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My name is Deanna Brownlee. I’m 35 years old, and I have hypermobile Ehlers Danlos Syndrome (hEDS). What does that mean, exactly?

Updates (3)

August 11, 2019

It seems that I’ve somehow come down with a case of bronchitis that just won’t quit!

I started getting symptomatic about a month ago, so I went to my local urgent care facility. Because I am enrolled in CarePartners, the visit was only $25. Sure enough, it was bronchitis. The doctor gave me an antibiotic, a cough syrup, and an anti-inflammatory. I finished all my medications, and I never missed a dose.

But at that point, I was feeling even worse, so I went to the ER. They have a financial assistance policy in place, so I wasn’t as concerned about the cost. After a bunch of tests, they determined that I still have bronchitis as well as a UTI.

Today is day two of a week’s worth of new antibiotics, and I have now been sick for over a month. I don’t feel any better.

I also end up in significant pain every time I eat or drink anything, and it’s looking like that may be due to an h. Pylori infection that has survived three rounds of antibiotics.

At this point, I need to see an immunologist who understands EDS and the many complicated issues it can cause. I’ve done the research, and I already have a doctor in mind. That’s where your donations come in. The cost of the visit out-of-pocket will be several hundred at least, and I’m sure he’ll want to order some expensive tests. The money I’ve raised so far (and any additional funds I raise) will all go toward the cost of this visit.

Thank you all for the help you’ve so graciously donated.

July 19, 2019

A *MASSIVE* thank you goes out to David Manura, my first donor! He graciously and selflessly donated $1,000 so that I can reach more of my medical goals!!

I’ve given it a lot of thought, and I’ve done a lot of research, and I have decided to pursue a diagnosis of – and treatment for – my CVID symptoms. This will make the biggest impact on my life right now, and I believe that this choice enables me to stretch my donation as far as possible. I have already researched several immunologists, and I have chosen the doctor I want to see. Some good friends of mine are also donating their time and transportation to get me to this appointment. I am excited to begin this stage of my journey. I am hoping and praying for success as I embark on a new path in my medical care. Thank you again, David Manura!

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July 9, 2019

She says, "Financial stability and health insurance could be on the horizon for me after 11 years of fighting. I can do this!"

David Manura