Our beloved Heidy was recently diagnosed with an Angiosarcoma. This is an extremely rare tumor, therefore making it difficult to standardize therapy.
Angiosarcoma was first identified in 1934, however since that time minimal progress has been made to improve survival rates and treatment plans. This is an aggressive and often fatal prognosis, therefore requiring an aggressive approach. Because of the rarity of this diagnosis, expertise with this condition is also minimal. Heidy and her husband Arnold have started traveling to seek out these experts. Due to the fragile state of this tumor she is unable to fly, therefore requiring all travel to be done by ground.
March 4, 2020
Monday March 2, 2020 the first scans after OHS are complete to check for angiosarcoma. I am forever grateful and thankful to our Almighty GOD for his graces. The scans show no metastasis and no evidence of angiosarcoma! I am currently undergoing adjuvant chemotherapy – I call it the clean up crew. I have finished 6 doses with 10 more to go. I continue to receive my treatment in Houston (absolutely the best place to be and with the best medical team!) but am thankful that I am able travel and visit Jacksonville more frequently. The journey is not easy but it has been filled with innumerable blessings. I continue to feel fortunate, blessed and so very grateful for everyday, every person and all the blessings GOD had provided. Thank you for the continued support and prayers for me and my family. We are forever grateful.
January 15, 2020
I continue to feel better each and everyday since surgery. I was able to return to Jacksonville on 12/18/19 to start chemotherapy at home! This was such a blessing to be able to return home and be around family and sleep in my own bed! I was able to see the oncologist Dr. Verma when I returned on 12/18/19 and started my chemotherapy the following morning on 12/19/19. After receiving the one dose of Gemcitabine my platelets remained too low to continue the chemotherapy the following weeks.
Thinking over the past few weeks of my journey, a few months ago we didn’t know if we would spend this Christmas together as a family. The holidays are always a busy time for everyone as we try to prepare to feed our souls and faith with what is most important at Christmas and also balance playing Santa for our children so that they have exactly what they want under the tree. This Christmas was a wonderful and joyous time, and we were able to celebrate the birth of Baby Jesus with family and friends. Over the journey we have met so many people, the outpouring support, encouragement and love we have received from our family, friends and community leaves us forever grateful as we would not be here today if it wasn’t for every expression of love we has come our way. We have learned to appreciate every little moment, to slow down and smell the roses, and enjoy every single day as we are not promised tomorrow. We have learned to greater appreciate and cherish those in our lives more than ever and to never take anything for granted. Although we felt we did that before, we now have a different perspective and appreciation for this and this has made us better people and a better family. And with the newest addition to our family, we have a new baby cousin Cali who reminds us how great life truly is.
Our lives and family have changed so much in the last half of 2019, and 2020 will continue to bring us many blessings. We have so many to be thankful for starting with GOD as our leader, our family, our friends, and our community. Our faith continues to grow stronger each day as we continue the journey to fight to live.
Because of my low platelets it was decided that we should return to Houston and regroup with Dr. Ravi. He has decided to change my chemotherapy regimen to a drug that can be given with lower platelets – Taxol. We are hopeful that this will start this week. We are positive that this is going to help us win the fight against this awful beast. I wish all of you the best year ever because we do not know what the next year will look like. Love one another and cherish every moment.
We are so very thankful for everyone’s continued love, encouragement and support.
Photo Galleries (15)
March 24, 2020
Keep fighting Heidi!!! Praying
March 11, 2020
Keep fighting Heidy. You are amazing. We love you.
March 9, 2020
The best news I've heard this weekend, this makes me so happy. I countiously pray for you and your family. God bless you and your family.
March 9, 2020
To the wonderful coordinator I had back in 2004! The person on the other end of my "call"!!! God bless you and hope u heal.