Searching...

No results found. Please try modifying your search.

Imagine:

You and your spouse or loved one is at your umpteenth doctor appointment over the past 10 months to find out what is wrong with you. You have been poked, prodded, jabbed, and stuff in MRI’s with no word of what you have, though some very scary conditions have been ruled out like MS, Parkinson’s, and a few other neurologic conditions. So the doctor performs two final tests by shooting an electric shock through your nerves, not fun, then jabs a needle into your muscles in different spots to read the muscle’s response waves, really really not fun. At the conclusion of the final test, the doctor in his most empathetic voice says the worst three letters, ALS (Lou Gehrig Disease)…he continues to inform you that unfortunately it is 100% fatal. There are two medications on the market that could, maybe, or possibly extend the average post diagnosis life span of 2 to 5 years by 6 to 9 months. There will be additional drugs prescribed to ease some of the effects.

Updates (11)

May 5, 2022

Alan has spent the last 44 days in the hospital! Yes, that's a whopping 44 days! We went in through the emergency department on March 22nd due to respiratory failure. After having a trac placed, an ng tube (nose tube for feeding), then pneumonia, and finally a tube (tube placed for long-term feeding in his stomach. We thought we were in the home stretch to come home!

We were WRONG! Alan went into refeeding syndrome and developed an ileus! All bad things! Refeeding is when your body is unable to accept nutrition and had a reaction. The ileus happens to be a common symptom of ALS. A neurogenic disfunction.

Either way, we then had to figure out how to get his bowels to cooperate with and reduce the extended bowels that were developing due to the ileus not to mention, get Alan back on nutrition so he could get home.

Phew, this has not been an easy task, but we are looking at the home stretch and it's looking fabulous!

However, this brings us to a new need!

I am Alan's only caregiver. However, when Alan returns home from the hospital he is going to need 24-hour care. It's near impossible for me to do this alone. So we are asking if you would help us by donating so that we can bring aboard additional support for the both of us.

Caregivers with skilled nursing skills range anywhere from 15-35 an hour as I am told. This is well beyond what we're able to afford. The county has a program, but they are so behind they aren't even looking at assessing us until the middle of June! I may be insane by then.

And then there are the bills that are accumulating from our hospital stay and his new care needs. Which include equipment, daily medical sterile supplies, and so much more.

Please know that everyone who is able to help us is so greatly appreciate for your support!

December 20, 2021

Hello All,

it's been awhile since I've had an update so hear it goes . First a huge thank you to all my donors to date , you have made it possible for me to receive the needed equipment to keep me healthy as possible to extend my life .

My progression has made me non ambulatory, my arms and hands are not working, my lungs have weakened, my voice is gone, though I am still able to eat solid food.

We currently need to raise money to cover the costs of in home care to share the work load with my wife , my 24 hour caregiver,

Photo Galleries (2)

Loading Images

Guestbook

May 9, 2022

With you in prayer

Mary Oliva

May 8, 2022

The love you have for each other, keeps you strong....

Remember, you are not alone....we love you both!

Bless you Alan, and your little family....

Anita Castillo

December 11, 2021

Alan, I don’t have a lot to give - but sending you tons of love & support, I wish I could do more for YOU after all you did for ME at Cardinale!

Best wishes,
Tricia

Tricia Rider