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Let’s Watch Derrick GO with your contributions towards a wheelchair accessible vehicle!!!!

On July 7, 2018 Derrick was diagnosed with a rare medical condition called Bethlem Myopathy. Bethlem Myopathy is a type of Congenital Muscular Dystrophy that involves progressive muscle weakness, joint stiffness, and skin abnormalities. This diagnosis came with various emotions, questions and thoughts but after 9 years of unexplained walking difficulties, pain, sleepless nights, and excessive fatigue it was a relief to finally have an answer.

Updates (2)

June 3, 2020

SCARED, HUNGRY, TIRED, NEED to use the restroom, and grateful! Please allow me to paint a picture of the HEALTH and SAFETY issues Derrick faces without a powerchair accessible vehicle followed by our gratitude for the community:

Dear Supporters,

Yesterday, at about 7:00am, Derrick and I were driving on Southbound 101. We were stuck in gridlock traffic behind a semi-truck that had just turned over. Our car battery began to die while we idled behind the accident. Just after we passed the accident our car stalled on the freeway. We were able to pull into the center divide where we called AAA for a tow truck.

We were both very scared until the CHP towtruck arrived to drive us to safety. I will post a picture of the scene behind us as we waited in the car on the freeway.

The CHP towtruck driver was only allowed to drive us and our car to a safe location, just off the closest freeway exit. There he dropped us off with our broken down vehicle. We then waited for AAA to come with another tow truck to take our vehicle to a repair shop.

At this point we were still very scared, hungry, and needed to use the restroom. Even though we were now in a PERCEIVED safe location, with resources like food, water, and bathrooms nearby, Derrick was faced with the INABILITY to access them. He was not able to ambulate to the nearby locations. It suddenly dawned on me that we truly NEED Derrick’s powerchair with us while we are away from home.
For the 7+ hours that we were without a vehicle, and in a different city than our home, we were extremely limited to essential resources such as food, water, bathrooms, and safety. The reality, that Derrick’s limitations and need to have his powerchair in the community is a HEALTH AND SAFETY ISSUE, became more apparent to me!

When the second tow truck driver arrived, due to the current Santa Clara County Health Orders, Derrick and I were not allowed to ride with the driver to the repair shop. The car was towed and we were left, on the side of the freeway, to find alternate means of transportation to the repair shop.

We needed a new alternator and, as the heat outside climbed to over 90 degrees, we had to wait several hours for the part to arrive and be installed. The auto shop had a shuttle that dropped us off at the nearby Target. The Target we went to had a Caroline’s Cart that Derrick could sit in while I pushed him through the store. However our SUSTAINABLE food options were limited to Target’s food because Derrick could not ambulate to the nearby restaurants.

About an hour before our vehicle was ready, Derrick began saying, “my brain is more than 100% insane right now, I want to go home!” At this point, without a sustainable meal all day, my brain was becoming mush too.

Had we had the powerchair with us, Derrick would have been able to ACCESS, what someone who could ambulate, would access for health and safety, in the same situation. He would have also been able to endure the wait more comfortably in his custom powerchair and maintain his sense of SANITY.

I feel stronger than ever that Derrick absolutely needs the vehicle conversion we are fundraising for. It is no longer just about enjoying the community. It is now about health and safety!

Please help us raise the $25,000 we need for the $60,000 accessible vehicle we are hoping to purchase by June 30.

Because every story has a reason to be grateful:

Yesterday, I learned, California Highway Patrol offers this free service, thank you California taxpayers and thank you to Jose Rodriguez who brought us to safety: www.chp.ca.gov

Thank you to Community Garage in Morgan Hill for your caring and speedy assistance!

Thank you to my friend, Carolyn, for dropping everything, masking up and transporting Derrick and I to our car!

Caroline’s Cart, ask the manager at the stores you shop at if they have them available for the disabled: technibilt.com

Thank you to my boss, Michael, for understanding and helping me!

February 22, 2020

Dear Supporters,

While Derrick still has not raised enough funds to purchase a powerchair accessible vehicle, Shelby decided to attempt taking Derrick on his first trip to Disneyland!

Shelby would like to share the family’s experience traveling to and from Disneyland. She does not want to discount the wonderful time they had but for the purpose of fundraising she will share the challenges faced on their trip.

The number 1 biggest challenge faced was transportation.

“We went to Disneyland under the impression that Uber had WAV service where we were going.”

Those unfamiliar with Uber WAV, Uber provides affordable rides in wheelchair accessible vehicles. A WAV is the same cost you would pay for a UberX, which is very reasonable.

When the family arrived in LAX, they used the Uber app to request a ride to the hotel. It was stressful for the family when Uber did not have any WAVs available. They instead requested an Uber Assist which ended up being a tiny Prius. The driver was kind enough to squeeze the wheelchair into the front seat of his car. This set up was unnerving as the chair was partially in the drivers seat. Again on the way back to the airport, a Toyota Prius picked the family up from the hotel.

Because of the difficulty with transportation, their time in LA was restricted to the hotel and Disneyland. “We had a wonderful time but it would have been great to have more healthy food options by going to the grocery store and exploring the city we were visiting a bit more.”

The 2nd challenge faced were the inclines and declines throughout the Disneyland Park. This was not only a challenge for mom physically, spending 12+ hours pushing a wheelchair up and down hills but it was scary for Derrick. “Derrick not only has physical challenges but he also has various sensory challenges.” Derrick was afraid of the change in speed on the declines in the park. Mom did the best she could to muscle the chair by pulling back so Derrick was able comfortable with the speed.

Mom says that having Derrick’s powerchair with them their own accessible vehicle would have provided a safer and more comfortable experience in Los Angeles, not just for Derrick but the entire family.

“I am hoping to get Derrick out into the world more, a powerchair accessible vehicle would help immensely!” ~Shelby

Your donations in honor of Derrick Grimm to Help Hope Live are paid directly to the medical vendors and tax deductible to you. You can be sure donations will be used to only pay or reimburse medical and related expenses. To make a tax-deductible donation to this fundraising campaign, click on the Give button.

For more information, please contact Help Hope Live at 800.642.8399.

Thank you for your support!

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Guestbook

June 3, 2020

Glad I can help out. Wish I could have helped with your car. Crazy that it died right there and then without any warning. Usually a light comes on the dash when the alternater stops working. But sometimes they don't.

Scott Christensen

May 25, 2020

I am excited for you to get the vehicle you want and need. I am happy to contribute to your and Derrick's well-being. :)

A'nna Aguilar

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