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Help a disabled artist, writer & activist access their home and community

Karrie is an award-winning writer, Intermedia artist, fabric designer, ink-maker, and outspoken disability activist. At age fourteen, they became a healthcare activist, volunteering as a peer educator for a local reproductive health clinic. With notables in Best American Essays, Intermedia art exhibited in a retrospective at the first program of its kind, the Schiff Award for Prose, and an essay recognized as one of the Most Transformative Essays of 2016 by Sundress Publications (also nominated for a Pushcart), Karrie’s work breaks barriers for disabled writers and artists.

Updates (11)

July 30, 2020

Just a little update. I finally had some blood work done to figure out the cause of this crushing fatigue and increased pain. It’s different than the kinds of fatigue and pain I usually get. Earlier in the week (or was it last week already?), when I took a very short walk with Alan, I was unable to get home and he had to go get the car to pick me up. That is SO not like me!

I am being sent for another echo as well, which is long overdue as it is. Not much news. I just want to feel better and get back to making art.

July 25, 2020

Thank you so all so much! I wish I could click on individual messages or donations and send personalized thank-you’s! This platform doesn’t have that feature, so I hope you all see this!

Quick update that I am being sent to the infectious disease specialist as I cannot seem to get better. First, I need to go through internal medicine, so I made that appointment. It’s end of August and I need to hopefully move it to sooner. In the meantime, I am awaiting another test result. This means I may finally start getting some care to get better from this illness + infections on top of it that have not resulted with multiple rounds of antibiotics.It’s going to cost money, though!

In the meantime, I have obtained my uncle’s and father’s records to take to the neuro geneticist, but I was still waiting on the records from my father’s cousin. Those are coming soon. They will help the doctor because insurance is not going to cover genetic testing for the other condition in my family without some kind of documentation. This would be on top of the EDS.

Hope you are all doing well and staying safe. Wear your masks!

Photo Galleries (3)

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Guestbook

August 23, 2020

Love you, Karrie. A little something to help during this difficult time ❤️❤️❤️

gayle brandeis

August 19, 2020

I'm so sorry for all you're going through. I hope this helps.

Sarah Smith-George

August 11, 2020

Seems like you could use it more than me. Good luck getting the foods and stuff you need post nightmare storm.

Elizabeth Browne

July 22, 2020

We love you Karrie!!!!

Anonymous