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Two years ago Aurora was diagnosed with Severe Pulmonary Hypertension. Since then her life has significantly changed and so has that of our family. Living with this illness has not been easy but Aurora has managed it with her sarcastic sense of humor, a positive outlook on life and above all strength and resilience.

Two short months ago Aurora was back in the hospital due to sever dehydration and declining health. Then we heard the news we never thought we would. Aurora was going to be listed as high priority for a bilateral lung transplant. Let the mixed emotions begin….

Updates (1)

April 12, 2019

We got the call! Two short months ago Aurora was listed for a bilateral lung transplant due to declining health after two years of being diagnosed with Severe Pulmonary Hypertension. Over the past two years Aurora’s quality of life has significantly decreased due to this awful disease. She could no longer play sports, attend school, suffered from constant side effect of medications, having to use oxygen constantly and being unable to participate in many things we consider normal everyday life. Through it all she has kept her sarcastic sense of humor, been a role model of strength and positivity. She is truly my hero!

So on April 11th we got the call that a donor was a match and now things are well under way! This is the beginning of a long road ahead for Aurora but I know it will be a better life! Your help and support will help us get through this and focus on whats important to her physical and emotional recovery. I promise to keep everyone updated along the way. Thank you for your love and support!

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Guestbook

April 23, 2019

Sending you UNCONDITIONAL love and support. We love you!

Arwa Hinnawi-Cevahir

April 23, 2019

Sending love and wishes for a strong set of new lungs and quick path back to recovery for a brave girl and her family -- from Akash to his most favorite darling (and her own darling)!

Adria Warren

April 18, 2019

Stay in the fight!!!

Stephen Rochon

April 17, 2019

Keep Fighting Rory! We Love You, Uncle John, Aunt Jan, Alex & Lauren

John DeSilva