YOU have the opportunity to help little local Laguna girl, Rylie, live life to the fullest!
Rylie was diagnosed with a genetic disorder called Ataxia-Telangiectasia (A-T) on November 30, 2011, at the age of two. It is progressive and effects the control Rylie has over her muscles. She will progressively get worse and will likely be in a wheelchair around age 10; she is 9.5 years old today. Having this cruel disorder also means she is at a much higher risk to get cancer at a young age and have immune system deficiencies. The average life expectancy for someone with A-T is the late teens to early 20’s. A-T is extremely rare: there are only about 500-600 confirmed cases in the United States.
Rylie is so precious, so innocent, and so loved. Rylie is a beautiful and loving little girl. She brings so much joy to the lives of others and every moment spent with her a blessing. Rylie touches so many people in a positive way with her smile and compassion. Rylie is very intelligent and loves to play with her little sister and brother, dance, swim, learn at school (Top of the World Elementary) with her friends, and help around the house (especially by baking cookies!). Life without her is unimaginable. She deserves to live life to the fullest and have every opportunity to do so!
Photo Galleries (1)
Guestbook
May 7, 2019
Love to Riley and family!
Juliana Mittino-Smith
April 27, 2019
Rylie, You are an inspiration to us all!! I wish the very best for you!
Mark Miller
April 6, 2019
I cannot attend the ride fundraiser, but I am praying and wishing the best for Miss Rylie. Much love, Kristi Hadix
Kristi Hadix
