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Help a disabled artist, writer & activist access her home and community while beating a genetic mutation that causes cancer.

Karrie is an award-winning writer, Intermedia artist, fabric designer, ink-maker, and outspoken disability activist in need of a wheelchair van, home mods, physical therapy, medical imaging due to Chiari-Syringomyelia & EDS, as well as preventive surgeries such as a hysterectomy & screenings due to a genetic mutation in MSH6 called Lynch Syndrome or DNA Mismatch Repair Deficiency or HNPCC that puts them at extremely high risk of various cancers, especially colon, uterine, ovarian, stomach, esophageal, bladder, pancreatic, brain, skin, and liver.

Updates (29)

April 30, 2023

Thank you for all of the support so far! Karrie needs a double mastectomy to prevent breast cancer. Our max out of pocket is extremely high and we need to raise $10,000 (we updated this because we double checked our max out of pocket and it's bigger than last year -- we had been thinking of last year's out of pocket) by July--for surgery and for additional costs related to care after surgery. Cancer mastectomies take a lot of tissue and require Karrie to go without using arms and a lot of rest and PT afterward to ensure no frozen shoulder or other issues. With EDS, healing is delayed and there can often be problems with the scars, etc. If any revisions need to be done, they will likely be in January and subject to a new out of pocket.

January 1, 2023

Happy new year, friends, family, and lovely strangers out there! Thank you for your support through a very difficult 2022! 2023 is shaping up with some new health challenges related to all my conditions, but I feel hopeful knowing my community has continued to lend support. Thank you, thank you! I will post an update soon, after I see oncology, orthopedics, and neurology again! I hope you are keeping warm and safe & I will "see" you soon!

Photo Galleries (6)

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Guestbook

June 1, 2023

Love you Karrie!

Ashley Spendlove

May 18, 2023

solidarity and love

sasha weiss

May 8, 2023

sending love to one of my favorite aquarians ever to incarnate. love, Natalie

Natalie Levin