Ryan really needs your help.
About 8 years ago, at age 25, Ryan was diagnosed with an autoimmune disease called Scleroderma. This is a terrible condition where his own body attacks itself and has caused scarring in both of his lungs and in his esophagus. His lung function had deteriorated dramatically over the last couple years — both requiring him to be on 24-7 oxygen and preventing him from taking more than a couple steps without major physical repercussions. But now, he has finally received the gift of new lungs which will both prolong his life and dramatically improve his quality of life!
October 4, 2019
So, just a quick update…
Ryan was taken to the Emergency Room this morning with super high blood pressure and extreme nausea. Not all tests have come back yet, but the x-rays do show pneumonia in his right lung. He has been admitted and is being treated with several kinds of antibiotics. We will try and post again as we know more…thanks for your continued prayers.
August 21, 2019
It’s been a little while, so we thought it was about time for an update! Ryan has progressed in SO many different ways. One of his therapy “assignments” daily is to take at least a mile-long walk. Instead, he has often been taking 2 and 3-mile walks! Ryan has mentioned that he has started to feel “more normal” these days – which can lead to some frustration – when he feels like he should be able to do something, but his body is not quite there! But, we think this is a good problem to have!
More good news – just last week, Ryan’s feeding tube was completely removed! So now he doesn’t have anything attached anymore, except the PIC line where they draw blood weekly. He is eating soft solids like soups, fish, mashed potatoes, mac & cheese…so much better than being tube fed!
What’s next? So, although Ryan has made a TON of progress, the Verdels still have not gotten the green light to leave Pittsburgh. In fact, they are meeting with a GI surgeon next week to discuss next steps. We don’t exactly know all of the details yet, but more than likely, he will need to have esophageal surgery before they head back to Atlanta. This surgery will help reduce the upward flow of stomach acid that might invade the new lungs. We need to do what we can to keep those lungs safe!! We will keep you posted as we know more…
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August 26, 2019
Ryan, we are continually lifting you and your family up in prayers!
May 8, 2019
Praying for your recovery!
May 7, 2019
Your Acworth neighbor is praying for you and your family.
May 6, 2019
Ryan, Your story is incredible - I am so sorry for the terrible suffering you have endured, but so very thankful for the lungs you have received. What a blessing! I pray for God's healing touch on your body, and for God to show His mighty power in working out every detail for you and your parents. May God bless you, your mom and your dad!