full extent allowed by law for contributors. Contributors can be sure donations will be used to pay or reimburse medical and related expenses. To make a tax-deductible donation to this fundraising campaign, click on the Give button.
For more information, please contact Help Hope Live at 800.642.8399.
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rry it's been so long since I've posted. On Aug. 5th I was called to Omaha, Ne for a Lung Transplant. I got there @ 10a.m. They did testing here and there throughout the day. I was scheduled for surgery 1st at 11:40 p.m. then they changed it to 1 a.m. I was 20 mins from going into surgery and they called it off as lungs were bad. I went home the next day. Then my next call came on Nov. 3rd at 8:35 p.m. and got the at 10:45 p.m. Went through testing again and didn't really have a set surgery time till they took my fluids at 10:30 a.m. which was 2 hours before I would go for surgery. Well about 10:45 a.m. the surgeon came in and told me there was a tumor in donors body and they found out it was cancerous so all the hospitals that were going to get organs turned them all down due to this. So I've had 2 dry runs that God saved me from getting bad lungs. As they say the 3rd times the charm. So I've got over my disappointment and on Tuesday I said a big prayer to God and told him how fortunate I am for him. I've not done any more fund raising but I need to do this. My time is getting so close to surgery I'm asking for some donations as I'll have to be gone for 4 months and will have to pay for housing and such while were gone. Any amount helps and will be greatly appreciated. Thank you in advance.
Well I went to Minneapolis for my 6 mo check up. All my bloodwork and breathing tests are holding in the same ranges as last time. They said to keep doing my pulmonary rehab and exercises. I was suppose to get on the research study but they never showed up to talk to me. I finally got to go to the support group meeting and it was good seeing everyone again. I was the only one in the room that hasn't been transplanted yet. That was a heartbreaker but I was happy for everyone and how good the ire all doing. I will be there one day. God has my plan. I go to Omaha on the 29th of May for updated testing.. I'll keep saying my prayers.
Hello everyone, sorry it took me so long to post this update. I've been in the process since Oct, 2018 to get listed in Omaha. Done my tests they needed and was denied the first time. Did some more tests and still denied. I got some upset I almost gave up on them. Then I had one final appointment last Monday and after all that I was put on their list as of Friday 3/8/2019. The best news is they don't have anybody on their lung transplant list right now. God has been amazing to me and I know he'll let me know when it's my turn. I've been so blessed with so many prayers from everyone I can never thank them all enough. I'm ready for the next step and I'm not afraid cause I've done my research and have talked to the Drs. extensively and met with a lot of people that have been through it all.
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God Bless you in your journey. You got this!
Susan Brand (Mortweet)
Praying that soon you will get that call from Omaha on your lung transplant. You are in our prayers. God bless!
karen k smith
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Help Hope Live
Note in memo:
In honor of Karen Ann Rydstrom
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Help Hope Live
2 Radnor Corporate Center
Suite 100
100 Matsonford Road
Radnor, PA 19087
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