
MobilityWorks
Accessibility for all: Helping people connect with who and what matters most
Searching...
No results found. Please try modifying your search.
As a teenager I was diagnosed with Chronic Pancreatitis, Primary Immune Deficiency, Lupus and other digestive diseases. This means that my body fails to efficiently fight off infections, I have constant nausea and abdominal pain, and I occasionally become lightheaded and faint. I have been injured in the past due to fainting. And it is even more dangerous when I am home alone. Now, I rely more on my walker, my wheelchair, and my family members to make sure I get around safely. Any nutrition and medications I need are received through an IV port in my chest.
I am looking forward to having a service dog to help me overcome these challenges. The service dog will be trained to seek out human help if I have fainted, pull my wheelchair, open doors for me, provide assistance with balance, and retrieve my emergency medicine bag and items that are out of my reach.
My hope is that, with such a helpful companion by my side, I will become the independent, accomplished young woman that I know I am meant to be.
Andrea has chosen to fundraise for Help Hope Live in part because Help Hope Live assures fiscal accountability of funds raised and tax deductibility to the full extent allowed by law for contributors. Contributors can be sure donations will be used to pay or reimburse medical and related expenses. To make a tax-deductible donation to this fundraising campaign, click on the Give button.
For more information, please contact Help Hope Live at 800.642.8399.
Thank you for your support!
I haven't been posting and wanted to open up and share why and what's been going on. I have had some very ruff hospitalizations. So bad for the first time ever I had to file complaints. Then about a month ago I was diagnosed with another autoimmune disease called Lupus. They assume Lupus is what killed my pancreas with Autoimmune Chronic Pancreatitis and that I was born with it. Mom thinks I have just been on a downward spiral since I was born fighting this.Honest I never thought this side of heaven I would have gotten an answer as to why my immune system attacked my pancreas. Specifically not knowing the disease process behind my chronic pancreatitis. I guess I am one of the complicated cases and I think I have a good doctor behind me. I hope my joint pain and fatigue improve once i am on the right combination of medication. I am having a very hard time wrapping my mind around this diagnosis. I think it is the permency and gravity of this diagnosis. It means my pain will always be there, and not having a cure or surgery to fix this. This is lifelong and gets worse. But it also opens doors for improvement which I am so thankful for. And on a high note I am almost off my Fentynal patches. I have gone down 90% on all my narcotic medication. I am super proud of myself. The hard part of it is the gigantic withdrawals. They have been stopping me from getting out of bed it is very painful and just feels like my gut is on fire. I have literally been withdrawing for a entire year! I am so close...soooo close. I am sorry for withdrawing myself it has just been a ruff year! Hoping something turns around soon!
Thank You Hazelton's who sent these to me in the hospital. I wanted to post a thank you right away but I was just so sick I couldnt pull my head up off the bed. But I really enjoyed them. The roses were beautiful and the smell heavenly. Thank you for sending them and thinking about me!
Day 13 in hospital. I am hoping that this week I will be able to come home. I guess my ulcers that are in my stomach and intestine are very big. So they are healing slowly and while they heal taking medication by mouth is impossible due to the burning, pain, vomiting and nausea. Luckily I am feeling so much better than I was 13 days ago. Today I tried to take my pain medication by mouth and it failed. I am praying that tomorrow when I try again it will be a success. I am trying to keep this post positive but I just feel so beat up. Emotionally, physically and mentally. I am just trying not to break. So I will continue to reach for God. And I could still use prayers.Thanks everyone for helping and sending love!
Loading Images
Keeping you & your situations / needs in my prayers! Have you contacted the various news outlets (tv, paper, community, online) in your area? Those will likely garner good support. I pray! Hugs!
PATRICIA A RUGGIERO
Make checks payable to:
Help Hope Live
Note in memo:
In honor of Andrea Lynn Slaughter
Mail to:
Help Hope Live
2 Radnor Corporate Center
Suite 100
100 Matsonford Road
Radnor, PA 19087
Donor preference is important to us. Please specify in writing if you wish for your name or donation amount to be kept private.
Subscribe to this campaign to receive updates.
Accessibility for all: Helping people connect with who and what matters most
Building leading-edge mobility products
One of the largest mobility dealers in the U.S.
Consult with specially-trained pharmacists, get your medications for pickup or delivery and more
All news, and all that matters to you
Your first step to optimized communications
The event for the disability community
Born to connect, empower and inspire the rare disease community.
A mobility dealer for wheelchair accessible vehicles and adaptive equipment