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Stem Cell Transplant for Yu-Ling

Hi, I’m Yu-Ling. I’m from Taiwan and am living in the US since 2011. I was diagnosed with two rare diseases (cryopyrin-associated periodic syndromes (CAPS) with a mutation and hemophagocytic lymphohistiocytosis (HLH)) in May of 2019. HLH is highly fatal if untreated. Luckily, a matched cord blood sample was found by my doctor and I will be receiving the stem cell transplant by the end of the year or early next year. If the transplant succeeds, it will take months to a year for the recovery.
嗨!我是雨玲,我來自台灣在2011年來到美國念博班,在2019年的五月,我被診斷出兩種罕見疾病:冷凝蛋白相關週期性症候群(CAPS)和噬血症候群(HLH),HLH是種高致命率的疾病,骨髓或幹細胞移植可以同時治癒兩種疾病,很幸運的,我的醫生已經幫我配對到幹細胞,目前預計年底或是明年初會接受移植,如果移植成功,大約需要數個月到一年的恢復期。

Updates (4)

February 14, 2020

It’s Day 7 now. I had my transplant a week ago and everything went well. Now, we are just waiting for the cells to grow and to take over the job that my original cells cannot do.
今天是移植後的第七天了,目前一切都還好,現在能做的就是等待,等待新的細胞成長然後取代原本的細胞的功能。

February 5, 2020

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Guestbook

March 4, 2020

May God bless you!

Winnie Daniels

January 22, 2020

祝早日康復,加油!

Olivia Lu

January 19, 2020

May God heal you and give you faith in HIM! Blessings!

Yu Zhu

January 18, 2020

As a fellow autoimmune disorder warrior, I can relate to some degree (I also live in America and got my PhD in the sciences [immunology]). I applaud your courage and optimism and hope your transplant achieves all It is meant to achieve. Best of luck ❤️

Peilan

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