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Our beloved Heidy was recently diagnosed with an Angiosarcoma. This is an extremely rare tumor, therefore making it difficult to standardize therapy.

Angiosarcoma was first identified in 1934, however since that time minimal progress has been made to improve survival rates and treatment plans. This is an aggressive and often fatal prognosis, therefore requiring an aggressive approach. Because of the rarity of this diagnosis, expertise with this condition is also minimal. Heidy and her husband Arnold have started traveling to seek out these experts. Due to the fragile state of this tumor she is unable to fly, therefore requiring all travel to be done by ground.

Updates (15)

July 29, 2020

Not only this, but we also rejoice in our sufferings, knowing that suffering produces perseverance; and perserverance, proven character; and proven character, hope. Romans 5:3-4

Hope, that is a word that I hold onto tightly. Hope for me to have continued time with Brennan, Connor and Arnold. More time with my family. The last few weeks have been challenging mentally and emotionally. My last PET CT showed inflammatory changes and I had another CT to follow up and it showed more nodular areas now more organized and also with blood around them. It was decided that the best course of action would be to do a needle biopsy to fully define what is going on. Praise the Lord our God that the biopsy results came back negative for malignancy, but even with two negative biopsies the oncologists can’t say for certain this isn’t cancer because of the pattern on the CT. They believe that they are micrometastasis in the lung and we hope that they will regress and resolve with continued chemotherapy and immunotherapy. We will travel to Houston, Tx in the next two weeks for a check up and to meet with Dr. Ravi and his team. A little nervousness comes with the travel as we have been very strict with our quarantine during COVID-19. We know it can be accomplished, we just need to be careful and take extra precautions. The journey and battle are not over, but by perseverance we find the hope that we need to continue to fight. Living each day to the fullest. We remain grateful and thankful to everyone for continued prayers and positive thoughts.

June 22, 2020

GOD IS GOOD. Trust in the Lord with all your heart and lean not on your own understanding – Proverbs 3:5. This has been something that I have had to learn and remind myself of frequently during this journey.

6/12/2019 a year ago I was on vacation with my family in San Diego and went to the local emergency room to be evaluated for swelling and shortness of breath. Never would we have thought that our lives were going to be turned upside down as they tried to figure out what was wrong. I was air ambulanced from San Diego to Jacksonville on 6/16/2019 and from there on 6/22/2019 I underwent many tests to finally undergo a biopsy of my heart which revealed that I had cardiac angiosarcoma. Upon receiving that diagnosis and reading all the awful things about the disease and its awful prognosis I have to say I did not think that I would be here today and was ready to get my affairs in order for my family. But as I said and believe GOD is GOOD, he has never left my side and has guided my decisions and the decisions of my medical team and here I am today to say thank you, I am forever grateful.

So fast forward to Tuesday 6/16/2020 I had my repeat PET scan after restarting chemotherapy and immunotherapy for my bone metastasis. We received the best news we could have asked for — the cancer is responding to therapy with one minor complication — some inflammatory changes in my lungs. This we can handle, because no problem is too big for our GOD. Over the last six weeks since restarting therapy I have regained some energy and endurance and am starting to be able to do more things on a daily basis. So the plan for now is to continue therapy as we have been and hope and pray for a full recovery from this awful beast angiosarcoma. I am grateful to have spent mother’s day and father’s day here in Jacksonville with Arnold, Brennan and Connor. I am also grateful to be here in Jacksonville with them as we continue to quarantine and social distance with coronavirus. We continue to thank everyone for following my journey, for your unending love and support. We remain strong so long as we fight together.

So today and everyday we continue to give thanks to GOD for all the goodness and blessings which he bestows upon our family. Each and everyday is a blessing from GOD.

Photo Galleries (17)

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Guestbook

October 8, 2020

Heidy, praying for you every day and missing your sweet smile. I can’t wait to see you again on my evening walks. Much love to you and your family! Xoxo

Nola Lanham

August 31, 2020

We are praying for you to be healed.

Jacob Plicque

July 13, 2020

Heidy, I pray for you and your family daily. May God keep you close as you fight on. You truly are a warrior.

Pat Arnett

July 12, 2020

Thinking of you and your beautiful family.

Rebecca Maddox