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Pelizaeus-Merzbacher disease is a rare disease that is a leukodystrophy. It is a disease in the brain where a PLP1 protein that makes myelin is not producing it at the capacity our body needs. Therefore Declan has physical and cognitive delays. While this disease is terminal we have hope that Declan will overcome.
We as Declan’s parents are determined to give him a life well loved and well lived. We strive to make Declan feel included and as independent as we can possibly help him to be.
We appreciate your continued love, support, and blessings to our family. Our thanks would never be enough.
Love,
The Murphy’s (Devin, Dani, Declan, and Dawsyn)
Family and friends of Declan Murphy are raising money for the nonprofit Help Hope Live to fund uninsured medical expenses associated with Catastrophic Illness.
Declan has chosen to fundraise for Help Hope Live in part because Help Hope Live assures fiscal accountability of funds raised and tax deductibility for contributors. Contributors can be sure donations will be used to pay or reimburse medical and related expenses. To make a tax-deductible donation to this fundraising campaign, click on the Give button.
For more information, please contact Help Hope Live at 800.642.8399.
Thank you for your support!
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In honor of my best friend from college’s wedding (also the Aunt of this cutie)!
Meghan Capps
Aunt Tator and Uncle T love you more than you know, big guy! We thank God every day for putting you in our lives and seeing how much you are a light to others.
Taylor Wilson
I remember your mom from highschool, she turned out to be as great of a mother as she was a person then! Always kind! Blessings to you Declan!
Anonymous
Make a Lotta great memories on your new bike
Richard Roberts II
This is such a wonderful idea! Ed and I have so enjoyed all the pictures and videos of Declan that Taylor has shared via social media. Hope this donation helps in a small way to help Declan achieve his goal and start riding that bike!
Jami Wilson
Praying for you guys!!! Declan has made so much progress and I can't wait for this to happen for you guys!!! Hugs from your birthday twin, Jocelyn
Alee Deloya Hernandez
Way to go Declan! You keep riding Buddy! We miss you
Candi Stephens
Danielle, you have always have the biggest heart and watching you blossom into an amazing mother (from afar) to such sweet babies is so inspirational. I hope Declan is able to get everything he wants and needs to live his life to the fullest.
Ryann Prawlucki
Hey friend! Let’s go riding together when we can! Love, Charlie
Charleston Trippodo
Make checks payable to:
Help Hope Live
Note in memo:
In honor of Declan Maximus Murphy
Mail to:
Help Hope Live
2 Radnor Corporate Center
Suite 100
100 Matsonford Road
Radnor, PA 19087
Donor preference is important to us. Please specify in writing if you wish for your name or donation amount to be kept private.
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