Maxwell was born with a profoundly debilitating condition called FOXG1 Syndrome. FOXG1 syndrome is a non-hereditary genetic condition that leaves Maxwell without the ability to walk, talk, sit, stand, grasp objects, feed/toilet himself, and caused a coritical vision impairment rendering him legally blind. He also requires a feeding pump to provide nourishment through his gtube. FOXG1 caused Maxwell to develop epilepsy in March 2019.
Despite all of these challenges Maxwell faces daily, he is the happiest, kindest, most patient kid ever! He never gets mad and loves music, swimming, mickey mouse, pigs, mardi gras beads, painting, bells and anything that lights up and has sound. He is a joy and blessing in our life and is loved by all!!! He even helped EXTRA LIFE raise $10,000 for Cincinnati Children’s Hospital (which he attends) by being the HERO KID for WV Fox gaming campaign! He is our little star!
January 14, 2020
Over the weekend, Max was invited to a birthday party for his best friend, KJ at Kidaroos. Kidaroos is a trampoline playground, and I am happy to say that Max, KJ, his friends, and Max’s brothers all had a lot of fun!
Ed took Maxwell on the trampoline and jumped a little with him. We caught Max smiling=) Ed and I put Maxwell down one of the baby slides which he seemed to be not so sure about.
January 8, 2020
Hello friends! This is Marisa, Max’s mom! We are beginning to fundraise for a wheelchair van that is suited for Maxwell. We were informed that the wheelchair vans cost anywhere from $50000-$70000, and as much as I hate to admit it, we cannot afford this van alone. Any contribution you make will go straight to Help Hope Live, and they will keep the money in a safe account until we are ready to use it for a wheelchair van. They will pay the dealership directly.
You can help us in so many ways (even if you are unable to contribute) by sharing Maxwell’s page with your family and friends.
We humbly thank you for being a part of our journey!
Ed, Marisa, Max, Monica, L, and Ro
Photo Galleries (1)
January 15, 2020
May the Love of God be poured out on Maxwell and his family....
January 9, 2020