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Most of you don’t know me.

Even those that have been around for years.

You only know bits and pieces of my struggles, heartaches, and obstacles. And that’s only because you happened to be there, when in that moment, I was going through them. That doesn’t mean you are less important than those that do know. It just means that I am only as good as what I show you. I don’t let most people know what I am going through, including those closest to me. Why you ask..?

Updates (10)

February 12, 2026

I'm back. And I feel like I either pissed someone off upstairs, or I was a horrible person in my former life. Although things had calmed down a bit for me, here I go with another few rounds in the ring... In 2024, I had a HORRIFIC knee injury. It happened at work: I couldn't walk at all for the first few weeks, without a brace for a few months, and still cannot go up the stairs without pain. It set me back so far, and it took a lot to be even somewhat physical. Emotionally, I've been spent. On top of the physical difficulties, I went through a divorce last year. It took a long time to come to the realization that not everyone is capable of dealing with possible fatal illnesses. I'm good with that part of it - but I never got married to get divorced. I didn't think it would ever happen, and I certainly did not wish it on my boys. With that being said, sometimes peace comes at a high price.

I've been doing my best to take care of the effects the transplant has had on the rest of my body. No one tells you what the fallout will be like. You have this amazing chance at living a full life post transplant, but they really didn't explain the "after". I had liver complications from the time of the transplant and for next 2yrs after. Every 6-8wks I was going back for repeat procedures - they were going through my belly, into my liver to exchange stents, clean the liver ducts out, testing flow, and then leaving an external drain. This was SO very painful, inconvenient, and definitely not what I expected or wanted. The immunosuppressants affect me in ways I couldn't have guessed: I now need to have cataract surgery, I have scars, varices (enlarged blood vessels om the verge of rupture) and spider veins (from the internal pressure). I also have 3 hernias in need of repair.

The biggest problem now: my mouth ( I know my Mom will argue and say my big mouth has been a problem long before the transplant.. I get it Mom.). My gums are pulling away, my front teeth have moved apart, some of my teeth are collapsing inward. I am so embarrassed to talk or smile. I cannot eat correctly, and I certainly speak differently. It has been frustrating to say the least. Last year, I was TERRIFIED that my liver was being rejected with the amount of pain I was feeling. Come to find out, I had blood clots in my portal and hepatis veins (both feed into the liver). I'm now on Warfarin, a blood thinner, for the rest of my life.

As if that isn't enough, 2 wks ago, I started experiencing some familiar symptoms. I was feeling very itchy (BIG "OH NO,,,"), so from experience, I knew to have my labs drawn. All of my liver enzymes were extremely elevated. I didn't immediately panic, as I had just been on antibiotics not too long before that, which can cause the elevation. I sent my hepatologist a message and that I would be repeating my labs. Enzymes still high, my concern growing, my doc ordered an MRCP (specialized MRI). Unfortunately, a narrowing of multiple ducts was seen. Therefore, I will be going back into the hospital for another one of the procedures to add stents in multiple ducts, flow tests, and a possible external drain placed. I was so hoping not to have to even revisit this part. I'm not looking forward to the pain, the sheer inconvenience of it all, and the thought of having to again, go back every 6-8wks to repeat the procedure. I am feeling broken. Frustrated. Angry. My heart hurts. And I'm definitely exhausted. But I will never quit, or give up, even though some of these things could break someone's spirit and crush their soul.

Your enormous hearts have brought me through some of the worst of my days. And then carried me right to seeing my boys become young men. Have girlfriends. Pick colleges. Choose to become practicing Catholics (AMEN!) Among so many other special moments. Saying thank you isn't enough, and I could never TRULY express how I feel, but I appreciate each and every one of you from the bottom of my heart. Selfish as it may seem (I'm sorry!), I'm asking for more. Please, if you can all keep me in your thoughts and prayers, I would SO appreciate it. You lift me up in ways I cannot even explain, so I don't even try. But I do my best to pass all of this on to whomever needs the support like I do. Love, good wishes, and forever thanks to all of you, your friends, and families!

May 11, 2022

And the hits keep coming’…

I was supposed to have had one of my repeat procedures this past Monday. It had to be canceled. Happy Mother’s Day to me, I tested positive for COVID. I literally had to distance myself from my boys that day, and I will have to quarantine for 20-30 days because of my transplant and the immunosuppressives I’m on. I had already spent too much time as it was, away from my boys.. Another minute is too much.

2+ years and I get it now. Why..? When I’ve been so careful... Now I can’t work. I don’t know what they’re going to do. We were short on employees as it was. They’re going to get tired of me taking time off. And I don’t have enough PTO in the world to cover what I’ve already missed.

I could really use some prayers right now. For me, my family and friends that were exposed, my boys, and my coworkers. Please let us all get through this as unscathed as possible and without anyone else becoming infected or affected… Thank you. Amen.

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