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Hi, my name is Daisy Checo. I was diagnosed with a condition called Hypermobility Ehlers Danlos Syndrome (hEDS, commonly known as EDS), 7 years after my symptoms began in 2009. It’s been over a decade since I had to leave my role as a Property Manager, dealing with debilitating pain and a slu of other related conditions.
EDS causes my joints to partially dislocate, multiple times a day. As it has progressed, my spine, jaw, shoulders, ribs, and extremities were staying dislocated for days at a time. It also affects my GI tract, causing over 60 food sensitivities; staying healthy is expensive and food prep is challenging because of my condition.
Basic self-care is like trying to keep a stringed puppet moving. The strings represent my muscles and ligaments trying to keep my spine, ribs, shoulders, knees and ankles from partially dislocating all day long. Other symptoms of EDS include Vagus Nerve disfunction, which affects my senses, digestion, muscles, and mental health.
In 2017, doctors told my husband and I, that it would be nearly impossible for us to have children. However, in 2019, we were blessed to have our son, Sebastian. Unfortunately, my condition doesn’t allow me the freedom to be the active mom I yearn to be.
Treatment:
After years of research, countless doctor and therapy appointments, we learned about Comprehensive Prolotherapy, the only treatment that can cure many symptoms of hEDS. My condition has caused such degeneration, that we had no choice but to make this treatment an immediate priority.
In December 2020, I traveled from our home in Charlotte, NC, to Caring Medical in Fort Myers, FL; I went for 2.5 months of Comprehensive Prolotherapy by Dr. Ross Hauser. He has been helping EDS patients from all over the world for 28 years but treatment is not covered by insurance. Aside from regenerative medicine therapies, extensive physical and occupational therapy are required for my rehabilitation; travel expenses, food, and housing are all out of pocket as well.
My amazing husband, Jose, has been supportive through everything and is a true provider for our family. And my in-laws have helped immensely with caring for our son. But as any family facing health challenges knows, funds for medical expenses do not come easy. We did not want to ask for help but our closest friends convinced us to start a fundraising campaign to help with the costs.
After 2.5 months of prolotherapy, at $11,000 per treatment (for multiple joints), we have exhausted all of our financial resources. We have accumulated over $60,000 in debt and desperately need help to continue treatment.
How donations will be used:
Donations to Help Hope Live will help get me to the next treatment and hopefully to include treatment for my slipping ribs syndrome, shoulders, and knees.
My desire is to regain independence to raise my baby boy, become active enough to give back to my community, and raise awareness of EDS and the types of lifesaving treatments that can help others.
We’ve chosen to fundraise for Help Hope Live because they assure fiscal accountability of funds raised and tax deductibility for contributors. Donations will be used to pay for and/ or reimburse approved medical and related expenses.
To make a tax-deductible donation to this fundraising campaign, click on the Give button. For more information, please contact Help Hope Live at 800.642.8399.
For more about Daisy’s battle with hEDS, please check back for further updates.
Thank you for your support!
SLIPPING RIBS
Have you ever had a rib partially dislocate?
That’s one of the worse symptoms of EDS.
Today my top rib popped back in place after 5 days of being out of place. It felt wonderful!
But around 6pm, my son ran to answer the door bell, and reaching out for him, my rib slipped back out again.
I’m in so much pain again.
I don’t show it on my face, because what’s the point?
I just have to focus on the fact that it will eventually pop back in. Hopefully sooner than later.
This is why I need so many treatments. I have so many joints that dislocate all day everyday. It stops me right in my tracks.
When my rib popped back in, it was a pretty loud pop. My husband heard it, sitting a few feet away. When my bones pop back in, that sound is music to my ears.
But when the sound is from them popping out, it’s an emergency siren, for pain to start.
Before Prolotherapy, I had to treat Eagle’s Syndrome. To make sure it wasn’t the cause of my painful symptoms.
This the 1st time I see my baby boy after 2.5 months out of state for treatment.
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Love Dad and Millie
Anonymous
We love you
Nancy Rizzo
We are honored to be a part of your journey, sis. Rooting for you and your family's needs to be met and for your full restoration in health. Love you!
Mariam Greb
Make checks payable to:
Help Hope Live
Note in memo:
In honor of Daisy F. Checo
Mail to:
Help Hope Live
2 Radnor Corporate Center
Suite 100
100 Matsonford Road
Radnor, PA 19087
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