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Two years ago Aurora was diagnosed with Severe Pulmonary Hypertension. Since then her life has significantly changed and so has that of our family. Living with this illness has not been easy but Aurora has managed it with her sarcastic sense of humor, a positive outlook on life and above all strength and resilience.

Two short months ago Aurora was back in the hospital due to sever dehydration and declining health. Then we heard the news we never thought we would. Aurora was going to be listed as high priority for a bilateral lung transplant. Let the mixed emotions begin….

Updates (4)

March 25, 2021

“You have been assigned this Mountain to show others it can be moved.”

Rory has been in Boston Children’s Hospital since February 10th and is finally almost ready to come home. Rory made the very mature and brave decision to have a G-tube placed prior to leaving the hospital since it would be inevitable before her transplant and as she said, “Let’s just do it then.” Rory can see a difficult, sometimes painful and often scary situation and push through it because it is what must be done. Her strength continues to amaze me every day.

Never have I seen anyone work harder both physically and mentally to achieve a goal. And right now, her goal is to get stronger, get home and wait for her next lung transplant. She is excited to spend time with her family, friends and most of all her dog. She still has a long road ahead and a lot of hard work to be as strong as possible and have a successful second transplant.

The generosity and support we have received from family, friends, community members, people from around the country and local businesses has been overwhelming. There is no amount of gratitude to express how much Rory and I appreciate all the donations and continued words of support. So please continue to pray and send Rory your love, it helps more than you can ever know. We truly would not be able to fight this battle without you.

February 19, 2021

Thank you to everyone who has donated, created fundraisers, and participated in the several fundraisers over the last month. We are almost half way to our goal of $25k in just one month!
Rory celebrated her 18th birthday this weekend at Children’s Hospital, as she was admitted early last week. However, the last few weeks did bring some positive news! After two weeks of testing, Rory has qualified to be added to the transplant list for her second double lung transplant. Rory will most likely be staying at Children’s Hospital until it is time to receive the transplant.
As Rory continues to fight, we will continue fundraising to cover her medical bills and related expenses. Since St. Patrick’s Day is right around the corner, and green is the transplant color, we will be selling candles over the next month. Pre-order is now available through the link below, along with additional information.
app.smartsheet.com
Thank you for your continued support of Rory and her family!

Photo Galleries (1)

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Guestbook

March 29, 2021

You got this! Stay strong!

Aaron MacGovern

March 14, 2021

Know that your community is praying for you and your family.

Nick Lourens

March 6, 2021

Sending tons of love!!

Diana Noteboom

February 21, 2021

I will be continously praying for Aurora.

Jeanne Neidbalson

Hope Travels Virtual 5K: Sunday, May 16, join us in the race for relief from medical debt! You choose the pace, place, and time of your race – and who it benefits. Register Now