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After being diagnosed with with Idiopathic Pulmonary Fibrosis (IPF) in February 2017, Richard has reached the point of needing a double lung transplant in order to survive. Over the past three years he has tried numerous medications and been placed on 02 full-time. There is no cure for IPF and treatments only slow the progression they do not cure it. The only “cure” is a lung transplant and that comes with it’s own risks and treatments as well. He will be on anti-rejection meds and will be traveling to Boston for follow up for the rest of his life. While the insurance will cover the transplant itself there will be extensive tests that need to be run in order to be approved and make the list as well as the expenses of medication and travel post transplant.
Richard and Nicole have been married for 21 years and friends for 27 when they met through work. Richard has worked for the same company for the past 35+ years while raising his family and helping them raise their children now. Richard has 4 children and 7 grandchildren who range in age from 2 to 17. His family has always been the most important thing to him and he would like to continue to be there to see them grow and spend time with them.
Donations will help with copays, non-covered medical bills, medical supplies, transportation for appointments ( to and from Boston), temporary relocation for after the transplant, pre and post transplant medications that he will need for the remainder of his life. Medication can be as much as $3K per month.
We are are raising money for the nonprofit Help Hope Live in honor of Richard Prentiss to fund uninsured medical expenses associated with transplantation.
We chose to fundraise for Help Hope Live in part because Help Hope Live assures fiscal accountability of funds raised and tax deductibility for contributors. Contributors can be sure donations will be used to pay or reimburse medical and related expenses. To make a tax-deductible donation to this fundraising campaign, click on the GIVE button. Please share Richard”s page with your social media community. Any support is welcome.
For more information, please contact Help Hope Live at 800.642.8399.
Thank you for your support!
12/17/2020 = Well as most of you already know it has happened!!!!!!!!!! On 12/14 we got the call that there was a set of lungs available. Both new lungs were transplanted by 11:50 that night. Surgery lasted roughly 6.5 hours and was done off bypass meaning his heart was doing all the work the whole time! He came through surgery very well and so far everything has been good. He is off the ventilator and breathing on his own as of 3:45 pm on 12/16. He is still in the ICU for now and will remain so probably for the weekend. With all things Covid everything is up in there air about how this is going to progress so who knows how long we will be here or when we will get to go home. Richard and I deeply appreciate everyone's support during this time. We can't thank you all enough.
Went on this list officially as of 5:40 pm on 10/20/20 and got a call at 11:15am on 10/22/20 that they had a set of lungs. Turned out to be a dry run and surgery was called off at 1:30 in the morning on 10/23/20. Made it all the way down to the surgery preop area and had 3 out of the 4 IV lines already in when they called it. While it was obviously disappointing it is part of the process and we understand that completely. Our condolences and thanks to the donor family for their loss and for the amazing gift of life that they were willing to share with many other families. While we may not have been able to use the lungs other families received this amazing gift and on the the road to recovery themselves. Our time will come and until then we wait and we stay strong.
OCTOBER 20, 2020 RICHARD WILL BE OFFICIALLY LISTED!!!!!!!!!!!! Thank you to all that have supported us this has been a lot of hard work and testing and a long time coming! We are hopeful that the wait will not be long once he is on the list but at least we have made the list. Once it happens he will be up to a month in hospital and then at least a month in Boston after for follow ups. We still have along road ahead but we will make it!!!!!
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Proud of you and the strength it took to make this journey.
David & Traci Levasseur
Stay strong!
Tiffany Strong
Always here to help in any way possible!!
Brian Derrivan
Thoughts and prayers to you guys❤❤❤❤
Katie Lombard
With best wishes for successful surgery and complete and uncomplicated recovery
Lucile Hanscom
Southend Grocery Wishes You The Best!
Steven Hiller
Best of luck with your continued fight. Brighter skies to come!
Evan - Rockport Post & Beam - Dyer
God Bless you!
Eileen Kaatz
Love you guys! Stay resilient. Stay adventurous.
Devin DeCanio
We love you Richard.
Traci and David Levasseur
Thinking of you all. ❤
Tarsha Richmond
Make checks payable to:
Help Hope Live
Note in memo:
In honor of Richard E Prentiss
Mail to:
Help Hope Live
2 Radnor Corporate Center
Suite 100
100 Matsonford Road
Radnor, PA 19087
Donor preference is important to us. Please specify in writing if you wish for your name or donation amount to be kept private.
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