Searching...

No results found. Please try modifying your search.

Imagine:

You and your spouse or loved one is at your umpteenth doctor appointment over the past 10 months to find out what is wrong with you. You have been poked, prodded, jabbed, and stuff in MRI’s with no word of what you have, though some very scary conditions have been ruled out like MS, Parkinson’s, and a few other neurologic conditions. So the doctor performs two final tests by shooting an electric shock through your nerves, not fun, then jabs a needle into your muscles in different spots to read the muscle’s response waves, really really not fun. At the conclusion of the final test, the doctor in his most empathetic voice says the worst three letters, ALS (Lou Gehrig Disease)…he continues to inform you that unfortunately it is 100% fatal. There are two medications on the market that could, maybe, or possibly extend the average post diagnosis life span of 2 to 5 years by 6 to 9 months. There will be additional drugs prescribed to ease some of the effects.

Updates (8)

March 20, 2021

Had first quarterly ALS Clinic appointment yesterday, 3.5 hours long, 2 doctors, 5 technician. Unfortunately my lung volume and strength decreased, strength is arms, legs, and hands also decreased. We talked with speech technician about Eye-Gaze talking device and started paperwork to get it as my speech is declining. I am needing to add an additional 350 plus calories because I lost 9 pounds over the last 3 months, weight lose for ALS patient is not good. My PM&R doctor is ordering a sleep study to determine if or when I will need a breathing assistance machine. Not the best of appointments but was very informative.

January 29, 2021

Photo Galleries (2)

Loading Images

Guestbook

March 21, 2021

Prayers and love to you Alan

Carol Rodgers

January 27, 2021

We continue to keep you in our prayers, Alan.

Jenny Aburto

November 14, 2020

We’re praying for you Alan!

Jenny Aburto

September 25, 2020

We love you my friend. Sending prayers to you and your family . Xoxo

Mary Lou Gardner

open

Hope Travels Virtual 5K: Sunday, May 16, join us in the race for relief from medical debt! You choose the pace, place, and time of your race – and who it benefits. Register Now