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Help HOPE Live for Janae Maggard

Janea is a 15-year-old young lady who strives to do anything she can independently and tries to do what every teen girl her age would want to do. She is remarkable at so many different things and adapts well in many different settings. Janea shines bright to those around her, and she has become quite well known in this community. She has a few close friends including a boyfriend and a live-in cousin at home who support and care for her as she does her best to keep up with all the kids her age. However, Janea has a physical disability that most kids do not have to contend with, Arthrogryposis Multiplex Congenita. It is not a common diagnosis, and it limits her mobility and muscle development. She has had many surgeries and been to many different specialist and therapies. She has accepted the way she is and has chosen not to have any more surgeries any time soon. Cognitively she is age appropriate and quite mature for her age, but her physical challenges are substantial with basic, everyday needs. She knows what needs to be done and can kindly ask her family, friends, and caregivers to complete these tasks as she cannot do many things herself as she would want to. Janea overall strives to be like all the other kids her age and to be as independent as possible, but ultimately her safety depends on others as well as her ability to feel as normal as she can, knowing she is unique in her own way and faces many challenges on a daily basis. Just the feeling of inclusion means a great deal to her. She is an inspiration to many around her and is talented in areas that are unbelievable. She draws, paints, writes, and types with her mouth. She truly is special and deserves the very best of everything. Her spirit and sense of humor is incredible. Janea always looks for the good in everything and everyone. Her love for Jesus grows each day and inspires her to keep going no matter what obstacles she may face along the way. Janea say’s “God made her the way she is”, and she is okay with that! She is unstoppable and makes me as a mom feel encouraged and proud to keep doing the best I can to get her all the things in this life that she so very much deserves. Janea has the determination to do better and work through whatever comes her way and pushes me as her mom to do the same and to never give up. When it gets hard to see the light at the end of the tunnel, I just look at her, she is the light, and I know then it is worth every bit of the struggle.

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Guestbook

June 20, 2025

Janea (and her mama) have been spunky go-getters since the day she was born. You both have got this!!

Teresa Davidson