Family and friends of Jennifer Jensen are raising money for the nonprofit Help Hope Live to fund uninsured medical expenses associated with transplantation.
Jennifer’s long journey started when she began to have breathing issues in 2014, and over the course of a year of having tests done, she was diagnosed with a very rare lung disease in 2015 called Pulmonary Langerhans Cell Histiocytosis. A disease that causes one not to be able to breath e and overtime to the point of complete lung deuteriation. Over the last 3 years as the disease has progressed, she has been in out of the hospital numerous times due to Pneumothoraxes caused by the disease, enlarged heart, and most recently because the disease seemed to progress to the point where we could no longer supply enough oxygen at home to keep her there (more than 20 LPM) and were looking for long term care because the hospital would not release her. She was pretty much bed ridden since early this year except to go to the bathroom as she would desaturate to the point of what we would feel like suffocating.
October 29, 2020
Evening everyone. Just wanted to give an update. We are now past one month from transplant. How time flies. Well the news is still good and she is still progressing very well. Last week she got the staples removed from the incision. She also had a bronchoscopy done which will be routine for the 1st year to test for certain things as well as for cellular rejection. Got results back this week and more good news. No signs of rejection on both fronts (cellular and tissue). Hoping they will let her go back home sooner than the end of the year with the way she is progressing. Doctors say they might, which would be awesome. Next major milestone will be at the 3 month mark. It's great to see her up and around without being tied to O2 machines. She's not yet to her old self yet, but that will come with time and some of the reduction of certain medications. They say around 6 months to get there, and 12 months to fully heal and be past the major hurdles. Still a long road ahead, but looking good. Thanks for all the prayers and well wishes.
I would also like to say thank you to those who have donated to the site and for those that did by other means for Jenny. We cant thank you or express enough our gratitude.
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October 9, 2020
You are in my prayers, and also my women's bible study group prayers - they are prayer warriors, rooting for your healing!! Love you!
October 9, 2020
Congratulations on your new lungs, glad to hear you\'re doing well. Take care!