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Looking For New Lungs for Michael!

My name is Laura. My husband, Michael, is 35. We are a young couple and have been married since 2016. Michael was diagnosed at 6 months old with Cystic Fibrosis (CF). His lungs were much better when he was younger, but we still enjoy doing plenty of things together. We love spending time with our families, our 2 nephews and 2 small dogs, and going to the Marvel movies on opening night.

Updates (3)

December 19, 2019

WE GOT THE CALL FOR NEW LUNGS!
Michael got his new lungs on Friday the 13th, 2019. That will ALWAYS be a lucky number now!
He was on the transplant list for only 2 months and 3 days!
He’s recovering well after surgery- he is breathing at 99% without oxygen and is up and walking. Left chest tubes were removed, but right tubes are staying in until he has another procedure to check for an internal leakage tomorrow morning. A swallow study is scheduled for Monday to see how things are working and to see when he can get back to eating and drinking.
Everyone is very impressed with his healing so far and his lungs are working great!
Thanks for checking in and supporting Michael!

December 19, 2019

Update from his last Specialist appt:
Breathing is up to 23% which is better than he has been in the last 4.5 YEARS! Trikafta is really making an impact.

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