October 23, 2019
July 2019 Nick started dialysis again. His sister was approved as a living donor and they are now in the Paired Organ Program waiting for a living donor kidney.
September 17, 2018
Our first transplant appointment with UT Southwestern is October 11th! We will be starting the transplant process again.
August 27, 2018
8-27-18
We are moving from Children's to Dallas Transplant Institute since Nick is an adult now. Unfortunately we are having to start the transplant process again. Our goal is to have a donor before he needs to start dialysis.
January 3, 2018
Nick had a small bout of rejection that looks like is reversing now. There is a balance between keeping his immune system suppressed enough not to cause rejection and not suppressed enough for his body to fight off the BK Virus. The last change in medicine didn't work - his body rejected the kidney rather than fight off the BK virus.
August 15, 2017
Nick is doing great! It is 2 months post transplant and things couldn't be better. He completed his first college class with an A and is looking forward to fall semester. He will be able to go away to school next fall.
June 20, 2017
Thank you everyone for your love, support and prayers. We still have a long road ahead of us but so excited to have a new gift of life! Our thoughts and prayers also go out to the family that was generous enough to gift Nick that gift of life when they lost a loved one.
June 20, 2017
Nick received a kidney on June 16, 2017!
May 31, 2017
Another donor was tested and was negative for one of the antibodies but positive for the other. Still in search for a kidney!
May 3, 2017
We are still testing for living donors and waiting for a call that a kidney has come in from a cadaverous donor. Either way is fine with us!
March 27, 2017
Friday Delaney was tested and today we found out she cannot donate to Nick either. He is still Status 1 so a cadaverous kidney can still come in for him.
March 17, 2017
We found out Nick is Cancer Free and we can start the transplant process again!
Unfortunately March 2017 we found out that Tanner is not a complete match for Nick and cannot donate. Delaney has asked to be tested next.
February 8, 2017
Monday, February 13th Nick will have another PET scan to see if the cancer is still gone. If that comes back clear then we are on track to do the transplant ASAP! There is a light at the end of the tunnel!
November 8, 2016
Last December Nick was granted a wish with the Marty Lyons Foundation www.martylyonsfoundation.org/ and was able to meet Stephen Curry and watch the Golden State Warriors play. We also were able to enjoy a family vacation together in San Francisco. It was a lot of fun! We are very grateful the the Marty Lyons foundation for that opportunity!
Now we are moving forward and have been approved to proceed with the kidney transplant aiming for February 2017 which will mark Nick being cancer free for 2 years!
December 1, 2015
Dec 1, 2015
We received word from the Dr. that we will be doing dialysis for another year. Research shows that waiting two years after the diagnosis of the PTLD has the least affect on the transplant and should be long enough for the cancer not to return once he is back on anti-rejection drugs.
This is disappointing to Nick but at least we do see a light at the end of the tunnel.
September 15, 2015
Nick had his hemodialysis catheter removed last week and his fistula is working beautifully! He was able to wake surf and swim at his friends lake house which he hadn't been able to do for 9 months with the catheter in. He even went to open gym and played basketball this week. Nick is able to be a little more "normal" with his fistula. Praise God!
March 4, 2015
Nick has finished his last infusion for the lymphoma. Now we are just in a holding pattern - making sure it doesn't surface again and doing hemodialysis 3 times a week.
February 9, 2015
Nick has been diagnosed with PTLD, a form of lymphoma. It is currently only in his throat and is being treated. His kidney transplant is on hold until this is treated fully.
January 28, 2015
We have tentatively scheduled Nick's transplant for March 2nd. Fortunately his older brother Tanner is a match and will be the donor!
August 4, 2014
Nick celebrated his 10 year transplant Anniversary in December 2013. Unfortunately now at the age of 16 his kidney is starting to fail and he is in need of another transplant. We are in the process of evaluation right now and will soon be testing for living donors. We are hoping he will be back to playing basketball by the fall of 2015!
