Hi all, Dawn here.
I want to update everyone on the current status of my health, expenditures, and the like.
First, THANK YOU SO MUCH to everyone who has donated!
You have LITERALLY saved my life. I could not afford my compounded medications, and my prescribed Neocate Elemental Amino Acid Medical Food, as insurance doesn’t cover any of them.
October 11, 2020
I am still retaining my weight! It is only because of the very generous people who have financially allowed me to do so through the ability to pay for Neocate, my prescribed amino acid medical food, and the seven compunding medications I take for mast cell disorder.
You LITERALLY saved my life, and continue to do so. Without it, I would still be dying. My body still struggles with this autoimmune disorder, but I will not give up on healing, supernatural or otherwise. In the meantime, I am grateful to be able to get that caloric intake, despite still being on the same nine “safe” foods (minus three that are no longer as such) for a year and a half now. It’s not “fun”, but it is still a BLESSING to be ABLE to eat, period.
For those who have donated with financial assistance, and for those who have donated your prayers and love, THANK YOU THANK YOU THSNK YOU.
March 15, 2020
It’s been much too long since I have posted an update!
I have been able to remain stable at 89 pounds with the addition of an elemental diet drink called Neocate. It’s an amino acid oral nutritional supplement that I take under supervision on my Gastroenterologist. It is pretty pricey ($147 for 9 days’ worth), and insurance does not cover or reimburse. My “safe” foods have been reduced to 6, and I am in my final round of appeals- this time seen by a judge- with my compounded medications. Sometimes I grow weary, I must admit. But I’m not giving up. Because of YOU and God.
I am so very appreciative to everyone for your constant support- financially and mentally. THANK YOU so much.
I have not had to use my wheelchair in 3 months!!!!!!! That feels AMAZING. My kidney enzymes are getting a little funky, and my knees still bonk out due to the combo of malnutrition, Ehlers-danlos, and prednisone (yup, still on it), but I have been able to get out and walk with the pup. It is JOYOUS to be outside! Absolutely changes my mood and perspective every time.
I will soon have my fourth injection of Xoilar, a biological medicine used for mast cell disorder syndrome and for asthma. I haven’t noticed a huge effect yet, but folks say that it often reaches peak performance between the 3 and 6-month mark, so I remain hopeful and prayerful.
Love you all so much!
Thank you dearly for lifting me up. XO to the moon and all of her tidal forces.
(Shale just came in the room to offer his wagging thanks as well. 🙂
Photo Galleries (1)
December 1, 2020
I love you so much Dawn and I’m in awe of your strength, perseverance and positivity. You truly are an inspiration and a light in this world!!
November 24, 2020
Praying for you and reaching health and wellness : )
November 19, 2020
November 19, 2020
Your photographic art is amazing, just as you are. So thankful for this campaign for you health! Keep shining your beautiful light on this world and keep pointin and clickin at the beauty your eye finds.