RICHARD NEEDS YOUR HELP!
After being diagnosed with with Idiopathic Pulmonary Fibrosis (IPF) in February 2017, Richard has reached the point of needing a double lung transplant in order to survive. Over the past three years he has tried numerous medications and been placed on 02 full-time. There is no cure for IPF and treatments only slow the progression they do not cure it. The only “cure” is a lung transplant and that comes with it’s own risks and treatments as well. He will be on anti-rejection meds and will be traveling to Boston for follow up for the rest of his life. While the insurance will cover the transplant itself there will be extensive tests that need to be run in order to be approved and make the list as well as the expenses of medication and travel post transplant.
October 25, 2020
Went on this list officially as of 5:40 pm on 10/20/20 and got a call at 11:15am on 10/22/20 that they had a set of lungs. Turned out to be a dry run and surgery was called off at 1:30 in the morning on 10/23/20. Made it all the way down to the surgery preop area and had 3 out of the 4 IV lines already in when they called it. While it was obviously disappointing it is part of the process and we understand that completely. Our condolences and thanks to the donor family for their loss and for the amazing gift of life that they were willing to share with many other families. While we may not have been able to use the lungs other families received this amazing gift and on the the road to recovery themselves. Our time will come and until then we wait and we stay strong.
October 7, 2020
OCTOBER 20, 2020 RICHARD WILL BE OFFICIALLY LISTED!!!!!!!!!!!! Thank you to all that have supported us this has been a lot of hard work and testing and a long time coming! We are hopeful that the wait will not be long once he is on the list but at least we have made the list. Once it happens he will be up to a month in hospital and then at least a month in Boston after for follow ups. We still have along road ahead but we will make it!!!!!
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October 7, 2020
Thoughts and prayers to you guys❤❤❤❤
September 13, 2020
With best wishes for successful surgery and complete and uncomplicated recovery
September 4, 2020
Southend Grocery Wishes You The Best!
August 21, 2020
Best of luck with your continued fight. Brighter skies to come!
Evan - Rockport Post & Beam - Dyer