My name is Danielle Mauldin and I am 25 years old. In the summer of 2019, I began studies at the University of West Florida to obtain a second bachelor’s degree in Medical Laboratory Sciences. With a major in biology and a minor in chemistry, this second degree would have allowed me to become an accredited medical laboratory scientist in Florida. But in May of 2019, I visited the ER for the third night in a row and was given 24 hours to live.
I suffered a blood clot in one of the vessels that brings blood away from my small intestines, an extremely rare case in my young age of a mesenteric ischemia. On May 20th, two surgeons attempted to salvage what remained of my small intestines, but we were told there was nothing else they could do and that the infection was too far spread.
March 20, 2020
March 11, 2020: I have been officially re-listed for an isolated small bowel transplant!!! We have no way of knowing how long finding a donor match will take, as it is insanely specific and unfortunately requires someone to pass. I know it will all happen in God’s perfect timing. Until then, please continue to keep my family and me in your thoughts and prayers. Please also pray for the donor family and help us thank them in advance for the selfless gift of life, but also share in their loss. There are no words that could possibly fully express the amount of gratitude I already have for God and this family.
March 10, 2020
March 9, 2020: We meet with our transplant team and await final clearance to be re-listed from anesthesia on Wednesday, March 11th. If they are pleased with the photos from my latest bronchoscopy, I will finally be re-listed for an isolated small intestine transplant!
January 21, 2020: A post-op bronchoscopy is done at the six week mark. Dr. Murthy is pleased with the photos taken, but wants to continue on the three month recovery route to ensure full healing.
December 9, 2019: The head of thoracic surgery and an ENT performed a conjoined surgery where they resected rings 2, 3, and 4 of my trachea and connected 1 to 5. Scheduling two surgeons together at once is difficult and took over a month. I am hospitalized for four days where my chin is stitched to my chest for the first 72 hours to reduce movement of the surgical area. I am told the recovery period is three months because we can not risk being intubated again for a surgery if my airway is not fully healed.
November 2, 2019: A bronchoscopy is performed where they find the tracheal stenosis has returned. This is hazardous for the team that needs to intubate me for my transplant. We can not move forward until this is corrected, thus removing me from the transplant list (status 7). Since the diameter of my airway has narrowed by 70%, I will have to have a resection of some of the cartilage. We do not have a date for surgery yet.
October 21, 2019: I have been having more difficulty breathing and wake up in the middle of the night short of breath. It feels as if I can’t get enough air into my lungs. We notify my physician and an office visit with an ENT is scheduled. He schedules another scope.
September 28, 2019: I am ACTIVELY LISTED for an isolated small bowel transplant! Thank GOD!!! This is the day we have been anxiously awaiting.
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March 26, 2020
Praying for you
March 13, 2020
Girl we think of you often and mom was just asking if I’ve been able to find out how you are doing. We are the Family that you brought Hebert’s boudin to in Destin, FL. At the restaurant you were working at. I have Richard’s Seafood in Abbeville. Please know you are in our prayers.
March 13, 2020
Keep going Danielle. You’re almost there
March 11, 2020
You got this Danielle