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Help Greg Get Back On Course – He Is In Need Of A Double Lung Transplant

After being diagnosed with COPD in 2004, Greg learned that he had Alpha-1 Antitrypsin Deficiency in May of 2018 after being hospitalized with double pneumonia. Since then we have been actively working with his medical team to manage the devastating effects of the disease including weekly in-home transfusions. The degree to which his lungs have been compromised became apparent when we received the results of his August Pulmonary Function Test, where we learned he had between 18-20% lung function.

Updates (8)

March 31, 2020

Check out our most current update at Tawnya’s blog: lifeintheflower.blogspot.com

March 17, 2020

We are under self-isolation. Last Wednesday we had the opportunity to meet virtually with Dr. Ison, Infectious Disease at Northwestern Medical and he provided a deep dive into the Covid-19 virus. Each day as information has come available we have heard from the transplant team.

Greg is no longer receiving his Alpha-1 infusions due to the risk of his home nurse inadvertently passing the virus. She happens to be an ER nurse in one of our local hospitals and as we have all learned, our healthcare providers are at high risk of exposure. The infusions help maintain his current function. We know that a loss of function is probable and the duration of being off the infusions ultimately impacts him.

The local hospital where Greg goes for his Pulmonary Rehab twice a week was also cancelled yesterday due to the growing threat in our local area. The rehab is again used to maintain his function so that he is in the best possible shape for transplant. The good news is that there are exercises and things he can do at home to work on his cardio.

The transplant team has assured us that they are absolutely moving towards transplant with everyone on the list and the virus does not impact their ability to do their job. It simply is a waiting game. Obviously given the current state of things, I would have to imagine that if we were to get the call in the next couple of weeks, we would be limited to who can be at the hospital with us.

Thank you to everyone who continues to support our family! We could not do this without each and every one of you!

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Guestbook

April 2, 2020

Sending healing thoughts and energy to Greg! ❤️

Jill Buckley

March 18, 2020

Hugs, prayers, & positive thoughts coming your way! I can’t even imagine what you are both enduring! ❤️

Amy Fortae

March 7, 2020

Love all of you!

Jim & Wendy Kennedy

March 1, 2020

Thinking of you guys!

Jenny Delaney