YOU have the opportunity to help little local Laguna girl, Rylie, live life to the fullest!
Rylie was diagnosed with a genetic disorder called Ataxia-Telangiectasia (A-T) on November 30, 2011, at the age of two. It is progressive and effects the control Rylie has over her muscles. She will progressively get worse and will likely be in a wheelchair around age 10; she is 9.5 years old today. Having this cruel disorder also means she is at a much higher risk to get cancer at a young age and have immune system deficiencies. The average life expectancy for someone with A-T is the late teens to early 20’s. A-T is extremely rare: there are only about 500-600 confirmed cases in the United States.
Photo Galleries (1)
May 7, 2019
Love to Riley and family!
April 27, 2019
Rylie, You are an inspiration to us all!! I wish the very best for you!
April 6, 2019
I cannot attend the ride fundraiser, but I am praying and wishing the best for Miss Rylie. Much love, Kristi Hadix