Declan is a 4 year-old boy living with Pelizaeus-Merzbacher disease in High Point, North Carolina. Declan is a determined, happy, loving, and peaceful boy that has a heart that could only represent the Father’s love for us.
Pelizaeus-Merzbacher disease is a rare disease that is a leukodystrophy. It is a disease in the brain where a PLP1 protein that makes myelin is not producing it at the capacity our body needs. Therefore Declan has physical and cognitive delays. While this disease is terminal we have hope that Declan will overcome.
Photo Galleries (1)
July 24, 2020
In honor of my best friend from college’s wedding (also the Aunt of this cutie)!
June 28, 2020
Aunt Tator and Uncle T love you more than you know, big guy! We thank God every day for putting you in our lives and seeing how much you are a light to others.
June 26, 2020
I remember your mom from highschool, she turned out to be as great of a mother as she was a person then! Always kind! Blessings to you Declan!
June 25, 2020
Make a Lotta great memories on your new bike
Richard Roberts II