Hi all, Dawn here.
I want to update everyone on the current status of my health, expenditures, and the like.
First, THANK YOU SO MUCH to everyone who has donated!
You have LITERALLY saved my life. I could not afford my compounded medications, and my prescribed Neocate Elemental Amino Acid Medical Food, as insurance doesn’t cover any of them.
May 23, 2021
First, thank you SO much for your continued TLC and prayers.
Second, I’m thrilled to say that I am still maintaining my average weight! A-MAZ-ING.
I can still only safely consume 10 foods with reactivity or anaphylaxis due to mast cell activation disorder. It’s been two years this month. BUT I have had three successful trial runs with a few frozen blueberries (such a POP of flavor, my word), so #11 might be rounding the bend.
The Neocate amino acid formula continues to go well, my seven compounded antihistamines and mast cell stabilizer medications continue to provide me with the a-ok to eat (l premedicate with them 2 hours prior to meals, and I’ve now reached my longest point of no hospitalizations since things revved up 2 years ago. That is a real-life-LIIFE blessing.
I shared this on FB, but wanted to dictate it here as well because mast cell can be somewhat tricky to define and understand. I hope it serves as a tiny PSA to all as well; a walking clapboard, you know. 😉
“This is me, February 2020. 82 pounds.
On today’s date in May 2018 I got a tick bite via friend’s front yard. It gave me Alpha-gal, an allergy to all things mammal. Lyme, EDS, and tipping the scales a mold exposure at my then-residence, provoked my bod into full-blown mast cell activation disorder.
This is why I haven’t been able to consume more than 10 “safe” food for 2 years now without reactivity or anaphylaxis, why 5 hospitalizations and literally countless ER trips between May 2019-present were had (last one in Nov 2021 from handling a wool scarf, eg mammal material).
This is why chemicals, fragrances, essential oils, scented candles, and those damn scented dryer add-ins that my neighbors seem to adore, can send me into anaphylaxis.
This is why I must pre-medicate with seven compounded prescriptions prior to eating.
This is what YOU don’t want.
Please, once again, practice avid tick bite prevention. And mold avoidance and treatment.
October 11, 2020
I am still retaining my weight! It is only because of the very generous people who have financially allowed me to do so through the ability to pay for Neocate, my prescribed amino acid medical food, and the seven compunding medications I take for mast cell disorder.
You LITERALLY saved my life, and continue to do so. Without it, I would still be dying. My body still struggles with this autoimmune disorder, but I will not give up on healing, supernatural or otherwise. In the meantime, I am grateful to be able to get that caloric intake, despite still being on the same nine “safe” foods (minus three that are no longer as such) for a year and a half now. It’s not “fun”, but it is still a BLESSING to be ABLE to eat, period.
For those who have donated with financial assistance, and for those who have donated your prayers and love, THANK YOU THANK YOU THSNK YOU.
Photo Galleries (1)
June 17, 2021
December 1, 2020
I love you so much Dawn and I’m in awe of your strength, perseverance and positivity. You truly are an inspiration and a light in this world!!
November 24, 2020
Praying for you and reaching health and wellness : )
November 19, 2020