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Our beloved Heidy was recently diagnosed with an Angiosarcoma. This is an extremely rare tumor, therefore making it difficult to standardize therapy.

Angiosarcoma was first identified in 1934, however since that time minimal progress has been made to improve survival rates and treatment plans. This is an aggressive and often fatal prognosis, therefore requiring an aggressive approach. Because of the rarity of this diagnosis, expertise with this condition is also minimal. Heidy and her husband Arnold have started traveling to seek out these experts. Due to the fragile state of this tumor she is unable to fly, therefore requiring all travel to be done by ground.

Updates (14)

June 22, 2020

GOD IS GOOD. Trust in the Lord with all your heart and lean not on your own understanding – Proverbs 3:5. This has been something that I have had to learn and remind myself of frequently during this journey.

6/12/2019 a year ago I was on vacation with my family in San Diego and went to the local emergency room to be evaluated for swelling and shortness of breath. Never would we have thought that our lives were going to be turned upside down as they tried to figure out what was wrong. I was air ambulanced from San Diego to Jacksonville on 6/16/2019 and from there on 6/22/2019 I underwent many tests to finally undergo a biopsy of my heart which revealed that I had cardiac angiosarcoma. Upon receiving that diagnosis and reading all the awful things about the disease and its awful prognosis I have to say I did not think that I would be here today and was ready to get my affairs in order for my family. But as I said and believe GOD is GOOD, he has never left my side and has guided my decisions and the decisions of my medical team and here I am today to say thank you, I am forever grateful.

So fast forward to Tuesday 6/16/2020 I had my repeat PET scan after restarting chemotherapy and immunotherapy for my bone metastasis. We received the best news we could have asked for — the cancer is responding to therapy with one minor complication — some inflammatory changes in my lungs. This we can handle, because no problem is too big for our GOD. Over the last six weeks since restarting therapy I have regained some energy and endurance and am starting to be able to do more things on a daily basis. So the plan for now is to continue therapy as we have been and hope and pray for a full recovery from this awful beast angiosarcoma. I am grateful to have spent mother’s day and father’s day here in Jacksonville with Arnold, Brennan and Connor. I am also grateful to be here in Jacksonville with them as we continue to quarantine and social distance with coronavirus. We continue to thank everyone for following my journey, for your unending love and support. We remain strong so long as we fight together.

So today and everyday we continue to give thanks to GOD for all the goodness and blessings which he bestows upon our family. Each and everyday is a blessing from GOD.

May 12, 2020

I am a blessing. When we focus on being a blessing, God makes sure that you are always blessed in abundance.

Therapy has begun. I restarted chemotherapy on May 1, 2020, and immunotherapy on May 8, 2020. We are praying that the therapies together do something magical against this beast. As a family we remain positive and hopeful as we are faithful of God’s plan and we are patiently waiting for it to unfold. It is an interesting time to be sick during the pandemic with COVID-19. We are all adjusting to “social distancing” from our support systems while trying to carry on with day to day activities. I was reminded this week in my prayers that we should allow GOD to care for us and pray to him for the answers and what our actions should be so as not to interfere or stray from the plan that he has for each and everyone of us. He knows us and he knows our needs and what is best for us. We continue to be thankful and grateful for everyone’s fervent prayers for my health and healing. We know God is listening and we wait for Him to reveal his plan to us.

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Guestbook

July 12, 2020

Thinking of you and your beautiful family.

Rebecca Maddox

June 24, 2020

Dedicate your life to a cause greater than yourself, and your life will become a Glorious Romance and Adventure.” You my dear friend have certainly done that, and I know it does not always seem glorious or romantic, but it is certainly and adventure. I continue to be in awe of your strength and courage and elegance! I cannot wait for the day I can visit MCF again and see you ;) Xoxo Your forever Friend

Tiffany Coco

June 2, 2020

Prayers for you and your family Heidi. Stay strong!

Edward Yandoc

May 27, 2020

Heidy, Your Transplant Family wanted to send you some love and contribute to your fund to help with any pressings needs you might have. We have all been thinking about you and sending you love. We miss you and are sending you hugs.

Gina Cipollina